Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Weight Since Diagnosis


mammprincess

Recommended Posts

mammprincess Newbie

Hi, I'm new here. I was diagnosed 4/05 and since going total gluten free except for accidental contaminations, I have gained about 20 pounds. I don't know how to get rid of it and don't want to eat gluten in order to return to my normal weight. Also, wondered if anyone else has had problems with a skin condition called, granuloma annulara. Thanks for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sagemoon Newbie
Hi, I'm new here. I was diagnosed 4/05 and since going total gluten free except for accidental contaminations, I have gained about 20 pounds. I don't know how to get rid of it and don't want to eat gluten in order to return to my normal weight. Also, wondered if anyone else has had problems with a skin condition called, granuloma annulara. Thanks for any help.

Hi,

Yep, I've put on 17 lbs since I went Gluten-free Jan '06. My gastro guy says it is normal since I am now properly absorbing my food, but it is very frustrating since I've battled my weight all of my life and was not in any obvious nutritional distress when I was untreated. I have hovered between 10-30 lbs overweight forever. Fortunately, or unfortunately, I was down a few pounds when I went to Gluten-free, so I still have some 'fat' clothes to begrudgingly don. Don't go to gluten to try to remedy the situation. Believe me, I am most likely just as unhappy as you are about it, my wardrobe is truly malfunctioning and I am obsessing over my belly, posterior, and jowls daily - hourly. I just decided this past week that I cannot sit by and put on another pound. I have always had success with Jenny Craig and NutriSystem, but they are not made for us, so it is just a matter of cutting back on what I eat, I started a latin dance workout yesterday (boy, am I creaky), and I am starting to lift light weights today. I am 50 and just want to be healthy and strong versus stick thin like I used to wish I was for so many years. But, I must admit, I would love to get back into my size 8s. If you can handle dairy (I am allergic to casein), you may be able to take advantage of the good whey protein shakes out there. Good luck.

Sorry, no skin condition like that here. Hope you find some help with it.

tarnalberry Community Regular

It's quote common to put on weight after going gluten-free. Getting it off is tough, but the basic idea is simple - take in fewer calories than you burn. Putting that into practice can get challenging. :)

You take in fewer calories by reducing food intake, obviously - and one thing that I think is particularly helpful with that is making sure to have balanced, controled portions of fat, protein, and carbs. That means no skimping on fat, but not thoroughly avoiding carbs entirely either. (The goal there is to maintain a steady blood sugar level to encourage you to not eat as often because you won't feel as hungry.) And you burn more calories by building muscle mass and/or exercising. Anything you'll stick with is good, but building muscle mass (as this is the best body tissue for burning calories while you're not doing anything else) is even better.

The really hard part, IMHO, is be patient enough to do this each day, every day, forever. Because that's what weight maintenance is all about. :rolleyes: Yargh. (Stupid cold weather keeping me indoors...)

mn farm gal Apprentice

I have put on some weight also since going gluten free. At first I think I just ate to many potatoe because I din't know what to have. And I have a hard time feeling full at dinner time at work because nothing taste good reheated or I don't know what to eat at work so I over eat at supper time. I know this will take time.

sagemoon Newbie

You're right about the over eating, I must admit that. It seemed that once I knew I couldn't have any cookies and crackers and cake I was devastated, even though I never ate them to begin with. When I figured out the Gluten-free snacks, then I began to eat them, so I ate a lot of simple carbs that I would not have eaten before Gluten-free. I bake my own cookies now, using the Pure Oats oatmeal and that helps a lot with the fiber issue. I tried adding FiberSure to all of my foods, but it made me feel like I was going to have diarrhea at any given moment - all day long, so I've cut that out.

Just did my latin dance workout. Really fun, but every joint in my body is yelling at me. Started with the 5 lb weights for a little shoulder work as well. Fingers crossed I keep it up and don't wimp out.....

Nancym Enthusiast

Also, the gluten-free carby snacks are worse than wheat based ones usually. They're much higher Glycemic index and higher calorie to boot. You gotta go easy on that stuff. I find sticking to a diet of meat, fish, veggies, nuts, fruits is the best one for me to keep my weight in control. I've struggled with my weight pretty much my entire life. And eating a diet of simple and nutritious foods, without any added starches, is the way I keep my pants fitting. :P

TinkerbellSwt Collaborator

I have also gained soooo much weight since going gluten free. I, too, have always had a weight problem. Not obese, but I was about 20 pounds over weight. Now I am probably 40 pounds overweight easily. I do also eat the gluten free snacks. I was also told it does have a little bit to do with now my body is absorbing the nutrients. Its not all that, believe me, I know. I try to eat as well as I can. I do know that Tiffany is correct, in the fact I need to get moving! For now though, since I tripped over my sons toy, I have water on my knee and have been trying to get rid of it for 2 months to no avail, pain a lot, not a lot of walking and no climbing stairs and such (someone needs to tell Colin this). I am on my way to see a knee surgeon about my condition. I know my weight isnt helping my situation either. I hate that. I envy those who can just eat whatever they want. Not that anyone should. We all should eat responsibly. I know I need to better my diet. Knowing and implementing it are two totally different things here though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

(I should have added: just because I know what *needs* to happen, doesn't mean I always do it either. it gets tough to keep that momentum all the time :lol::rolleyes: , but it is easier once you get started, or if you do it with someone else.)

lovegrov Collaborator

I gained almost 50 pounds, which for me is about 30 too many (actually I gained 70 from when I was REALLY sick, but then I weighed far too little). Before going gluten-free I ate whatever I wanted and never gained weight or had high cholesterol. I know that everybody is different and I am a man, which usually makes it easier to lose weight, but the ONLY thing that worked for me was reducing calories and exercising (walk every day, lift light weights 2-3 times a week). No pills, no fad diets.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,254
    • Most Online (within 30 mins)
      7,748

    Linds9
    Newest Member
    Linds9
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.