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Week Two


PeaceAngel22

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PeaceAngel22 Apprentice

Hey Glute free peeps, I am on week two of being gluten free. You all have been so helpful. I have modified my diet after a couple of set backs. Along with all wheat and gluten, I have now eliminated pop corn, potato chips,onions, garlic, nuts, and soda pop. I am finally starting to feel human again. Thanks old timers for helping us newbies adjust into our new way of living.


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oceangirl Collaborator
Hey Glute free peeps, I am on week two of being gluten free. You all have been so helpful. I have modified my diet after a couple of set backs. Along with all wheat and gluten, I have now eliminated pop corn, potato chips,onions, garlic, nuts, and soda pop. I am finally starting to feel human again. Thanks old timers for helping us newbies adjust into our new way of living.

Welcome and good luck to you! Sounds like you're doing well. Don't be discouraged if you have some set-backs- it seems to go with the territory!

Take care.

lisa

Susanna Newbie

Good for you! Hey, so some of those additional foods you've elimated, you might be able to try again after your GI tract settles down and heals the damage done during your glutenous years. When I went gluten free, some things felt better right away, but lots of my symptoms persisted for months--I think it takes a long time for a stressed bowel to heal. So, expect that it will take a while to feel all the way better. I initially cut out dairy, caffeine, alcohol and chocolate (because these all irritate the bowel in general), but after about 5 mos. of gluten free diet, my gut had recovered to where I tolerate all of them now.

Here's to your continued gluten-free success!

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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