Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thirst

Niteyx13

By Niteyx13
in Related Issues & Disorders

Recommended Posts

tom Contributor
tom
Posted
BTW: I rip on doctors alot because so many of them misdiganosed or mistreated me. But when I finally found a good one, he spent 6 months testing me and wouldn't give up til he diagnosed me. I had a check-up recently and he told me that, now that he knows what to look for, he's diagnosed 3 other celiacs in the past year. That's after 30 years of never diagnosing anyone with celiac! There are some doctors who actually try to do a good job.

Omg TestyTommy I got chills reading this!!

What a fantastic Dr!!

To everyone else -

If you've been gluten-free a while and are still too thirsty, having some GI symptoms, bloating, exhaustion, hdaches, etc (many possibilities where I'm going), you may do yourself a GREAT favor by looking into Candida overgrowth.

I saw more than a couple of posts reminding me of me in this regard.

I'm nearly positive that far more long-term celiacs develop Candida overgrowth than what seems to be accepted thought on this topic.

To make sure I'm clear - I'm talking about celiacs who've been gluten-free a while, but several symptoms, incl thirst remain, tho often the symptoms have diminished some since going gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TestyTommy Rookie
TestyTommy
Posted

I was tested multiple time by multiple doctors for both types of diabetes. But, of course, since I didn't have it, the tests were always negative. Then the doctors would give up. "Well, the tests were negative, so there must not be anything wrong with you. It must be in your imagination."

My sister was also diagnosed with celiac a couple months ago. I hadn't seen her in awhile, and she showed up on a beautiful spring day wearing long sleeves. I teased her about it, and she showed me her 'rash' that she'd had for the past year or so. It was the biggest, nastiest giant red blotches I'd ever seen. I'd never had DH as a symptom, but I pulled out some of my celiac books and it sure looked like what they described. She had been to a number of doctors, and they all said things like, "Huh! I've never seen anything like that before!" No one tested her for celiac, despite her having a brother with the disease. She went back to her doctor, and he still didn't want to test her! DOCTORS ARE IDIOTS!

Tom:

I've always been suspicious of candida as one of those made-up internet diseases. Can you point me towards some info? Have you had any success? What kind of treatment have you had?

confusedks Enthusiast
confusedks
Posted

I have been researching extreme thirst! I am SO THIRSTY!!! I have been gluten-free for about 2 1/2 months. This is a new thing that is going on. I have NEVER had this before. I am so thirsty I am waking up numerous times in the middle of the night to get water. I also don't want ANYTHING but water which is new because I usually never want any water; only soda, juice, etc. Should I get tested for diabetes? I am worried...also I have been severely anemic in the past and it is fine now. Also the way I know is because water used to make me want to puke when I was anemic.

Kassandra ;)

TestyTommy Rookie
TestyTommy
Posted

Hi Kassandra,

Thirst can certainly be a sign of diabetes, so you should get tested. My problem (and the problem of some others on this thread) is that we were negative for diabetes, and then no one bothered to test us for anything else -- like celiac!

Another thing: watch your electrolytes. If you're drinking a lot of water, it may not be getting inside your cells if you're not getting enough electrolytes, especially salt. (This happened to me). Some things to try:

add about 1/4 tsp of salt to each glass of water you drink, especially in the morning.

sometime drink beverages like Gatorade that have electrolytes in them, instead of water.

I used a product called 'Endurolytes' that have electrolytes in capsule form.

Good luck!

lfij Newbie
lfij
Posted
A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

maybe your body is just working overtime and needs more fluids! (when you have the flu or are sick otherwise, you usually need more, celiac is no different if you're back on gluten for testing)

  • 2 weeks later...
lilpup Newbie
lilpup
Posted

I've also had terrible thirst for the past several days--never had it before going gluten-free 11 days ago. (No, I don't have diabetes.) I'm eating a balanced diet and have been cooking for myself no eating out, no premade foods. But each day the thirst seems to be getting more intense. Can anyone help?

boysmommy Newbie
boysmommy
Posted

OMG!! This is my first time on this. I was just recently diagnosed and I am looking for information. As I sit at my computer here with a bottle of ice cold water and a cup of ice! I crave ice or flavored ices ALL the time!! I actually feel sooooo sick (tired, nausea, headache) if I don;t drink a ridiculous amount of water. I am always up several time a night to pee. I also was checked for diabetes and do not have it. I was diagnosed with celiac (without a biopsy) as a baby and was told be 3 that I had outgrown it. I have suffered for years including bloating, cramps, nausea, migraines, foggy head, severely severely itchy skin without rashes....and others. I finally, on the recommendation of my children's pediatrician had blood work (positive) and then a biopsy to finally conclude, I really had always had celiac. I am really just learning about all of this but never knew my weird thirst was part of it!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


melrobsings Contributor
melrobsings
Posted

You might want to look into sjogrens.

Open Original Shared Link

It's also a hereditairy auto-immune and my mom has it.

If you have the book "Celiac Disease A Hidden Epidemic" there is a chapter in the book about it.

  • 4 years later...
drjlgphd Newbie
drjlgphd
Posted

A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

I would guess that it is due to loose stools. I used to be so thirsty all the time that I was checked more than once for diabetes. Off-gluten for 4 years and I don't need to drink about 120oz of water a day anymore. I'm on a gluten challenge as of yesterday for one month to set up for an endoscopy and I woke up in the middle of the night so thirsty I could hardly get to the kitchen fast enough. I drank 16oz of water and had to stop myself from continuing. This morning, loose stools as I used to have before I went off of gluten. I'm pretty sure they're connected.

kareng Grand Master
kareng
Posted

Please note, the last post on this thread is from 2007. The OP you are responding to is from 2004.

  • 2 years later...
UK2004 Rookie
UK2004
Posted

I also had this extreme thirst, mine started 16 years ago and was my first majorly noticeable symptom.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    LWceliac38
    Newest Member
    LWceliac38
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.