Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy On Wednesday

wonkabar

Recommended Posts

wonkabar Contributor
wonkabar
Posted

I'm scheduled for my biopsy Wednesday morning. I'm not sure why, but I'm actually a little nervous. Maybe it's because I've had time to think about it.

I'm also starting to go through my cabinets to rid my house of whatever gluten is left in it! :P Even if the biopsy comes back negative, we're going to make the entire house gluten free. My son is gluten free and subsequently so is my daughter. It's just going to be a lot easier (and healthier) if there isn't any gluten in the house. Now I'm really curious to see how I feel *and* if I loose weight once I stop eating gluten. The only time I've been able to loose weight and keep it off is when I've been on WW...I ate very limited carbs and they were usually in the form of a potato or rice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BostonCeliac Apprentice
BostonCeliac
Posted

Hey Wonka --

Don't be nervous! It's not bad.. I just had mine recently and it was really a piece of cake (gluten free cake that is!). I was really out of it for most of the day due to the anesthesia, I think they gave me alot. But I don't remember any of it, and I had a slightly sore throat afterwards which felt better with some tea & honey. No sweat!

Also, in my case, when I started the diet I quickly began loosing weight, even though I was eating alot (as normal) but now it seems to have leveled out... I guess I've been gluten-free about 2 months or so... Good luck!!

jerseyangel Proficient
jerseyangel
Posted

Hi Kristy,

I was completely out for mine--I remember nothing from shortly after they put in the IV until I woke up in recovery. I didn't even have a sore throat after.

Really, it's nothing to worry about, and it's over pretty quickly. Good luck on Wednesday :)

dlp252 Apprentice
dlp252
Posted

Yep, I've had THREE endoscopes since April! Really, it's not bad at all. I don't remember anything after they administered the sedatives until I woke up in the recovery area. The worst part was the pin prick for the IV and even that wasn't too bad. I was fairly groggy for a while afterwards on the first scope, maybe because they also did a colonoscopy at the same time, but the second and third scope I came out pretty quickly. By the time my mom dropped me off at home I was completely coherent, lol. After each scope I had a VERY SLIGHT sore throat...hardly noticable really, which went away by the next day.

Oh, and about losing weight...that depends I think. I didn't need to lose or gain, but I gained 10 pounds, but in my case it was because I went CRAZY on gluten-free foods like cookies, brownies, cakes, etc. I hardly ever ate that stuff before, but something clicked in my head and I ate them like a fiend, lol. So be careful of the junk food, lol. :P

DingoGirl Enthusiast
DingoGirl
Posted

You'll do fine, it's a nice nap :) , I, too did not have a sore throat at all afterwards, couldn't feel a thing.

wonkabar Contributor
wonkabar
Posted
  • Author

Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

Canadian Karen Community Regular
Canadian Karen
Posted

The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted
Thanks! I'm sure it'll be over before I know it. If my throat hurts it'll give me a reason to eat icecream...gluten-free of course! :P

See, there ya go, lol!

wonkabar Contributor
wonkabar
Posted
  • Author
The closest I have gotten to heaven is the five seconds between them administering the sedative and when you go out like a light! Aaaahhhhh, that feeling...... :rolleyes: I would go through another endoscopy just to get that feeling again! LOL! :lol:

You will do just fine. It's no sweat, really........

Hugs!

Karen

That's an absolute riot!!! :lol: It's probably the most peace and quiet I'll get all day...my kids are 3 1/2 and 21 months. It's amazing what one does for a little bit of solitude, isn't it??!! :lol:

wonkabar Contributor
wonkabar
Posted
  • Author

So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

dlp252 Apprentice
dlp252
Posted
So it's 210am, and I'm wide awake! :blink: I slept sound for four hours and here I am!! I, of course, am dying of thirst b/c I know I can't have anything to drink. My stomach is also churning which is probably the result of the Applebee's dinner I ate........I was going with the whole "last meal hoorah" angle. Applebee's is always good at the moment but makes me feel like s@%$ in the end. I can't wait for the bipsy to be done; I'm really nervous about it which is so out of character for me. My husband is even surprised by how "twitchy" I am over it.

This is absolutely the worst part...I hate being hungry, lol. I think I did the same thing on my first scope...didn't sleep at all, but don't worry, they'll give you some nice drugs soon. :lol: I actually took a Cliff Nectar bar with me and on the ride home wolfed that sucker down, lol. :ph34r:

wonkabar Contributor
wonkabar
Posted
  • Author

So, I was sent off to a very nice place this morning, however I have no recollection of where it was! :) Right now I feel like I have a hang-over but missed the party!! :lol: (bummer!) I slept in recovery for two hours, during the ride home and for another 3 when I got home...and I'm still groggy. No wonder it's a controlled substance. :P

The doctor told my husband that there was no visible damage but that he took biopsies--I think 6. I have a f/u appointment in four weeks. In the mean time, our house will be gluten free as of tomorrow and we'll take it from there. If the biopsy is negative, there really isn't anything else to do but remove gluten from my diet to see how I feel.

Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

dlp252 Apprentice
dlp252
Posted
Forgive my grogginess, but what are the names of some good books that you all have read as adults dealing with gluten issues? I know I've read some titles on here in the past. I just don't have the mental energy (or ability) to do that kind of a search right now! Thanks!

Dangerous Grains was a good one. Hum, what others did I read...the brain fog hasn't completely left me yet, lol.

One of my doctors just recommded "Going Against the Grain", but I haven't read it to comment.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748
    Nick H.
    Newest Member
    Nick H.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...