Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before Seeing Results From Diet!


micaldrew

Recommended Posts

micaldrew Newbie

I am pretty new to this website. I have had problems since 1996. I tried the gluten free diet about 3 1/2 years ago and it didn't help. I have been tested for every thing and we are at square one again. My docotor really feels it is Celiac. She want to do that endoscope thing again to see. All other tests have come back negative. I think I am going to pass on the test and just get started on the diet. I ate a bunch of pizza Friday night. I was so sick all night and all day yesterday. I was going to start the diet yesterday but I already messed up. I got a grilled chicken salad from McD's. I didn't realize it has caramel coloring in it. Now I am starting all over again. I also just found out that I can't even make my kids a peanut butter sandwich with regular bread. I think that is where I went wrong last time. This is going to be so hard. Maybe I will finally start loosing weight. Does anyone know if Cherry Coke is okay to drink? I love to drink one first thing in the morning. Well, my big question is: How long before you notice a difference? I have loose stools, urgency, and lots of cramping and just feel plain meiserable. I hate to leave the house any more. I really don't know how much longer I can put up with this. Thank you so much for allof your advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

All coke products are gluten-free, remember you need to have all makeup, shampoo's, lotions etc., gluten-free. As everyone's body is different so will be the time they would start seeing the effects of gluten-free. My stools went normal in the first week. However, if I get a small amount of gluten by accident it happens back to runny again. As for cramping, I have been gluten-free for about eleven months now and I still get cramping on and off. Of course maybe some of this is caused by accidental minute glutenings. Oh and welcome to the forum.

micaldrew Newbie
All coke products are gluten-free, remember you need to have all makeup, shampoo's, lotions etc., gluten-free. As everyone's body is different so will be the time they would start seeing the effects of gluten-free. My stools went normal in the first week. However, if I get a small amount of gluten by accident it happens back to runny again. As for cramping, I have been gluten-free for about eleven months now and I still get cramping on and off. Of course maybe some of this is caused by accidental minute glutenings. Oh and welcome to the forum.

I checked out my cherry coke and it does have caramel coloring to it. Isn't that a barley product? I know I was told I couldn't have any carmal coloring.

Shalia Apprentice

Nearly all caramel coloring in the US is gluten free. Enjoy your coke. :)

micaldrew Newbie
Nearly all caramel coloring in the US is gluten free. Enjoy your coke. :)

THANK YOU!!!!!!!!!!!!!

CarlaB Enthusiast

Healing time varies with the individual. It will take you time just to find out where the not-so-obvious gluten is in your diet. For a while you may want to stick to mostly meat, chicken, eggs, fish, veggies, fruit, potatoes, and rice that you prepare. Then start adding in gluten-free versions of food you like.

Fast food is notorious for being contaminated ... but I know that several have a few things they consider "safe". Personally, I avoid it. I'll take my own food in a fast-food restaurant if my family goes to one (usually if we're travelling).

I tend to have a reaction of about 8 days after even a small amount of gluten, so your healing time will be very dependent on getting the gluten out of your diet.

Welcome. Keep reading and learning!! Ask if you can't find your answer ... that's what we're here for.

kbtoyssni Contributor

Welcome! Don't worry too much about the mess ups. It takes a long time to figure this out and I'm sure you'll accidently gluten yourself a lot in the first few months. For my first gluten-free meal I had corn flakes. I was so pleased with myself for reading the labels and finding something without wheat. It wasn't until several days later that I realized they had barely malt in them.

I felt better within a few days. I had a few relapses, but I had a major feeling-better breakthrough at two months and another at eight months and now I feel fantastic. The time it takes you to get better will depend on how much damage you had to your intestines and also if you have other food intolerances. I was about 90% better a few months ago, figured out peanuts make me sick and now I'm probably 95% of the way to perfect health :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

It took me 2 weeks to realize when I was glutening myself. Up until that point I still felt bad all the time and couldn't tell - but who knows how many times I glutened myself in the beginning. After two weeks I could tell when I was eating something bad and I had probably and equal number of good and bad days. It took me a while to look through all my products and realize I did need a separate strainer and pots and pans. So, I would say that some of it depends on your learning curve and some of it depends on how much damage/how fast your body heals. Once I got to the feeling better point there was no way I was turning back. I had no idea that I could feel that good and it was worth all the inconvenience to keep it up.

You can make your kids sandwiches if they dont' need to be gluten-free. I would just use a dedicated gluten cutting board and wash your hands after you make them. I get pretty paranoid when I cook with gluten, so it is your choice if you want to do it, but it can be done safely. I would rather be the one to handle the gluten than let my husband. I know I will wipe up the crumbs but with him - who knows.

par18 Apprentice
I am pretty new to this website. I have had problems since 1996. I tried the gluten free diet about 3 1/2 years ago and it didn't help. I have been tested for every thing and we are at square one again. My docotor really feels it is Celiac. She want to do that endoscope thing again to see. All other tests have come back negative. I think I am going to pass on the test and just get started on the diet. I ate a bunch of pizza Friday night. I was so sick all night and all day yesterday. I was going to start the diet yesterday but I already messed up. I got a grilled chicken salad from McD's. I didn't realize it has caramel coloring in it. Now I am starting all over again. I also just found out that I can't even make my kids a peanut butter sandwich with regular bread. I think that is where I went wrong last time. This is going to be so hard. Maybe I will finally start loosing weight. Does anyone know if Cherry Coke is okay to drink? I love to drink one first thing in the morning. Well, my big question is: How long before you notice a difference? I have loose stools, urgency, and lots of cramping and just feel plain meiserable. I hate to leave the house any more. I really don't know how much longer I can put up with this. Thank you so much for allof your advice!

Well first off I guess it would depend on how sick you are, how sensitive you are, how careful you are and how committed you are. That said I started this diet about 18 months ago. My main gastro symptoms went away in a couple of days. I was pretty malnourished so it took me a couple of months to get some weight and strength back. I did "not" eat any meals out for I know at least 4-6 months. McD's would be one of the last places I would ever eat even today. If you really want to be careful then I would suggest sticking to naturally gluten free fodds in the beginning. (meats, fruits, veggies, etc.) Also I would try to make your home as gluten free as possible if that is an option. The support you can get from family and/or friends would go a long way to helping you be successful. Organize your grocery list before shopping by using the internet or calling food producers. Trying to read labels in the store can be frustrating. Hope this helps.

Tom

Rusla Enthusiast
I checked out my cherry coke and it does have caramel coloring to it. Isn't that a barley product? I know I was told I couldn't have any carmal coloring.

Caramel coloring in north america is gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.