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Somewhat New Celiac

*~jOaNnA~*

By *~jOaNnA~*
in Coping with Celiac Disease

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*~jOaNnA~* Newbie
*~jOaNnA~*
Posted

Well hello yall, my name is Joanna, I'm 19 and I was just recently diagnosed with celiac disease in May 2006. During my senior year of high school I missed 28 days due to everything that comes along with celiac disease. At the time my family thought it was just a bug, then the last week of my senior year, I woke up with an unbearable pain on my left side. We went to the emergency room, they gave me morphine and everything, it was bad!!! They did x-rays, thinkin' it was kidney stones, then the Dr. thought it was, gall stones, then they they thought I had IBS (irritable bowl syndrome), then they thought this and thought that, finally I got into GI doctor and he said hey lets do this...so I was scheduled for a colonoscopy and an endoscopy a week after my high school graduation. They found out that I have celiac disease, it was the most dreadful thing to hear, b/c EVERYHING has wheat in it, but I was so happy to finally find out what was giving me such a fit and making me lose so much weigh! I use to go to the bathroom EVERYDAY at school, w/ watery D, I actually had went on myself several times b/c I had such a long way to walk to the bathroom and then tryin' to get the teacher to even let me leave class. My senior year was ruined, but...all i can do is look towards the future. In the beginning I use to dread going out with friends for dinner or to concerts or just to hang out in fear that it would hit me. I felt and still feel like whenever i'm nervous or stressed about something it hits me. Now I'm in my 1st year of college and I'm still dealing with it but I can't let it stop me in my tracks, i've got things I see myself doing in the future, and sittin' on my butt at home because I'm afraid "it" might hit me ain't it. I absolutely dread my public speaking class...I will be a CRAPPY MESS....haha...but I finally realized that their are more people with our problem than let on...so I do what I've got to do and give everything my best...ALWAYS...ALWAYS...ALWAYS REMEMBER: God doesn't give you more than you can handle!!

Oh yeah, i'm in college for nursing. So whenever I make it big i'm gonna let everyone know about celiac disease and then maybe people won't be so yucky about it!!

I LOVE YOU CELIACS!!!!!

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Guest nini
Guest nini
Posted

Welcome! I love your attitude! Keep it up girl and yay on going to school for nursing and being able to educate more people about Celiac!

Jestgar Rising Star
Jestgar
Posted

Yea!! Kick some butt Joanna!!

jaten Enthusiast
jaten
Posted

Go, Girl!!!

That's the attitude. AND, you'll find that as your intestine heals more and more, you'll even be able to eat in public places (your own food), and be perfectly fine. In December I will have been gluten free for a year...and all is right with my world ;)

Canadian Karen Community Regular
Canadian Karen
Posted

Hi and Welcome!

I'm glad you got your answers without having to go years and years searching because the medical community is woefully uneducated about this disease! You lucked out with that GI!

You go and kick some butt in the nursing field! Every single person spreading the news about this disease helps!!!!

Hugs.

Karen

kbtoyssni Contributor
kbtoyssni
Posted

Welcome! We need more people like you in medical community!

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      Unexpected gluten exposure risk from cultivated mushrooms

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    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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