Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Thursday


jo14

Recommended Posts

jo14 Newbie

Hi

Im new here, and my 4 year old son has to have a biopsy on Thursday, (im from the UK so I dont know if its done different in the US) but he has to have a general anasthetic, he has had a lot of blood tests and they showed very low imunoglobulin A and he is very anemic. he has had problems since being a few months old, but no one ever took us seriouly, he has a lot of tummy pain, loose stools and when he was younger vomiting (although he does not vomit much now) he is very small in the 5th% but was 9lbs 5oz when he was born!! Plus lots of other symptoms such as mouth ulcers and burning tongue, itchy skin rashes on the backs of his legs and tirdeness

I know I have to have the test to confirm or rule this out, but I am dreading taking him for it, he will go home the same day, and as long as he does not catch a cold or cough before thursday we have to be at the childrens hospital for 8am. I know some of you here will have children that have had this done, I just feel so bad :( :(

JoanneXX


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Daura Damm



Celiac.com Sponsor (A8-M):
HomeFree Treats


nikki-uk Enthusiast

Hi Joanne and welcome!!

I'm in the UK too and my son was diagnosed with celiac disease by biopsy a couple of weeks ago (my hubby is also a coeliac)

I really was very anxious about the whole process (especially as my son has a heart condition)

In fact,- I found the hospital to be excellent at allaying my fears. They were very professional and took great care of him.

In fact they are only under the anaesthetic for about 20 mins (the rest of the time is recovery)

My son came back bright and breezy and starving hungry, none the worse for the experience!! :D (I think it was harder on me than him!)

As a Mum I'm not going to tell you not to worry ('cos you'll do that anyway!) but it really wasn't as bad as I thought it would be. :)

Fingers crossed for you and your little guy - let us know how it goes.

(BTW, what hospital is he under?)

All the best :)

emja73 Newbie

My dd is having her biopsy tomorrow... I"m also a nervous wreck :( she's 3 and basically asymptomatic, other than constipation... ugh... can we just fast forward to friday?

nikki-uk Enthusiast
  emja73 said:
My dd is having her biopsy tomorrow... I"m also a nervous wreck :( she's 3 and basically asymptomatic, other than constipation... ugh... can we just fast forward to friday?

...I know what you mean!!. I just wanted the whole thing to be over with!

I'm sure it'll be fine though

Good luck!! :)

jo14 Newbie

Hi

we will be going to booth hall childrens hospital in Manchester, I am a nervous wreck and have been sat at my desk most of the afternoon (since I got the phone call) trying my hardest not to cry LOL LOL in front of everyone

nikki-uk Enthusiast
  jo14 said:
Hi

we will be going to booth hall childrens hospital in Manchester, I am a nervous wreck and have been sat at my desk most of the afternoon (since I got the phone call) trying my hardest not to cry LOL LOL in front of everyone

Awww - sweetheart!! I have PM'd you (personal message,click on New Messages in top right hand corner)

jo14 Newbie

Hi Nikki

It says Ihave no new messages at the minute, i will keep checking back incase it takes a few minutes to come through

thanks

JoanneX


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Authentic Foods



Celiac.com Sponsor (A8-M):
Lakefront Brewery


Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,801
    • Most Online (within 30 mins)
      7,748

    johnyrad23
    Newest Member
    johnyrad23
    Joined

  • Celiac.com Sponsor (A20):
    Tierra Farm


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be...
    • Izelle
      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having...
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
×
×
  • Create New...