Can Anyone Help Me With More Sites?

[Rachel--24]

You sound like you have some really great doctors!

Yeah...I hope so. Its been a 4 year wait with no answers and a whole string of really bad doctors. All of a sudden I'm getting all my answers in the last couple weeks and it feels good but also a little overwhelming.

[darlindeb25]

I have to say, I understand overwhelming. I feel like a truck ran over me last night--I thank you all for the info, yet am so frustrated. I read that just because you couldn't tolerate certain foods in one way, that maybe you can in another--it never occurred to me that I am making myself sick. I have the "why me's" tonight and can't shake them. I will though and I will get myself in a better frame of mind and researh all this. Thank you so much.

[CantEvenEatRice]

I have to say, I understand overwhelming. I feel like a truck ran over me last night--I thank you all for the info, yet am so frustrated. I read that just because you couldn't tolerate certain foods in one way, that maybe you can in another--it never occurred to me that I am making myself sick. I have the "why me's" tonight and can't shake them. I will though and I will get myself in a better frame of mind and researh all this. Thank you so much.

I wonder why there isn't a certain medicine or even alternative medicine to heal a leaky gut. How do you heal your gut when you cannot eat anything? I am confused because they say to eliminate foods that bother you, but for me that is almost everything. Then if you eat the same foods over and over, you can become intolerant to those too! What do you do? How do you heal yourself?!

[Rachel--24]

I wonder why there isn't a certain medicine or even alternative medicine to heal a leaky gut. How do you heal your gut when you cannot eat anything? I am confused because they say to eliminate foods that bother you, but for me that is almost everything. Then if you eat the same foods over and over, you can become intolerant to those too! What do you do? How do you heal yourself?!

If the leaky gut isnt healing there's probably something still causing damage to it. Lots of things can keep the lining inflamed and prevent healing. Candida, parasites, food intolerances, some medications, alcohol, sugar, caffiene...a whole bunch of things can keep a leaky gut "leaky". If you have some undiagnosed illness like what I had...The Lyme weakened my immune sytem...Dr.s gave me antibiotics for various reasons and each time I got worse...probably because the antibiotics were allowing candida to overgrow and my immune system wasnt strong enough to fight all this stuff. It just turns into a cascade of events. Candida causes leaky gut and food intolerances. The more things the immune system is dealing with the more burdened it becomes and the situation just keeps getting worse.

I've read all kinds of stuff about taking this or that supplement to heal a leaky gut but I just dont think its all that easy. I think you have to get to the bottom of whats really causing it to begin with and you need to treat that problem in order for the body to start healing itself. If you're body is still fighting Lyme...then your immune system would be under some heavy strain and with that....other problems can develop.

[diamondheart]

If the leaky gut isnt healing there's probably something still causing damage to it. Lots of things can keep the lining inflamed and prevent healing. Candida, parasites, food intolerances, some medications, alcohol, sugar, caffiene...a whole bunch of things can keep a leaky gut "leaky".

Well said Rachel! Don't forget ibuprofen too. I took a lot of ibuprofen after my surgery in April, and I think it was damaging my intestines. Ibuprofen does irritate the small intestines.

I'm doing a lot better, by the way, after testing for additional food intolerances (IgG) and finding the bacterial dysbiosis. I asked for a lot of these tests. I'm hopeful that my gut will heal, but it takes time. I pretty much have to cook all my own food. Deb, look at the list of things I can't eat in my signature. It's pretty long and includes all those foods that are in everything. The silver lining is that I am eating way better than I ever have, and I have been forced to become a better cook!

Simply V, I read part of your blog, "Maybe it's stress...". One of my acupuncturists was trying to convince me that my intestinal problems were due to stress. I was so mad at her. I mean, you expect an alternative healer to be sympathetic, but they have their issues too!

Claire

[Budew]

I need to know how you all happened to get tested for Lyme's disease. Thanks something I've never considered.

I too have a growing number of intolerances and am down to a few precious foods. The list gets smaller every couple months.

I see a guy in integrative medicine. He says enzymes are necessary to help me heal. Have any of you tried this approach?

[Simply-V]

Simply V, I read part of your blog, "Maybe it's stress...". One of my acupuncturists was trying to convince me that my intestinal problems were due to stress. I was so mad at her. I mean, you expect an alternative healer to be sympathetic, but they have their issues too!

Claire

I've heard the "its stress" thing before too. But thats not my blog. Thats the blog of another writer on the No Corn blog.

[diamondheart]

I've heard the "its stress" thing before too. But thats not my blog. Thats the blog of another writer on the No Corn blog.

Oh, you're the other V ! I like how there are 3 writers on one blog!

Claire

[Simply-V]

Oh, you're the other V ! I like how there are 3 writers on one blog!

Claire

I like it too.. Gives more perspectives than just one. Its great especially since everyone's experiences with these things are always different.

