Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Discomfort V Intolerance


covsooze

Recommended Posts

covsooze Enthusiast

Apart from gluten, the only 2 foods that I've got real problems with (ie to the extent that I feel it necessary to avoid them) are chocolate and tomatoes. Chocolate makes me really poorly and tomatoes give me mouth ulcers. However, there are lots of other foods that cause me GI discomfort. I don't know if that means I'm intolerant to them or indeed if that really matters. For others in that position, have you excluded those foods that 'just' give you GI discomfort? Is it worth doing? Do you just exclude the worst offenders and rotate the rest or what?

Thanks for your comments!

Susie x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nooner Newbie

I get reactions to poultry, brassicaceae family veggies (broccoli, cabbage, mustard so far), soy, and nightshades. I also react to vinegars, including apple cider vinegar, possibly because of the acid. I ate an orange this week that gave me some distress, so I'm going to avoid all citrus for a while.

Most of my "intolerances" have a strong enough reaction (not as bad as gluten but darn uncomfortable) that I just don't think it's worth the pain to try and eat them. In the case of soy and nightshades, there was no reaction during my elimination diet, then a few weeks later I started to notice some effect, then shortly after I identified the food I started to really feel it. I'm going to try rotating citrus (lemon juice) in the hopes I don't develop a full blown reaction to it.

I am worried about other foods. I eat a lot of corn, beef and rice now (not much else left!) and I'm worried that I'll start reacting to them, too. I really do want to start a rotation schedule on my safe foods, but haven't yet. I guess I'm fighting to keep the little bit of food spontenaity I have left.

You can't have chocolate, how awful! :( Do you react to the bean itself? I thought chocolate was a problem for me, too, until I realized it was the soy lecithin in it. So I make brownies and fudge now, but avoid any premade chocolate candy.

Thanks for starting this thread, I've been curious about this, too. I also wonder if by avoiding things that bother me, like nightshades, if eventually I'll be able to tolerate them a little. Maybe we eventually heal enough to regain some things. Hopefully!

celiacgirls Apprentice

I've given up gluten and casein. I did those because of Enterolab testing. I have noticed I am possibly reacting to soy with just stomach problems right after eating it. I'm thinking I will give it up and see if it is really a reaction to soy. I think it will be worth it because I'm already making most things from scratch and am aware of soy because one of my daughters is soy intolerant. So it doesn't seem like it will be a big deal. If it were something I would miss more, I'm not sure what I would do.

marciab Enthusiast

When I first started the elimination diet, I could only eat a few things. So, I had to tolerate a little distress in order to get foods back into my diet.

The cramps, rash and the "D" I get from soy, corn, eggs or dairy are just too much to handle though.

It probably took me 10 tries to get tomatoes, onions and garlic back in. It's been a while, but I believe these gave me reflux. Now I can eat these raw.

At present I am introducing coconut oil. It gave me bad reflux the first time, less reflux the second and I have not tried it again. But, I will ...

I am still trying to figure out if I can handle minute amounts of corn, soy, dairy and eggs. Mainly because they are in the goodies I want to eat :)

Marcia

Guest cassidy

Chocolate and nightshades (including tomatoes) are very bad for me as well. I also have a hard time with pineapple, strawberries, kiwi, citrus and bananas. I thought those things were supposed to be healthy! I can usually tolerate a little if I only have a bite or two of something every once in a while. I have really found that once I have healed I can have a bite, but I will pay big time if I have a whole serving.

I do cheat sometimes. I NEVER cheat on gluten and sometimes fruit just sounds good.

Kaycee Collaborator
You can't have chocolate, how awful! :( Do you react to the bean itself?

Nooner, you have fair taken my breath away, I am way down here on the other side of the world trying to sort out a couple of things with my diet, and you mention chocolate and bean in the same sentence, and I think, bean = legume, and I go, oh no, don't tell me the cacao bean is a legume.

Then I do another take when I remember coffee comes from a bean as well! I am now in pretty bad shape here, stressing a little as I avoid most legumes as they give me grief, especially peanuts and soy and I am sure others as in chickpeas too, but what if chocolate comes from a legume? How depressing, especially since I have been eating a bit lately and not feeling too great, but blaming it on something else for that instead. I am now more confused than ever, but at the same time thanks for the mention about chocolate and beans, just the right timing to get me thinking.

Maybe they are legumes and everybody else knew but me, or maybe they are not legumes and I am going up the wrong tree?

Cathy

Nooner Newbie
Nooner, you have fair taken my breath away, I am way down here on the other side of the world trying to sort out a couple of things with my diet, and you mention chocolate and bean in the same sentence, and I think, bean = legume, and I go, oh no, don't tell me the cacao bean is a legume.

Then I do another take when I remember coffee comes from a bean as well!

Hi Cathy,

I just checked Wikipedia, and according to them, neither cocoa beans or coffee beans are actual beans. So no, they aren't legumes, but in my experience, that doesn't mean you can't react to them! By the way, vanilla beans are also NOT legumes, in case you were wondering. :)

I just mentioned it to Susie because I had suspected chocolate itself, but found out it was something in the chocolate. If I use cocoa powder to make my own chocolate goodies, I'm fine. If I eat a single M&M, I'm sick. I finally figured out it was the soy lecithin that was getting me. And as you already know, soy is a legume...

This whole thing of intolerances is pretty frustrating, but fascinating to me. I'm amazed that my body knows that broccoli and mustard are related and acts accordingly. I haven't even tried tomatoes since I had a bad reaction to peppers and potatoes. I'm only 4 months into this, though, and I'm hoping with time, things will reverse.

