Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Endoscopy

shoefly21

Recommended Posts

shoefly21 Rookie
shoefly21
Posted

Hi! I'm new here,

A bit of history.... I've been diagnosed with IBS-A, Sjogren's, Interstitial Cystitis, Raynaud's and Rosacea. I've controlled the IBS with complete dairy elimination and fiber. In June I started having trouble swallowing, so I went to my PCP who prescribed Zantac 300mg twice a day. This helps about 80% (Prilosec did absolutely nothing). I don't have any of the classic heartburn symptoms of chest pain. I do burp up acid. My bowel movements are normal. I do get very gassy, bloated and nauseous.

My blood tests for celiac (gliadin IgG, IgA, Ttg) were negative in 2004. My anti-reticulum antibodies were through the roof. Stool testing by Enterolab in 2005 was negative. My genotype is HLA-DQ1, subtype 6,6.

I had an endoscopy on Monday which was a nightmare. I don't do well with anesthetics (dizziness and sleepiness), so my doctor used a very light dose. I also have a horrible gag reflex. So the consequence was that I was mostly awake for the entire procedure, gagging for the entire procedure. I know that my doctor did the best he could under the circumstances, but it was rotten.

Anyway, he didn't see any evidence of any acid reflux, strictures, hiatial hernia, or ulcers. He said to stay on the 300mg Zantac twice a day because it is likely to be working. I might taper off it eventually. The one thing he did see was that my small intestinal lining was "thin." He said he did biopsies for celiac but I don't know how many. He said he's seen this in other patients and it is normal. He said he doubts it is celiac. I am to call on friday for the biopsy results.

Has anyone else heard of this "thinness?" I go back to see him on the December 12th and I'll ask him what he means by this. I will definately get copies of my reports.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748
    Larry W
    Newest Member
    Larry W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.