Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab

linds

Recommended Posts

linds Apprentice
linds
Posted

ok so i was just wondering a few things about enterolab. which test should i do. I can't afford to do both the stool antibody test and the gene panel. if I have to choose one which one do you recommend i do? On their website, they said that the stool one would be the better of the two. Is this still true even after I have been gluten free for almost 2 months?

Also, if the test comes back positive I obviously have a problem with gluten but if it comes back negative does that mean that i don't have a problem? I would like to know this for both of the tests.

I guess I am just wondering because I really don't know if gluten is my problem or not. the million (well 7) different doctors that I have been to wouldn't do the blood test or anything for celiac so i just went gluten free but after 2 months and absolutely NO change I am starting to wonder. If its not gluten I would really like to start looking for what it really could be.

Help and advice PLEASE!!

Linds

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

After only two months gluten-free, the test would definitely be accurate. They told me it still would be after a year when I asked.

In your case, I would recommend just going for the antibody test, just to really know if gluten is a problem or not. If you can afford it, I'd try the casein one as well.

Have you tried going dairy and soy free? Those could pretty much give you the same symptoms as gluten, if you are intolerant to them.

Let us know what you find out, please!

linds Apprentice
linds
Posted
  • Author

I am hoping I can talk my mom into letting me do this test. i know she will do anything to make me feel better and I need it because i just keep getting more and more stressed out and that makes me feel even worse and it is causing major strain on my social life and also in my relationship with my boyfried. I cry myself to sleep everynight just wishing that i felt better or that i really truely knew what was wrong with me.

celiacgirls Apprentice
celiacgirls
Posted

I agree to just do the stool test. Almost everyone has at least the gluten intolerant genes according to them, so it wouldn't tell you much if you had the genes. The antibody test will tell you if you are reacting to it.

If you do just the gluten one first, you can add the casein test later without doing another sample. They save all of the samples for at least 6 months. :blink: You don't have to commit so much money to them now and then if you decide to do more testing, you don't have to pay the S & H fee.

CarlaB Enthusiast
CarlaB
Posted

What kind of symptoms are you having? I'm just wondering if it could be something else. I do have a problem with gluten, and it's quite obvious that I react to it, but I'm not better after a year, so I'm still looking for answers. I think we're finally close ... but for you it may be the same thing, if you felt better off gluten, but not completely better, then maybe gluten is a problem along with something else. If you told us your symptoms, then some of us with similar ones might be able to tell you about what we did.

The other thing is, if you have other food sensitivities, then they could be causing you to not get better if gluten is a problem for you.

linds Apprentice
linds
Posted
  • Author
What kind of symptoms are you having? I'm just wondering if it could be something else. I do have a problem with gluten, and it's quite obvious that I react to it, but I'm not better after a year, so I'm still looking for answers. I think we're finally close ... but for you it may be the same thing, if you felt better off gluten, but not completely better, then maybe gluten is a problem along with something else. If you told us your symptoms, then some of us with similar ones might be able to tell you about what we did.

The other thing is, if you have other food sensitivities, then they could be causing you to not get better if gluten is a problem for you.

I never had any stomach issues until about a year and a half ago. My family refers to me as having a stomach of steal (even when I get the flu I don't actually throw up). this is except for a short period of time in 6th grade when I had stomach aches (but nothing more) for a few months and then they just disappeared. Then about 1.5-2 years ago I noticed and upset stomach after eating greasy foods, always from a fast food restraunt, things like burgers, fries, and onion rings. I attributed that to the fact that since I had left for college in the fall of 2003 I hadn't ate any greasy foods at all. While at college i only ate salads, fruit, turkey sandwhiches, and pasta. this continued until august of 2005 when I had my first major episode as i refer to it. This was after eating a polish on the grill, once again greasey. I felt nausous and cramping and bloating. The worst part was, that i was at my boyfriends moms house which is literally in the middle of nowhere and had to walk 30 yards to the out house to go to the bathroom. They have no running water or electricity where they live. Then everything got better for a bit I tried prilosec otc and had what i thought was a miracle. I felt amazing and could even eat fast food again. Then november of 2003 it hit me like a ton of bricks and it didn't matter what i ate. I was cramping, bloated, burning in my stomach, and a gnawing pain right arround my belly button. It didn't matter whether I ate a salad or crackers or applesauce it never went away. A year later those symptoms are all still here. and I now have C which started in august of this year. I have never had D

I have been COMPLETELY gluten free for 2 months. All i eat is meat, fish, potatoes, rice, and tinkyada pasta. With a few homemade baked goods that are gluten free. And I swear to you I am getting worse!!!! I seriously want to go eat a few pieces of REAL 12 grain whole wheat bread just to see how I feel. but then i am scared that if this is a gluten problem i will really pay for it. Another reason why I wonder is because I used to eat noodles just plain with a bit of cheese on them when i felt horrible and they didn't make me feel bad. But I still went gluten-free because I am desperate to find an answer!!!

My other question was if the test from enterolab comes back negative does that mean that it is something else?

any advice... PLEASE HELP!!!!!

CarlaB Enthusiast
CarlaB
Posted

I would probably do a gluten challenge and see how I reacted. Since you've not had a positive dietary response, I would go buy one of the gluten items you miss the most and see how you react.

I know that celiacs can have no reaction to gluten yet still have the damage, but with no positive dietary response, I would want to know what would happen.

It sounds like you've cut out dairy, which can cause the same reaction in some as gluten.

I'm stumped. Maybe someone else will have suggestions. I know some people have taken longer than two months to see results, but it sure seems that you may have another problem.

If you really want to know from Enterolab, then get the test and see. But if you don't get better going gluten-free, I'd still be looking for something else, too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I agree with Carla. It looks like it may be something else. Eat that bread you crave, to see what will happen. If you react, try the Enterolab test. If you don't, you may have to try an elimination diet, to see what else could be the problem. You also should then see a doctor. You could have other problems, that need looking after.

linds Apprentice
linds
Posted
  • Author

i forgot to mention i also have a fast heart rate all of the time. Resting it is between 120 and 140 beats per minute. I did the 24 hour heart monitor test and it peaked at 184 while i was laying on the couch watching tv.

I have been to so many doctors i feel like they can't help I have been to 2 gi's a cardiologist and a few different gp's. I live in a very small town and just to see a specialist its a 2-3 hour drive which makes things that much harder.

I do occassionly have a yogurt but that doesn't seem to bug me that much. What worries me is that i feel bad even if i don't eat anything. It's 3:10pm and I haven't ate since last night and i still feel like crap!

CarlaB Enthusiast
CarlaB
Posted

That's a really fast heart rate! How is your breathing? Do you have any other symptoms? Joint pain? Fatigue?

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted

Why won't your doctors run the Celiac tests? That just amazes me when doctors just refuse to investigate further. Doctors can be so frustrating sometimes! I have Celiac and a fast heartrate and thousands of PVC's everyday. I still think there is a correlation between heartrate/blood pressure/pvcs and fatigue. I too wore the heart monitor and no one really knows anything. I do feel somewhat better on the gluten free diet (it has been 3 years), but I certainly do not feel that great. I am looking into trying the SCD diet (from the book, "Breaking the Vicious Cycle." Best of luck to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.