Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get Tested


pinktulip

Recommended Posts

pinktulip Apprentice

My dad was recently diagnosed, and I have a check up tomorrow with my gastro doctor to check up on my reflux. SHould I mention it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

YES! Absolutely. It's genetic, so it's very reasonable to ask to be tested - even if you weren't having any symptoms.

Welcome to the forum!

aikiducky Apprentice

Reflux could be a symptom of celiac, so I'd definitely mention it.

Pauliina

par18 Apprentice

I take it you mean your father was diagnosed with Celiac? If so I think it would be ok to mention it to your doctor but if it were me I would just try the diet to see if it improves your reflux. I had reflux along with other symptoms and it disappeared along with the other symptoms. Unless it is for piece of mind an official diagnosis would only cost you money in terms of testing and insurance rates rising. Even if you have coverage it could increase with a positive diagnosis. I'm not sure sure all doctors or labs will view it this way. The advantage of this being genetic is that if a family member is diagnosed then other members can respond with the treatment option first if they develop Celiac type symptoms. Also if you try the diet and respond in a positve way you are doing a valuable service to your body and it will show it's appreciation! Good luck.

Tom

Guhlia Rising Star

1/20 first degree relatives of Celiacs also have Celiac. Acid reflux can definitely be a symptom and I believe it's one of the more common symptoms. Get tested, it could save you from a lot of hassles down the road.

pinktulip Apprentice

I mentioned it and she said the only symptom is reflux. However this was just a gp. My mom thinks I should go back to my gastro. (with the relux under control with meds, I only go when needed, about once a year, and don't have to go until next Aug.) Until then my dad wants me to follow the diet his doctor told him to see if it clears up.

Would painful stomach cramping be a symptom? My dad had blood and direheaa, but I get really painful bowel movements.

par18 Apprentice
I mentioned it and she said the only symptom is reflux. However this was just a gp. My mom thinks I should go back to my gastro. (with the relux under control with meds, I only go when needed, about once a year, and don't have to go until next Aug.) Until then my dad wants me to follow the diet his doctor told him to see if it clears up.

Would painful stomach cramping be a symptom? My dad had blood and direheaa, but I get really painful bowel movements.

Cramping is a symptom. When you say you mentioned it to her do you mean Celiac? What do you mean when you say "she said the only symptom is reflux"? Is she talking about you or the symptom reflux as pertains to Celiac. I'm sort of confused. That said I still agree with your father. Try the diet to see if it helps. If it does then maybe bowel movements will improve also.

Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pinktulip Apprentice
Cramping is a symptom. When you say you mentioned it to her do you mean Celiac? What do you mean when you say "she said the only symptom is reflux"? Is she talking about you or the symptom reflux as pertains to Celiac. I'm sort of confused. That said I still agree with your father. Try the diet to see if it helps. If it does then maybe bowel movements will improve also.

Tom

She said since the only symptom I have is reflux, but my mom and dad have decided to have the done on me. Dad told me to enjoy one last week eating what I want. He really this this answers a lot a problems that may have been misdiagnosed.

Can they tell with just the bloodtest or do I have to have other test?

par18 Apprentice
She said since the only symptom I have is reflux, but my mom and dad have decided to have the done on me. Dad told me to enjoy one last week eating what I want. He really this this answers a lot a problems that may have been misdiagnosed.

Can they tell with just the bloodtest or do I have to have other test?

I don't know quite how to answer a question like that. Yes they "can" tell with specific results. Whether or not you get those results is something else. If you do test positive or negative then of course you could get more tests, and more tests and more tests. Believe me if you have the money and the the time they have all the tests you want. Or like I said before and your father indicated you can just try the diet "first". The diet is a "test " in itself and a very good one. Why did your dad say to enjoy one last week of eating what you want. Does this mean in a week you will be on the diet one way or the other?

Tom

pinktulip Apprentice

No, I have a blood test today and he's pretty sure the results are going to come back positive.

aikiducky Apprentice

After you get the blood test results, I would try the diet for a while in any case, even if the tests are negative. Except if the doctor also wants to do a biopsy, in which case I'd try gluten free immediately after the biopsy!

And even if you decide to keep on eating gluteny foods, I would periodically do the blood test again (like every five years or so) because with a close relative with celiac, you do have a risk of developing it later in life.

The blood tests will only start showing positive once you have quite a lot of damage in your intestines, so it's possible to be negative now and positive sometime later in life.

Pauliina

pinktulip Apprentice
I don't know quite how to answer a question like that. Yes they "can" tell with specific results. Whether or not you get those results is something else. If you do test positive or negative then of course you could get more tests, and more tests and more tests. Believe me if you have the money and the the time they have all the tests you want. Or like I said before and your father indicated you can just try the diet "first". The diet is a "test " in itself and a very good one. Why did your dad say to enjoy one last week of eating what you want. Does this mean in a week you will be on the diet one way or the other?

Tom

He does alot of the cooking.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.