Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hiya. Gi Or Cd?


Mydnyt

Recommended Posts

Mydnyt Newbie

Hi All

Newbe here. This place has been an interesting read, because I have been trying to find info on the difference between Gluten Intolerance & coeliac.

Had been having trouble with constantly feeling bloated, lack of energy etc for years, and when I had a full checkup recently my GP ran some extra tests.

Came back with the anti-IgA reading of 190. Went searching on the web & found somewhere saying a reading over 30 was a very high indication of coeliac positive.

Then had a biopsy, which came back negative/inconclusive. The gastroenterologist said keep eating the same, GP said try gluten-free for 6 wks.

Well, I tried gluten-free, and took about a week and a half, and had lost an inch & a half just from lack of bloating, got energy to burn, and generally feel fantastic.

Been all of 6 wks now, and still getting used to what I can and can't eat - especially when out for work. Every now and then get something I shouldn't be having, and know it within 20 mins - crossed of the list for the future.

Now just having a lot of the 'traditional' meals - roasts, steak & vegies etc - along with the simple stir fry's. I have to admit, it hasn't been as hard as I imagined - am I doing something wrong? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Doing something wrong, finding it easy? Naw! Sounds like you're doing well adapting to the diet. =)

There have been a few people asking the Celiac versus gluten intolerance question here lately, so believe my answer is more or less correct.

Celiac disease is when the small intestines gets damaged because of an intolerance to gluten. A gluten intolerance is when you have an intolerance to gluten. Difference then, is just the damage to the small intestines. Both are treated the same way, which is no more eating gluten.

And to the sound of it, you are getting better! So ignore your gastro and go with your GP. gluten-free is the way to be!

Err, sorry.. that kinda rhymed in my head, so had to say it that way, LOL.

But no, nothing wrong. Just keep trying to avoid gluten and learn from mistakes! =)

Mydnyt Newbie

Ah well, was beginning to think it was too easy, reading some of the problems some people are having... Good to know I've pretty much got it right :D but boy, do I know it when I don't... :(

haha - does kinda rhyme when you say it in yr head :P

Alexolua Explorer

I think the trouble most people have is not being able to eat fast food, lots of junk food, etc. If you are handling that fine, then yeah, should be easier for you. =P

And in a way your lucky then, kinda, your body will tell you right away if you eat a no no. Pretty sure mine won't do that, lol.

Mydnyt Newbie

Ah, so that's probly why I'm having little trouble. Seldom eat junk food - tho still have cravings for pizza :( Usually do my own cooking, except when away for work - I wonder how that'll go...

Yeah, I guess I am lucky that I know straight away. Unfortunately it takes about 3 days to pass... motviation not to do it again :D

Alexolua Explorer

LOL.. well least it keeps you safe for 3 days?

And that was another. If you loved breads, pizza, etc.. diet might be a bit hard too. Just gotta be off it long enough to forgot what those things were like, LOL.

Niteyx13 Explorer

I have run into some pretty decent pizza crust recipes. I even found some gluten-free waffles that I didn't have to choke down! Just keep looking around at stores, and online, there are some good gluten-free bread or bread type foods out there. So, don't mourn the pizza too much! =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mydnyt Newbie

Figured I'd just work around the lack of pizza... Got a wood oven in the kitchen. I'll try making my own :D and a gluten-free'll bring the drinks

celiac3270 Collaborator

I think a lot of the problems people have aren't with the gluten-free diet, but with symptoms, other complications, or diets that are restricted even further (no casein, lactose, nuts, soy, dairy, corn, etc). My problems revolve around symptoms--other than that, I'd be fine

ponita Newbie

I'm a newbe too and it wasn't that difficult for me either to make the changes. I too wondered if I was doing something wrong but since I felt better and better with each day I figured I was on the right track.

I started looking at all the foods out there that I could eat and not what I couldn't. I really wanted to expand my cooking skills with basic foods by learning new recipes. (like gluten-free fruit compote, veg salads and in general broaden my horizens before I added the gluten-free baking goods)

Those things kept me busy from thinking of pizza, cakes, breads and cookies (which were the main staple of my diet 10 weeks ago!!). I'm just now looking at gluten-free breads, pasta and mixes.