[Pilgrim South]

I am an old hand at this, been gluten free now for 5 yrs July 06. My sister is a dietician and gluten free 5 yrs last March. She does wonderfully on a gluten free diet, all the gluten gone, she can eat almost anything she wants, minus glutens. I on the other hand have developed so many other intolerances--soy, corn, rice, nightshades, many veggies. I eat chicken breast, cod or flounder, tuna, green beans, peas, and carrots. I can still eat dairy, including yogurts, cheeses, ice cream and I drink coffee, tea, sometime orange juice. I am so at a loss for what to do next. After 5 years, I am so depressed about all the foods I can't have. When I went gluten free, I felt so much better and I didn't miss gluten, I still do not miss gluten foods, but I do miss gluten-free breads, cookies, tinyada products--all those things that make our lives easier. I have neuropathy, full body, small fiber in my legs, feet, and torso..my arms, shoulders, and neck are more involved--my neck and shoulders causing daily headaches. I do not take medications as of yet, I'm afraid of illness from the meds. Am I missing something??????

Dr. Peter Green's nutritionist, Anne Lee told me there is no way for the doctors to know who actually will heal inside and who may not, she says I may gain back some of the foods after being free of them for over 6 months--seems no one knows for sure and I understand that logic. If I eat something questionable for me, I will react with tummy aches for well over a week--I can't afford to be sick, me being my only income.

Does anyone else here deal with this too and can you give me thoughts, sites to check out--anything?

Thank you, Deb

Hi Deb,

I am spending the afternoon ready through some of the posts and what a shock to find so many others like me that can only eat a few things, even though we are gluten free! If anyone finds a solution, I sure would be interested in hearing it! I weigh about 90 lbs and that's after working very hard for a year to gain several pounds back. I can't eat any sugars, including honey and fruits, corn pot, tom, rice, beans, nuts, dairy, eggs, etc. and etc. Its easier to tell you what I can eat...red meat (organic) and "some" vegetables. So, my breakfast, lunch and supper are just about always the same..salad/meat. I am taking very good digestive enzymes and they have just increased my program to see if my gut just needs to heal more. I have been gluten free for 6 years, but just discovered I have been regularly getting into gluten. Even a tiny amount wrecks our bodies, and I am finding that out the hard way.

People have suggested I rotate my foods, but there aren't enough to rotate! Would love some suggestions! Thanks Pilgrim

[Simply-V]

I weigh about 90 lbs and that's after working very hard for a year to gain several pounds back. I can't eat any sugars, including honey and fruits, corn pot, tom, rice, beans, nuts, dairy, eggs, etc. and etc. Its easier to tell you what I can eat...red meat (organic) and "some" vegetables.

Sorry to hear you're having such issues.

Have you been tested for IgE food allergies? Namely, corn, wheat, rice, grains etc. (cane sugar is a close relative of all these btw), beans/legumes, nightshades?

From what you've listed as foods you can and cannot eat... it sounds a lot like my lists of foods. Though most of mine is due to avoiding corn.

Corn is everywhere. Organic red meats most likely do not have corn additives (citric acid wash) to increase shelf life like most others as many corn allergic individuals seem be to ok with organic beef. You may want to check eatwild.com to see if you can find a good supplier near you.

Honeys are usually contaminated with corn pollens or corn syrup. Fruits have cornbased waxes. Tomatoes are often canned with cornbased citric acid or fresh are waxed with cornbased wax. Veggies are sprayed with citric acid to clean them and retain color. Ditto for beans. Nuts are often sprayed with an edible film (corn) to keep them from molding or going rancid. Dairy is massively contaminated with corn.

So I know the pain of not being able to eat. Despite a corn allergy.. I am also allergic to milk, eggs, and beans.

Maybe we should start our own restaurant? The 3 Ingredient Gourmet.

[Budew]

I am in the same boat. Only a few foods left.

Yesterday someone posted Open Original Shared Link. Only 5 foods contain gluten.

I made a spread sheet listed each limiting reason.

It was uplifting. There are several things I've never tried and intend too.

I also am dealing with the pain issue. I take hydrocodone daily. It doesn't do anything but take the edge off. Other pain meds had too much tylenol to agree with me. I am going to try Amitritlone for the migranes this month. I hope it works. Hydro does not touch that pain. I've even had a couple emergency room visits over the pain issue. I have no formal diagnosis, how did you get diagnosed?

I weigh 110 lbs and fight to keep it there. I flirted with 80 lbs for several years. It's tough.

Hang in there!

[happygirl]

One of the things that is highly suspected in me because of my numerous food reactions is eosinophilic disorders. They can affect children and adults, affect your esophagus, your stomach, your intestines, and/or your colon. It can be mediated through food allergies/intolerances (they are learning more about allergies and intolerances being involved) and/or environmental allergens. Some people have only one food issue, some have multiple, and some can only get nutrition through a tube...it is all very variable.

Here are some great links---Open Original Shared Link and www.apfed.org

Because I have been on such a limited diet, I am going back to eating all the bad foods (except for gluten) before my endo/colonoscopy so that they can check for Eos. But, I don't know if I can test positive since I've been modified for so long....treatments include diet modification/elimination, certain meds/steroids, and elemental formulas (for those who need it). One of the articles I read said that anyone with multiple food issues should consider eos. I don't know if I have it, obviously, but just wanted to share what I have learned. PM me if anyone would like more info.