Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scope Test


jknnej

Recommended Posts

jknnej Collaborator

So, since going gluten free, I've lost my voice....I am a singer (a soprano) but you'd never know it now because my voice is low and scratchy.

Now, when I had my endoscopy/biopsy, the dr looked at my vocal cords and they looked fine...he even took pictures. I took those pictures to an ENT-Ear, nose, throat doctor. She said that although the cords looked fine on the pictures, she would need to do HER scope test on me. Now, I walked out after that because:

they stick a tube/camera up your nose and down your throat and you are awake the entire time.

Now, I handled the GI biopsy just fine because I was OUT; that's fine with me. But now I am freaking out because she wants to do this test with me fully awake-they won't even allow you to have a sedative.

I REALLY need to find out what is wrong with my voice; I've already had to quit teaching choir because of this and I now teach English. I enjoy it, but I still need a voice to teach.

Help!!! Has anyone else had this test? Is it awful? Did they give you a sedative? I know I need to stop being a baby but it really freaks me out. I need to find out what's wrong with my voice before I do it permanent damage, if I haven't already....help!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I am afraid there is no other way for the specialist to look at your vocal cords. I feel it is very important she look at your vocal cords, the other doctor wouldn't really have known what to look for.

Are you sure that other intolerances aren't causing you to lose your voice? I constantly lost my voice before I went off all the foods I am intolerant to. Now I just realized that my voice has been fine for many months, no sore throats, no scratchy voice, or losing my voice.

So, there might be nothing wrong with your vocal cords, your vocal cords might be reacting to foods you're intolerant to. Something to consider.

theprincess Newbie

I'm studying to be a speech-language pathologist so I know some clinical stuff but MORE importantly, I'm a vocalist, too!

1. The test at the ENT is NOTHING. If they use a flexible scope, they will stick it down your nose (some people Afrin or numb you first) and it will hang to your vocal folds. It is uncomfortable but not painful at all <-- I am a major pain wussy. It sort of feels like if you snort water up your nose. This scope is actually good at identifying major things like nodules and bumps but not so good if you want a detailed view. So if they think they need to they will send you to an SLP who will perform a rigid scope (some ENTS do this but most just refer you)

2. The rigid scope is not painful at all because it doesn't "go down your throat" perse. The therapist wraps some gauze around your tounge and then pulls it out so that they can see the back of your throat. Then they take a metal stick with a camera on the end of it and look at your chords.

In both cases they will ask you to do a series of silly sounds so that they can watch the way your chords move. Sometimes one chord will get lazy or stop moving. This could be a cause of the scratchy sound and would not be able to be detected on the endoscopy (because you wouldn't be making noise and vibrating your chords against one another.)

I highly reccomend that you go back and let them do the test. It's not painful or scary and it could really help you. If you have some kind of reflux (which is common to Celiac I've heard) then treatment is very simple. Your doctor may want you to go to a SLP for therapy because vocalists can gain a lot from learning how to use their voices properly in ALL contexts.

I hope this wasn't too detailed or boring. Good luck! Feel free to e-mail or pm me if need be.

Ashley

jknnej Collaborator

Yeah, I guess I will have to have it done. I am such a wussy with things and gagging, though!

I really do need to find out what is up with my voice, though.

I am worried that if I have nodules, which is very possible considering I overuse my voice, how can I go on vocal rest as a teacher?

I do have reflux and I take Prevacid for it. But the endoscopy picture of my cords and esophagus show no damage, so that is good,....

Well, my appointment is Tuesday, 10/24. will they do it right then and there?

theprincess Newbie

Yep. I have had both scopes and an endoscopy and I SWEAR that the flexible nasal scope is no big deal. In fact, in school we volunteer on each other! If it was that bad I would be honest. (You won't gag from a scope down your nose most likely, either)

KEEP THIS IN MIND: It is highly unlikely that you have nodules if they weren't seen on the endoscopy. They are pretty obvious, kind of like little whiteheads. BUT there are a host of other things that could be wrong with the functioning of the chords. Thats why its important to have it done, because the endoscopy is not a functional test. You need to find out whats up so you can bless the world with your voice. GL again!

jknnej Collaborator

What other kinds of things could be wrong?

Hopefully no nodules...the problem the ENT said before I left was that there could be nodules on the underside of the chords because she could not see that part with the pics she had.

OK if you say it's not that bad I'll do it..hopefully I won't gag...I will be terrified, though!!

How is the rigid scope? Is that test worse than the flexible one?

theprincess Newbie

There are a ton of mildly irritating but totally fixable things that could be wrong. Also, it could be totally non-medically related that you just are doing some harmful things while you are teaching class, even without noticing it. It's easy to hurt your voice speaking - in fact - even easier than while singing!

I think the rigid scope is worse because I gag easily, I didn't gag with the flexible. GL - let me know how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

the flexible thing is not that bad and i have the worse gag reflex even during my sleep studies i couldn't have the tube down my throat cause i would be barfing everywhere before tehy got it down, they do numb your nose so you really don't feel a thing and it does not go to the back of your throat just into your nose

don't worry about it it is not something to stress over.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    5. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.