Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For Your Kids React To Gluten?

kimber

Recommended Posts

kimber Enthusiast
kimber
Posted

Hi everyone

I'm not sure Zach is celiac but believe he is gluten intolerant

I can't think of anything new he had but today he woke lethargic, cranky, DARK eyes and I am just wondering, what is the norm as far as your child eating something, then having a reaction

Thanks for any insight

Kim

Zach and Ava's mom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grapegrace Newbie
grapegrace
Posted

my son was diagnosed as "gluten sensitive" in sept and we stared the gluten free diet right away. If he eats something he isnt supposed to at daycare, i can usually tell by the middle of the night, he wakes himself (and me) up screaming b/c his stomach hurts. He is much less energetic and very clingy the next day (im assuming its b/c he doesnt feel good) and as we all know 2 year olds are some of the most energetic creatures on the planet. I do not have celiac disease or a gluten sensitivity so i don know what it feels like to "get glutened" but several people have told me that it feels like having the flu and a hangover all at the same time.

brandonsmom Newbie
brandonsmom
Posted

My son (7) will show symptoms anywhere from a couple hours, to a day. It really depends on the amount of gluten he has consumed. He was diagnosed almost 2 years ago...and a few months ago he decided to try a couple bites of a donut at a function he went to for school (we had provided him with an alternative, but I guess the donut was just too tempting!) A couple hours later after the function he became very pale, clingy, stomach pain, diarrhea, then began to vomit. He will also have a low grade fever (99.5-100.2) when he has been glutened. He was sick for weeks...not vomiting sick, but tired, cranky, pale, weird aches and pain, and stomach aches. I think it is kind of individual for each person.

jayhawkmom Enthusiast
jayhawkmom
Posted

My daughter gets "the big D" and horrible tummy troubles within a few hours, from what I've noticed thus far. I'm doing my BEST to keep her as gluten free as I humanly possibly can. I made a huge error in judgment a few weeks ago at a restaurant that I assumed would be safe, since it has a gluten-free menu. Only... the mistake was due to an error on MY part, not the restaurant. By the time we arrived home... it had started. That's how I found out about MY error. And, it cost my poor little girl dearly. =(

kimber Enthusiast
kimber
Posted
  • Author

Thanks everyone

IF u check back in...how long does this behavior usually last

I'm thinking back and zach may have had something questionable late Saturday night...he started acting yuckey late yesterday but it really hit today

I know yesterday he didn't have anything new/different

Thanks, Kim

My daughter gets "the big D" and horrible tummy troubles within a few hours, from what I've noticed thus far. I'm doing my BEST to keep her as gluten free as I humanly possibly can. I made a huge error in judgment a few weeks ago at a restaurant that I assumed would be safe, since it has a gluten-free menu. Only... the mistake was due to an error on MY part, not the restaurant. By the time we arrived home... it had started. That's how I found out about MY error. And, it cost my poor little girl dearly. =(
vampella Contributor
vampella
Posted

My DD hasn't been "medically" Dx'ed she was Dx'ed with diet, it's been a month now.

We saw HUGE improvments right away after changing her to gluten-free.

She got I guess trace amounts of gluten or got something at the halloween party other than what I sent (the teacher said well I can't watch her 100% :(, then get more people or let me be there. which is what will happen from now on ) that night she was cranky, wouldn't eat and had the big D.

char

mom-to-claire Apprentice
mom-to-claire
Posted

my daughter doesn't have a dx yet either but I know she is gluten intolerant/sensitive for sure. She is only 10 months old so can't tell me how she feels but within about 2 hours she vomits and continues to vomit for about 1/2 - 1 hour and then becomes very lethargic and clingy. It only lasts a couple hours.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tori's Dad Apprentice
Tori's Dad
Posted

That depends really....if he has been eating gluten all along he will likely have less drastic "reaction" to gluten but his overall health will be poor.

For example, my daughter was very sick in terms of lack of energy, failure to grow, etc. but she never threw up prior to diagnosis, she just felt lousey all the time. Since diagnosis and going gluten free for months she is doing fantastic in overall health but when she does accidentally get glutened she has a violent reaction and is throwing up within 20 minutes.

zachsmom Enthusiast
zachsmom
Posted
My son (7) will show symptoms anywhere from a couple hours, to a day. It really depends on the amount of gluten he has consumed. He was diagnosed almost 2 years ago...and a few months ago he decided to try a couple bites of a donut at a function he went to for school (we had provided him with an alternative, but I guess the donut was just too tempting!) A couple hours later after the function he became very pale, clingy, stomach pain, diarrhea, then began to vomit. He will also have a low grade fever (99.5-100.2) when he has been glutened. He was sick for weeks...not vomiting sick, but tired, cranky, pale, weird aches and pain, and stomach aches. I think it is kind of individual for each person.

See my son ran a low grade fever also when he ate gluten and he was just under a year old.... the doctors swore that running a fever was impossible... My heart told me that this was something at the time .. I just had no idea what. But I fought and fought with my doctor and finally left. BUt my baby turns pale and just looks weird .. then vomits.

my daughter doesn't have a dx yet either but I know she is gluten intolerant/sensitive for sure. She is only 10 months old so can't tell me how she feels but within about 2 hours she vomits and continues to vomit for about 1/2 - 1 hour and then becomes very lethargic and clingy. It only lasts a couple hours.

see I feel like crying .. this sounds like my son. he is a year old. the vomiting is exactly 2 to 2 1/2 hours lasts a couple of hours and then is okay but run down. By expirment .. feed her yo baby yougurt. 2 cups inthe morning.. this has actually helped to slow and make the severity less .. I feel so alone and so scared by this disease. I literally only have this web site for information . the doctors are not telling me anything .. Just stay away from Gluten... ????? I understand .. but feel so lost by this . I know what your going through.

My DD hasn't been "medically" Dx'ed she was Dx'ed with diet, it's been a month now.

We saw HUGE improvments right away after changing her to gluten-free.

She got I guess trace amounts of gluten or got something at the halloween party other than what I sent (the teacher said well I can't watch her 100% :(, then get more people or let me be there. which is what will happen from now on ) that night she was cranky, wouldn't eat and had the big D.

char

Okay about what the teacher said,.,, that really makes me mad because what if she had an analphlatic shock reaction... would she still say that. some one said in her someplace.. that celiac disease can also be considered a disability.... not being able to eat the lunch room foods. ... and needing choices... didnt you say you were going to talk to the teacher... I would be kinda mad. what if this was her. ?? Just a comment .

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,550
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.