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Not Sure If Im Happy To Have Figured Out Im Maybe Celiac :s


fendertele

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fendertele Newbie

hi there im sorry if this gets long but need to help on some things since i was 19 (im now 22) ive been severly depressed to the point i stopped going out with any of my friends and became reclused it all started with these tiny flat white spots all over my body that appeared mor when i was cold or stressed then came hairloss on one side of my head around my temple area the spots were the worse it was a total confidence killer and thats when i became very obsessive on my appearance for the next few years id go through all soprts of moods sad angry depressed give up..... and tried many dermatologist and specialists then a few months back i tried a nutritionist not thinking it would be diet involved i used to eat the worst foods on regular basis ie kebabs and all the junkiest foods u can imagine every night after being to the pub and gettin legless and smoking 40 cigarettes on top of that so i probably gave my body no chance at all, so anyways the nutritionist suggested i try cut out all wheat gluten and dairy from my diet i tried it and at first there was no big change so after a week or two i reverted back to comfort eating and when i did i felt this unbelievable ill feeling like i was drained sore stomach and my spots fully out itchy eyebrows which are slightly flakey and the feeling i had been lightly punched in the gut, then i realised without knowing it i had been feeling this way all along but never felt what it was like to feel good before i started the intolerance free diet so i jumped back on it and after a couple of days with no wheat/gluten/dairy my spotsd are almost invisible i feel great infact i cant sleep i have so much energy and im a lot warmer now and less cold than ever, but ive tried reintroducing some of the intolerent foods to see exactly what im intolerent to but it seems it all of them which is a bummer so no wheat or gluten or dairy :S will that not lead to a really hard and maybe slighly boring life veg and fruit for life ? im 22 now and was hoping to one day at least get back out to pubs with my friends but it seems even beer/lager contains gluten i have good willpower ive not smoked now in 8 months and have no cravings for it either i eat all the right things i have to the one thing i ask is once aweek i can socialise with my friends in the only place they get together is the pub is there anyway i can get this with meds or anything thanks K :)


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tarnalberry Community Regular

nope, there aren't any meds that will allow you to safely be able to consume gluten.

but, there are a handful of beers out there that are gluten free. the chances that the pub you go to will have one of them is low, but if they can pick a place and stick with it, you may be able to talk to the owner to work something out, and possibly get them to order some.

if not, remember that you don't have to drink or eat to socialize. I've gone to a number of places where there's nothing for me to have, but I'm there for the company. water taste the same everywhere. :-) real friends, after getting used to it, won't say a word.

fendertele Newbie
nope, there aren't any meds that will allow you to safely be able to consume gluten.

but, there are a handful of beers out there that are gluten free. the chances that the pub you go to will have one of them is low, but if they can pick a place and stick with it, you may be able to talk to the owner to work something out, and possibly get them to order some.

if not, remember that you don't have to drink or eat to socialize. I've gone to a number of places where there's nothing for me to have, but I'm there for the company. water taste the same everywhere. :-) real friends, after getting used to it, won't say a word.

thanks for the reply yeah im a big water fan and drink away at it all the time but it just aint the same my friends wouldnt get at me its just when theyve had a good few drinks and are having a laugh u all know the guy who hasnt cant relate or get into it he same frame of mind as the rest its just the whole feeling u get when were all on the same level :( apart from that the rest i can go with in terms of change of lifestyle but he one thing i hoped for was that after i get sorted i could get back out with my friends and enjoy a normal weekend drinking again are commercial lagers really bad in terms of gluten and wheat and would i maybe not be bothered that much by them ? i know when i eat food types with these ingrediants after 5 mins i feel the sickness and the spots come out but whenm i drink the spots dissappear as it has some sort of vessel dilater and i dont feel sick at all when im drinking it whether i feel it the next morning is another story as its hard to tell if its intolerance or just a hangover? thanks for any replys :)
Nancym Enthusiast

There's other drinks out there than beer, most of them are gluten free.

As far as variety, I think I've got plenty of variety in my diet and yet it is very restrictive. I suppose in some ways it is better because there aren't so many tempting foods out there to get fat on. It puts food back into the category of nourishment rather than entertainment. :D

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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