Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi I Am New To The Group


JenniferBreedlove

Recommended Posts

JenniferBreedlove Newbie

Hello I am new here. About a month ago my doctor diagnosed me with celiac diease. He was just a regular MD. He did a blood test and it came back negative and did not send me to a GI. I kept having reactions after I ate and I wrote down all the things that I was eating. He at first told me that he thought that it may be a wheat allergy and to go home and cut wheat out of my diet and to let him know how it was going. I stayed wheat free and to my suprise I felt much better. Untill I had some bread crumbs and back to the doctor I went. So he told me that it was definatly wheat. Then it was other things that was causing my reactions beer, some candies, oats was what topped it off as a celiac diagnoses to him.

So much to my suprise while reading and reading many things I have finally found out the cause of why my life has been crazy with an upset stomach. I am 26 years old and I have two wonderful children, and a great husband. I was not to thrilled at the diagnoses as I have a two year old that can eat a loaf of bread by himself. But this problem spiked pretty badly while I was pregnant with my daughter. I had an abruption of the placenta and was put on bed rest from the time that I was 17 weeks pregnant with her till I delivered. The funny thing was that the pain did not go away after I had her. I was still in so much pain I couldnt stand it. NOt to mention that they did every test on me except a blood test for celiac diease or food allegries while I was pregnant. They did one test that consisted of taking 17 tubes of blood.

Any ways I am having a rough time adjusting especially when it comes to cross contamination. My husband is a pipe line surveyor and myself and the kids travel with him, we usually spend a great amount of time in motel rooms, I do cook alot but most of the time it is run to get what I need and cook as soon as I get it.

Another thing that I am concerned about is over the counter medications. Does anyone know if Equate muscle rub contains any gluten products or those patches that you put on your back. I have been very very careful what I eat lately but I have been having some major cramping and bloating. I thought that maybe a salad that I ate from a resturant may have been cross contamanated. But I got to thinking about the rub and thought that I would ask.

Well I look foward to meeting all of you. I am so thankful for a group like this and that it is here as I am completely stupid about all of this celiac stuff. My doctor does not know much about it either as he is the one that sent me to the internet for advice and to research on my own. Thank goodness he at least knew about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice

I doubt if the muscle patch would have something bad for you in it. Is there an 800 number on the box you could call and ask? You are lucky in that your dr. dx'd without all of the testing other than diet and he knew about celiac. Must have gone to the same university as my dr. did. I was dx'd via diet alone 10 yrs ago. One thing I could highly recommend is that you get yourself a set of Triumph dining cards. There's a link somewhere on this website. I don't travel without them and they have saved me many times. Are you taking any other OTC or prescribed meds that could contain gluten? What about toiletries, especially shampoo. There is wheat in so many places - even cosmetics! Anyhow, welcome to the board and I hope you find the source of your gluten soon.

Annette

Guest nini

welcome to the group! If you haven't already checked out my "newbie survival kit" simply click on the link in my signature below, scroll to the bottom of my web page and there you will find the newbie survival kit.

Creative-Soul Newbie

Welcome! You'll find lots of helpful advice and support here. I'm glad you have a doctor who paid attention to you and takes you seriously. Here's the link to the dining cards if you haven't already found it. I ordered them recently and they're great. Now I can feed my obsession with Indian food again!!!

https://www.celiac.com/catalog/product_info...products_id=484

daffadilly Apprentice

re the 2 year old that loves bread, watch that one as I have a grandson and a son that are like that - they crave wheat, & both of them are gluten intolerant.

Your life with hubby sounds fun. Do you keep a kitchen box packed in the car? I think you might be getting some cross contamination (CC) from an old cutting board, wooden spoons etc. When on the road be sure to cook all the meals gluten free, since there is less chance of CC. A jar of classico spaghetti sauce mix in some meat & eat over rice is good, & cheap or you can spend more & get gluten free pasta. check your seasoning blends, such as lawrey's seasoning salt, I would toss that one out, most are okay, but check the ingredients for the ones that are all blended together, also, get a wheat free soy sauce.

With some preplanning you can pack a lot of things from home & then just shop for fresh meat & veggies & fruit. You can even premix flours etc for fried chicken and things like that. Do you pack an electric skillet? I think that is the most versatile pan around. If you have room I would also pack a rice cooker. The kids can eat rice for breakfast, just add in some sugar, raisins, cinnamon etc. my grandkids love it.

be sure that you have enough little lunch kits and containers to pack healthy veggie and fruit snacks for the day, instead of relying on junk food. They make a little tupperware type container with a well in the center for the dip (& a little lid) & then a place to put veggies or fruits. I have seen these several places but I remember my favorites were at the container store. Walmart also has a line of tupperware containers that are leak proof. I love these because they can float around in a cooler of water & ice & not get water inside of them !!!!

For drugs check glutenfreedrugs.com

Rebecca47 Contributor

Welcome aboard, I found this group in Aug of this year, and there is lots of good information that you will find here. :D:rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,828
    • Most Online (within 30 mins)
      7,748

    Ramona Stuart
    Newest Member
    Ramona Stuart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.