Good luck with your pizza craving!

Melissa

CoolCat1 Rookie

I tried a gluten-free pizza by Mega Pizza. It was fine. It was great not to feel sick after eating pizza. I don't know if Mega Pizza is common. I live in Canada.

Niteyx13 Explorer

Add-on to my entry up yonder:

The waffles I found are made by "Wheatstone (haha...I take it that's a family name!). They are pretty yummy and gluten-free. Not those crumbly dry things that you have to choke down. I bought them at Sprouts.

Deanna

Mydnyt Newbie

yeah. not much I miss really. bread I just haven't had, never been big on biscuits etc anyway

Kind of good timing in that the local shops have suddenly decided to expand their range of gluten-free foods. Just gotta wonder if some of them really are... Bought some gluten-free corn & vege pasta, and my reaction to it was awful. Mind you, wasn't lasting, so probably something else that doesn't like me :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,622
    • Most Online (within 30 mins)
      7,748

    Veronica27
    Newest Member
    Veronica27
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading up to the testing date. And it is often the case that once gluten has been withdrawn for a significant amount of time, the reactions are much stronger when going back on it.
    • Marky0320
      I'm investigating the possibility of having celiac disease. My kid has Coffins Lowery syndrome, a rare form of Austism, and constantly has these CVS episodes. We suspect it could be related to Gluten sensitivity or celiac. We just started the diet last week, and we'll keep an eye on any improvements.
    • Alibu
      @Scott Adams thank you again!  You definitely 100% get it!!  It's so helpful to know that what I'm going through is normal and part of the process. My endoscopy just got scheduled for June 10 (I'm going to be traveling or else they could have gotten me in earlier) so I have 2 more weeks of eating gluten.  I'm assuming I should just go to the endoscopy and start going gluten free as soon as it's done?  Or should I wait for the biopsy to come back just in case they have to repeat something?  
    • trents
      Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease. If the blood antibody testing is positive, there is usually a second level diagnostic procedure for confirmation involving an endoscopy/biopsy of the small bowel lining, looking for the damage caused by celiac disease. So, when you go to your appointment, I would suggest approaching your doctor this way to simplify the experience: 1. For six weeks I have been experiencing stomach cramps, diarrhea, feverishness, headaches and joint pain when I consume wheat products. 2. I have relatives with celiac disease and other autoimmune disorders such as Hashimoto's thyroid disease. 3. I would like to be tested for celiac disease. Would you be willing to order the TTG-IGA antibody test and a total IGA test? TTG-IGA stands for "Tissue Transglutaminase Immunoglobulin A". Total IGA is also known as "Immunoglobulin A (IgA) test" (Note: the TTG-IGA is the "centerpiece" of celiac antibody testing. There are others but this one is the most important and the most popular one with physicians. But is also very important to have total IGA checked since if you are IGA deficient, it will produce artificially lower TTG-IGA scores and possible false negatives for this one and other IGA antibody tests as well.) It's very important that you not begin cutting back on gluten consumption before the antibody test blood draw.
    • NightRaven92
      Hey so on June 18th next month,I made an appointment next month with my doctor,because I think what could be causing my symptoms,is related to Celiac Disease. Here is my symptoms & stuff..so anyway autoimmune disease runs on my mom's side of the family. My grandma has an autoimmune disease related to her thyroid,& my aunt has Celiac Disease. I have been having my symptoms for almost 6 weeks now,from what I have noticed anyway. My symptoms are:Stomach pain/cramping,chronic diarrhea,I will feel feverish out of nowhere,I get alot of headaches & pain in my joints,& I noticed that literally after I consume anything with gluten in it,I will get nausea,sick to my stomach,pain in my abdomen & around my stomach,& not to mention the diarrhea that can often come out as very painful afterwards,if I consume gluten foods. I have not felt well in what feels like forever & that's of course why I made a dr appointment. Anyway I could really use some advice on this & how I could maybe bring my symptoms up with my dr without confusing her too much..thanks in advance..
×
×
  • Create New...