Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D


AmandaD

Recommended Posts

AmandaD Community Regular

Hi - Wondering if anyone else has had to do this. I had my one year celiac check up and my CBC and Thyroid tests were all great, etc...however my vitamin D is still low (I consume barely any calcium, besides being celiac). My doc put me on prescription vitamin D capsules once per week 50,000 IU for the next 6 months (then I have to keep getting my levels checked...)

Anyone else deal with this - I've tried being out in the sun, but live up north so it's hard in the winter.

Thank you.

A


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

No, but I have a son we adopted from Russia and he had rickets. It's important, so do what you can. I've read that even sitting in a sunny window is better than nothing. You need to let the sun hit as much of your body as you can, especially your chest. Whenever the weather is nice enough, I sit outside in a sheltered area so it feels warmer. Of course, it's getting too cold to do this now. In the summer I try to get out in a bathing suit at least 20 minutes per day without sunscreen in the morning or late afternoon. We've been made so paraniod about sun exposure being bad that we've overcompensated.

Rebecca47 Contributor

I just had test done for Vit D, 24 hr calcium and thyroid, should have results and I will let you know if she puts me on something. She wants to see how much I am absorbing ? Not sure. <_<

rebecca

AmandaD Community Regular

Thank you for your answers guys. If anyone else has any experience with this, please let me know!

Thanks!

A

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.