Marcia, you're giving me hope that things will turn around. How long did it take you to be able to work some things back into your diet? Weeks? Months? Years?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Kaycee, I've replied to your question on your chocolate thread, although I see Nooner has provided a good answer her too :)

You guys who've done/ are doing an elimination diet. Did you start off eating nothing at all or just a couple of foods? I'm not sure how restrictive I am going to need to be to start off with - pretty restrictive I reckon, but I also don't want to fail cos of being too hungry! I'm seeing the dietician tomorrow so will speak to her about it and start after Christmas :D

Nooner Newbie

I did some research on elimination diets to find out what to eat. A lot of websites had different "safe" foods, so I compiled foods that appeared on multiple sites. I also tried to keep it as simple as possible. Here's what I ate for the first few days: green tea, brown rice, zucchini, pineapple, carrots, and sweet potatoes. I kept a food journal, and looking back, I see that I was crabby, and a little headachy, and hungry all the time, but I felt significantly better after 4 days. I started to reintroduce foods then, one per day, which I now think was too fast, but I was desperate for some variety. :rolleyes:

A few times I had to go back to rice/zucchini/sweet potatoes because I tried to do too much at once, but the first week of the elimination diet was the worst, and after I had a few more foods to eat it wasn't bad. And I didn't know about my gluten intolerance yet, so I had to spend a lot of time suffering through those foods, but you won't have to do those foods. :P

marciab Enthusiast

My doc put me on the elimination diet back in July 2005 because my stomach was killing me ... reflux, "D", "C", gas pains, stomach cramps ... and I was down to 105 pounds ...

She told me to eliminate wheat, dairy, soy, corn and eggs. These are the common sensitivities and it is becuase they are found in so much of our foods today.

Also I was told not to eat any fruit or veggie with a skin. Peas, grapes, etc. And the only meats I could have were plain fish and chicken. And avoid citrus.

She also told me to eliminate anything that I knew hurt. For me that was onions, tomatoes, garlic, etc.

And to add papaya, mango and pineapple because they contain natural digestive enzymes and she knew I needed something to eat.

I ate tons of home cooked beans over millet, quinoa and buckwheat. I used crystallized ginger for flavor and becuase is helps digestion.

Baked potatoes are good because they hold the most nutrients this way. I use EVOO and salt for flavor.

Plain steamed veggies are easy for the most part, but each person has to see what they can handle.

I slowly added in raw nuts. Cashews were the easiest for me to digest. I can digest organic peanut butter and almond or cashew butter, but not roasted nuts ...

It took several months for my stomach to calm down, but I was a mess. Be sure to go back to your safe foods when something upsets your stomach. It gives it time to heal.

You need a good probiotic too. I used kefir, but it is dairy and I have to get off of it because it is causing "D" everytime. I don't know of a probiotic I can have yet though ... :(

Hope this helps ... marcia

covsooze Enthusiast

Thanks so much marcia - that does help a lot. I saw my dietician yesterday, who I must say, for an NHS dietician is very open minded and very helpful :D She's helping me put together an elimination diet to start after Christmas. It sounds pretty much like yours. She got me making a list of foods I know I'm OK with, foods that I know I'm not and foods that I've got question marks over. The list I'm OK with is depressingly small, but should be OK for a few weeks. I will post in my blog how I get on!

Susie x

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Pamp8's topic in Dermatitis Herpetiformis
      4

      Dermatitis Herpetiformis

    2. - knitty kitty replied to Pamp8's topic in Dermatitis Herpetiformis
      4

      Dermatitis Herpetiformis

    3. - Scott Adams replied to CeliacNew's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Newly diagnosed, struggling

    4. - Scott Adams replied to sheba's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      foods

    5. - CeliacNew posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Newly diagnosed, struggling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,943
    • Most Online (within 30 mins)
      7,748

    Judy Ottinger
    Newest Member
    Judy Ottinger
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would hesitate to recommend tetracycline or any antibiotic as a long term therapy option because of the negative impact it has on the gut biome. I took it for years as a teenager for acne and I'm convinced it was a contributing factor in my having developed celiac disease.
    • knitty kitty
      Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt.   I take Niacinamide also called Nicotinamide or Vitamin B3.  I haven't taken the tetracycline with it.   It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands of years.  It is absorbed into the skin better than creams made from plants.  It helps prevent or lesson scarring.  See the study below. Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide "The combination of tetracycline and nicotinamide can be recommended as a useful therapy for patients where dapsone is not available or for patients who do not tolerate dapsone." https://pubmed.ncbi.nlm.nih.gov/30390734/
    • Scott Adams
      First off, I’m so sorry you’ve been dealing with this for so long—being sick for half your life is unimaginably tough, and it’s huge that you’ve finally gotten some answers. A celiac diagnosis can feel overwhelming (especially on top of being vegan!), but it’s also a turning point. Your body is about to start healing, and that’s hopeful! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it is likely your villi healed, but if you are exposed to gluten regularly again the damage will likely come back and cause some potentially serious health issues.
    • CeliacNew
      Hey yall! I am dealing with a new diagnosis. I have been sick in some sort of way for 10 years. I am 22. I can’t remember a time in the last decade I have not had some strange symptom. This last year it got way worse. I lost 40 pounds and had to drop out of school. I ended up getting and endo and blood tests and got positive results for celiac. I am looking for advice of ANY type. I am vegan so this is a big adjustment to add this to my diet. Thansk fro the help. 
×
×
  • Create New...