Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Sick, I Don't Know If I Can Make It

dennymel

Recommended Posts

dennymel Rookie
dennymel
Posted

Fellow Celiacs,

I have been recently diagnosed with gluten sensitivity on Enterolab. Today, I have no idea what I did, but I am so fatigued, exhausted, head ache and can barely think. I wonder, is it only the gluten, can it get this bad overnight? No bathroom issues, but muscle, joint, face aches and pure exhaustion. I don't know how I keep a fast paced job when I really just want to lay down. anyone have these symptoms this bad? How long do they last if I mistakenly glutened myself? Arrrgggghhhh.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Were you feeling better on the gluten-free diet? Or did this come on suddenly after a possible glutening?

I got somewhat better, but only my digestive symptoms improved. The rest of them did not get better and I just found out (finally) last week that they're from Lyme Disease .... so you CAN have gluten intolerance AND something else going on.

super-sally888 Contributor
super-sally888
Posted

Hi,

Is this all of a sudden to feel this bad?

Maybe you got a virus or a flu coming on..... unless this is how you normally react to gluten.

Have you had your thyroid checked? Your symptoms could be from that - though not usual for it to happen all of a sudden.

Or could you be pregnant? (sorry, I don't know if you are man or woman from your name).

Sally

dennymel Rookie
dennymel
Posted
  • Author
Hi,

Is this all of a sudden to feel this bad?

Maybe you got a virus or a flu coming on..... unless this is how you normally react to gluten.

Have you had your thyroid checked? Your symptoms could be from that - though not usual for it to happen all of a sudden.

Or could you be pregnant? (sorry, I don't know if you are man or woman from your name).

Sally

Hi Sally,

I am a woman, not pregnant. I've had my thyroid checked several times and it appears normal. I am getting over a cold and do have my "." right now. maybe that's it. The symptoms are a little better today, after I slept 10 hours straight. I have been feeling better on a gluten free diet and don't know what I might have eaten over the weekend. Maybe eating out is just too hard to monitor. Do you eat out a lot?

Denise

CarlaB Enthusiast
CarlaB
Posted

Eating out is always risky ... to lower the risk, I only eat at places that have a gluten-free menu because they're better prepared to handle contamination issues.

Here's an example. My son worked at a tea shop that serves lunch food. The salads seemed gluten-free .... however, only because he works there, I know that they make the salads at the same station as the sandwiches since they use many of the same ingredients for both. He said there was NO WAY I could get a gluten-free salad there even though they appeared to be gluten-free on the menu.

So, just ordering something that looks safe isn't good enough ... it may still be contaminated because of the way it's prepared. Sometimes people even get glutened at restaurants that have a gluten-free menu. It's just a risk we take eating out.

celiacgirls Apprentice
celiacgirls
Posted

I am one of those who has been glutened at a restaurant with a gluten-free menu. More than once. If you've been eating out and are having a reaction, it more than likely comes from the restaurant.

My reactions have become much more severe since I went gluten-free or maybe I am just more aware of feeling depressed and tired than before so it seems worse. I do have a slight stomach ache at the time of glutening sometimes but my main symptoms are brain fog, fatigue, and irritablity. Luckily, I am a stay at home mom, so I can just lay down if I really need to. I can only imagine what it would be like having to function at a high level at work.

For me, it gradually gets better but the last time it took 2 1/2 weeks. It's enough to make me dread eating in a restaurant. I never thought I would be one of those people who is afraid to eat in restaurants but it happened. On the bright side, it is worth it to feel good. I hope you get better soon.

GFBetsy Rookie
GFBetsy
Posted
Hi Sally,

I am a woman, not pregnant. I've had my thyroid checked several times and it appears normal. I am getting over a cold and do have my "." right now. maybe that's it. The symptoms are a little better today, after I slept 10 hours straight. I have been feeling better on a gluten free diet and don't know what I might have eaten over the weekend. Maybe eating out is just too hard to monitor. Do you eat out a lot?

Denise

My guess would be the flu. Aches and a cough are both flu symptoms, and it is that time of year.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.