Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Glutening Intensity And Recovery Time Decrease W/ Healing?


eleep

Recommended Posts

eleep Enthusiast

My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



codetalker Contributor

I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

Susan M-G Rookie
My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.

ianm Apprentice

I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.

Lisa Mentor
I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.

I have had similar reactions. And I also will agree that it varies widely.

tarnalberry Community Regular

I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.

kbtoyssni Contributor

I've been gluten-free for 14 months and I think my glutenings are less severe now. I still get all my old symptoms back but I'm still able to function and live my life. The symptoms can drag on for two weeks, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.

Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.

tarnalberry Community Regular
Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.

:huh: *scrolls down* :lol: hehehe... I just hit reply after reading the OP, and didn't see your post until now. (I was multitasking the last time I replied... who knows how many boo-boos I made... :rolleyes: ) I can totally see describing it either way. :)

Kody Rookie
I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

I'm going way off-topic, but how much did that change your life? being gluten-free for 10 years? do you feel perfectly normal now? how long did it take? etc? I realize everyone is different, just trying to get an idea. Any info would be great! :)

darlindeb25 Collaborator

I think it is very hard to judge how severe an attack is only because most of us were so consistently ill before going gluten free that we never really had a time when we felt normal in comparison to other people. I think that once you go gluten-free and are gluten-free for years, then the reaction seems much more violent, only because we aren't used to having the reaction anymore. For now, my other intolerances keep me feeling so worn out and ackey, that I may not feel a gluten attack as violent. It is very, very rare now that I get diarrhea and when I do, it is usually from an accidental glutening. It's weird, as much as my intolerances are bothering me and as run down as I feel, I rarely ever pick up any bugs from other people. Knock on wood!!!!!!!

And Koty--I have been gluten free for 5 years. I remember that within a very short time after going gluten-free, I noticed a big difference in how I felt. Yet I was very ill then, so any improvement would have been heavenly. I was up almost every night with diarrhea, falling asleep on the toilet at times. After a few weeks gluten-free and being able to sleep through the night for days on end, was heaven. For me, going gluten free was a Godsend for 2 yrs or so. Then my soy intolerance cropped up, then in a few months, the corn jumped in the mix, a yr later rice joined them and then the nightshades. Somedays I feel like I am back at step 1 again, yet I know with these intolerances, I am not near as ill as I was with gluten. I do often wonder why I must go to the extreme with everything. My sister was so ill with celiacs and she has been gluten-free for 5 yrs also and has no other intolerances.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.