Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Advice

AmyandSabastian

Recommended Posts

AmyandSabastian Explorer
AmyandSabastian
Posted

I am so needy lol. But I trust all of you so much. I am not sure if I need to be posting this on my website or here. I have no idea if it celiac disease related or not. Here I go:

When Sabastian went gluten-free in May we saw night and day differences. And right away within the first 4 days. All was well up until 2 weeks ago. I dont know if its a phase or growth spurt or just teething (which I dont see any). He is started to get cranky and super clingy again. His stools are a little softer than normal. His belly is getting hard with each meal (not sure if he is over eating or not) he is eating more than normal again. He is waking crying again!!! Its really starting to look like old times. I swear he isnt eating gluten gosh I hope not I am checking so well. I am just at my wits end with a cranky baby. He is 8 1/2 months old and is trying to walk so bad, which could be it too. He gets so tired when he is learning. But the last 2 days he has skipped nap 2 and 3 which has made him just impossible. I might be over reacting but with no doctor in the state that knows anything about celiac disease I have no where to turn other than you. Any advice would be so helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Alexolua Explorer
Alexolua
Posted

Is it possible there could have been cross contamination somehow? Is your household completely gluten-free? If not.. if there happens to be crumbs on the floor, and he crawls through them.. could get some on his hands, and as soon as he puts a hand in his mouth, then there goes gluten in him.

Oh maybe a new product he started up on, has some gluten hiding in it? Keeping a food journal, and making notes of how he is doing could help track things too.

Or maybe it could be the trying to walk, he caught a cold.. or something.

Hope this helped somehow, and good luck! =)

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

I forgot to mention one thing, and this may sound stupid. I have noticed that his little nose is rosey. Just the tip but it has been red. Isnt that weird?

Alexolua Explorer
Alexolua
Posted

Maybe? I'm not much of an expert at this, sorry.

Oh, and one thing I forgot to mention.. you said he was teething? Maybe something you've been giving him to chew on has gluten on it somehow?

Well trying. =)

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

No he MIGHT be teething, but no redness or swelling so I havent even thought he was. But because of his age everyone says "Oh he must be teething"

TaylorsMom Rookie
TaylorsMom
Posted

I am far from an expert but I thought I'd give a suggestion anyway. Is he lactose intolerant as well? Is it possible, since at 8 1/2 months I'm sure he's trying new foods, that he has recently had a new dairy product and he's not handling it well? I'm not sure of your story before going gluten-free, so I may be way off. If so sorry in advance. You are right to be concerned though, especially with the looser stools and the hard abdomen. Those two things, in my opinion, signal that it's not a phase or teething but rather something that's being ingested.

Megan

woots Newbie
woots
Posted

again, i am far from an expert but have learnt alot in the last 3 months. my daughter seems to have gone through a similar set of circumstances as you have already mentioned. she was diagnosed some 3 months ago with celiac disease and in the last three weeks we have spent another week in hospital. the reason all stems around her being milk intolerant also so she is on a milk free and gluten free diet. The doctor over here has also placed her on a soya free diet for good measure in order to give her a few months of a balance diet where her immune system and intestines can grow again.

So in a nut shell, she is on a gluten, milk and soya free diet. the soya will be for about 3 -5 months but the milk for a few years yet.

she has really picked up and the change has been incredible, she is running around and putting weight on which is a wonderful sight to see.

dont know if that would have been of any help, but i am learning myself at present.

mark wootton

Nottinghamshire

England

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


reidei Newbie
reidei
Posted

From another non-expert....I have been told that redness on extremeties is a sign of allergies....my nephew gets bright red ears (for example) when he's

exposed to something he's allergic to. The allergist told his mother to look for

this shortly after eating certain foods as a sign of allergies.....I would consider this as a possibly reason for a red nose...

For what it's worth - hope it helps....

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

Well man I have some updates for you. In this one Sabastian got his first 2 front bottom teeth this week!!! He is doing great and has become a wonderful biter!! All symptoms are gone. YAY.

celiac3270 Collaborator
celiac3270
Posted

Congratulations!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,703
    • Most Online (within 30 mins)
      7,748
    Suzanne Rademacher
    Newest Member
    Suzanne Rademacher
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Kirkland Quinoa allergen information

      By Scott Adams · Posted

      If possible find quinoa with a gluten-free label--when grown in Peru or Ecuador it is far less likely to have wheat contamination. Canada increasingly is producing more quinoa, and when grown there it the likelihood of wheat contamination is higher.
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      Welcome to the forum, @Grahamsnaturalworld What exactly do you include in your diet?  Do you keep a food journal to track symptoms? Have you tried an elimination diet like the Autoimmune Protocol Diet?  It's very strict, but I found it excellent for reducing inflammation, calming the immune system, and promoting healing in the gastrointestinal tract.   The AIP diet was developed by a doctor who is a Celiac herself, Dr. Sarah Ballantyne, who wrote The Paleo Approach.   Have you been checked for nutritional deficiencies?  Sometimes vitamin deficiencies can manifest as gastrointestinal problems.  Which symptoms do you have currently that make you think your refractory?  How long have you been on a gluten free diet?  When were you diagnosed?  
    • Scott Adams
      Diagnosis confusion

      By Scott Adams · Posted

      I think @trents may be correct here, and you've caught celiac disease in its early stages. A gluten-free diet might be the safest approach.
    • trents
      Kirkland Quinoa allergen information

      By trents · Posted

      Welcome to the forum, @Garlic! This kind of question is always a gray area and the answer must be nuanced. Ideally, every celiac should stay away from any potential source of gluten, however small. But we don't live in an ideal world and sometimes it is appropriate to take risks as long as the risks aren't too large and the consequences not too drastic. Realize these companies work hard at covering their butts against possible litigation so they often err on the side of abundant caution to guard against this. And Costco is a very conscientious organization as well. In reality, cross contamination from shared equipment is usually not a significant threat except to those celiacs on the ultra sensitive end of the spectrum. Do you fit that category? Note, we are talking about cross contamination from using shared equipment, not other sources of CC such as happens in cultivation, transportation and storage. I mention that because some types of products are typically heavily cross contaminated in these other ways. A prime example is dried legumes.
    • Garlic
      Kirkland Quinoa allergen information

      By Garlic · Posted

      I recently noticed a “warning” on the back of Kirkland Quinoa packages sold in my area. It says in part: “Allergen Information: Processed on equipment that also packages products that may contain. . . wheat, . . . .” I have been buying my quinoa at Costco for years and I believe it used to have gluten free on the label. I don’t know when this warning first appeared. I’m concerned that I might be getting gluten through this source. Any thoughts, experiences? Do you think a thorough rinsing of the quinoa before cooking would help? Thank you in advance for any advice. 
×
×
  • Create New...