Has Anyone Ever Experienced The Same Symptoms?

[Charlie]

Hello! I am new to the forum, although I have been reading information for a week or so and it has been helpful. I went yesterday for the blood test so I won't know for another week. Is it possible to be intolerant to wheat and have a negative result?

My symptoms are a little strange: low back pain, abdominal pain on right side, sore lymph nodes, the soles of my feet and the palms of my hands hurt a lot, I can get very irritable and also depressed at times, insomnia, my bowel movements tend to be looser but I would not call it diarrea sometimes i get constipated. My abdominal pain increases though an hour or so before a bowel movement. My symptoms got quite bad just after thanksgiving ( I am Canadian ). I wonder if it was the stuffing and then we had hot turkey sandwiches with left over stuffing and this fall when it all started I started to eat Shredded wheat with wheat bran cereals. We also eat whole wheat pasta a couple times a week. Today is my first day to go completely gluten free as I was waiting for the test.

Let me know if you have experienced the sore lymph nodes, sore feet/hands as I have not found anything else about it. I also seem to get pain in my legs that seems to come from the bones. I had a Ct scan 2 weeks ago that did not show anything abnormal except for a small cyst on my right ovary. I have not had my periods since early September and before that it was April and my FSH and LSh levels were very high showing I am now menopausal. My mom had rheumatoid arthritis, my Dad has passed away but he always had trouble with digestion.

Sorry this is so long,

thank you all,

charlie

[Guest nini]

those symptoms "could be" indicitive of either gluten intolerance or Celiac, if you are planning on having a biopsy done too you need to continue to eat gluten until all testing is complete. The biopsy and the blood tests however CAN miss a lot of gluten intolerant cases, so therefore regardless of the results of your testing you should give the diet a good effort try for at least 3-6 months. Yes you can be intolerant or allergic to wheat and still be negative for Celiac, so the best indicator is how does your body respond to the diet. All of that being said, it's your decision if you want to go through with the testing or if you want to just try the diet and see if your symptoms go away.

if it's something else, going gluten-free won't affect it in any negative way so if you don't see some improvement of symptoms after say six months, then you can still pursue other testing for other causes of your symptoms. but if the diet helps you, you have your answer.

have you been checked for gall bladder disease? the abdominal pain on your right side "could be" indicitive of gall bladder problems, but even if you do have gall bladder disease, that doesn't rule out gluten intolerance.

[CarlaB]

If your symptoms resolve going gluten-free, then you can assume the gluten was causing all those problems. Some of us have real gluten intolerance, but our symptoms don't completely resolve because of another problem. So, as Nini said, you could have another issue you need to address.

[mandyann]

I'm finding that I tend to have reactions to chocolate and when this happens I get very bad muscle aches, pain in the bottoms of my feet and swollen lymph glands (according to my doctor). I've been off chocolate now for 2 weeks and haven't had one of those episodes. I've also been off the gluten for 8 weeks now. It's a process of elimination for now and my doctor has run all of the appropriate blood tests to rule out other problems. Good Luck!

[rev]

I have recently been diagnosed as well about 4 weeks ago , recently had a rash appear on my face which the doctor has taken a biopsy and result shoul be here by thursday of this week . I have complained about the soles of my feet being extremely painfull as well . He tells me is all relately to the celiac disease. I have been keeping to the diet , but now have this rash all over my face and chest . Does anyone have the same sysmptons .

[tom]

Let me know if you have experienced the sore lymph nodes, sore feet/hands as I have not found anything else about it. I also seem to get pain in my legs that seems to come from the bones.

Yup yup yup, I think celiac disease CAN cause all of that - and I had most of what you list, Chuck (hehe sorry Charlie but I was thinking you were a guy until that one telltale symptom)

I don't remember whether my years of bone pain began in the legs, but it certainly went away w/ the gluten-free diet.

[horsesjapan]

I have read about kids whose "growing pains" never recurred after going gluten free. So I would say celica/gluten intolerance CAN cause bone pain. I'm almost convinced it can cause just about anything! If certain things don't resolve on a totally gluten free diet, then I'd pursue some other avenues for those symptoms.

Nancy

[RiceGuy]

I'm just one of many who has found magnesium and a sublingual methylcobalamin (B12) supplement to be incredibly effective for muscle/joint/bone pain, nerve pain, tingling and/or aching hands and feet, and numerous other symptoms. It should be no surprise since most Celiacs (and most Americans in general) are deficient in these nutrients. Also vitamin D, calcium, a B-complex, and zinc are just some of the other supplements which are helpful to many on this board.

And of course, going gluten-free is probably the best way to begin feeling better, though there are often additional intolerances to ferret out.

[AJJ]

Hi there,

Something else to look into would be Sjogren's Syndrome which I think can cause some of the symptoms you mention. As I understand it can also coincide with Celiac disease and is linked with Rheumatoid Arthritis.

Good luck.