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Vitamin D

AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

Hi - Wondering if anyone else has had to do this. I had my one year celiac check up and my CBC and Thyroid tests were all great, etc...however my vitamin D is still low (I consume barely any calcium, besides being celiac). My doc put me on prescription vitamin D capsules once per week 50,000 IU for the next 6 months (then I have to keep getting my levels checked...)

Anyone else deal with this - I've tried being out in the sun, but live up north so it's hard in the winter.

Thank you.

A

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CarlaB Enthusiast
CarlaB
Posted

No, but I have a son we adopted from Russia and he had rickets. It's important, so do what you can. I've read that even sitting in a sunny window is better than nothing. You need to let the sun hit as much of your body as you can, especially your chest. Whenever the weather is nice enough, I sit outside in a sheltered area so it feels warmer. Of course, it's getting too cold to do this now. In the summer I try to get out in a bathing suit at least 20 minutes per day without sunscreen in the morning or late afternoon. We've been made so paraniod about sun exposure being bad that we've overcompensated.

Rebecca47 Contributor
Rebecca47
Posted

I just had test done for Vit D, 24 hr calcium and thyroid, should have results and I will let you know if she puts me on something. She wants to see how much I am absorbing ? Not sure. <_<

rebecca

AmandaD Community Regular
AmandaD
Posted
  • Author

Thank you for your answers guys. If anyone else has any experience with this, please let me know!

Thanks!

A

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
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      By Jane02 · Posted

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