Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis

barilla

Recommended Posts

barilla Explorer
barilla
Posted

Is it possible to get diagnosed without a positive biopsy? Back in May 06 I was tested for celiac disease. My levels were really high. So I went gluten free because the nurse on the phone said to eliminate gluten from my diet. I felt a lot better,, then my GI has me get a biopsy done knowing I've been gluten free. He asked if I could go back to eating gluten and I said No, that I feel much better without it. And the thoughts of going through all the pains and D.again,, forget it! He still wanted me to get the biopsy. So i did and my results came back negative. So my question is: Is there any other way to get a diagnose without have to go back to eating gluten?

I feel like I am stuck between a rock and a hard place!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

Guest Villanfam
Guest Villanfam
Posted

Just ask them to run the same blood tests and see if your levels are lower, now that you are gluten-free.

barilla Explorer
barilla
Posted
  • Author
  Villanfam said:
Just ask them to run the same blood tests and see if your levels are lower, now that you are gluten-free.

I've asked my doctor the last two times I saw him if he could check my levels and he won't. He says he doesn't check them again.

I think I need a new doctor!

Guhlia Rising Star
Guhlia
Posted

If you had positive Celiac test results then you have Celiac. There aren't false positives, just false negatives. In addition, you stated that your health improved greatly. This is diagnostic proof in itself.

SillyBoo Newbie
SillyBoo
Posted

I was diagnosed based on the blood test (Gliadin IGA 106, normal is <25), my debilitating symptoms, and positive response to the gluten-free diet. My doctor didn't think the biopsy was necessary - she also knew that I didn't need biopsy results to convince me to stick with the diet. Yup, maybe a new doc is a good idea.

Guest Villanfam
Guest Villanfam
Posted

Yeah it sounds like you do need a new Doctor, but if you are telling him point blank "Run the tests again." he has to. If you went in there and said "I think I have leukemia/an ulcer/strep throat/GERD/whatever, test me for it." He doesn't have to agree with you, he just has to do it. It's not like you are making an unreasonable request. He is working for you, remember that. I'd still look into getting a new Doc though :P

emcmaster Collaborator
emcmaster
Posted

Why do you need a diagnosis? For many of us, being diagnosed with celiac can mean never getting life insurance, having trouble being covered when switching medical insurance companies, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Authentic Foods

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

tarnalberry Community Regular
tarnalberry
Posted

You have two valid, positive tests (the dietary challenge is one of them), and one invalid negative test. IMHO, you should listen to your body. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,928
    • Most Online (within 30 mins)
      7,748
    Meg Slack
    Newest Member
    Meg Slack
    Joined
  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    GliadinX


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Her result for the TTG Ab (IgA) was 19. Lab range 0.0 - 0.7. U/ml. 
    • trents
      Should I be screened for celiac disease?

      By trents · Posted

      TTG would refer to a blood antibody test. Not valid if you are already eating gluten free or mostly so. DQH would refer to a genetic test to see if you possess either or both of the two genes that have been connected most strongly to developing active celiac disease. The genetic test is more of a rule out measure than a diagnostic test as about 40% of the general population have one or both of those genes but only about 1% of the general population develops active celiac disease. If you don't have the genes but gluten causes you issues then the conclusion is NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. So, the genetic testing helps with a differential diagnosis. I...
    • Scott Adams
      gluten-free Canada finds

      By Scott Adams · Posted

      Tell him to get me a case...just kidding! I wonder why they are not labelled gluten-free here in the USA? They don't have gluten ingredients.
    • Pamela Kay
      Diagnosed gluten allergy but not Celiac

      By Pamela Kay · Posted

      Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting gluten out of your diet, such as cross contamination in the home kitchen (pots and pans, cutting boards, toaster, airborne flour). Don't feel you have to do everything at once, or let this overwhelm you. I've always said that going gluten free is a process, not a moment. The reason I mention this is that, if you think you are gluten-free, but...
    • Scott Adams
      Should I be screened for celiac disease?

      By Scott Adams · Posted

      The doctor was correct--if you are gluten-free the blood panel for celiac disease will not work, you would need to go on gluten challenge in order to be tested. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for...
×
×
  • Create New...