Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waking Up With "d" For 9 Months Now


marciab

Recommended Posts

marciab Enthusiast

Sorry to ask another poop question. But, I wondered if it was normal to wake up with "D". I never have it during the day, just first thing in the morning. No cramping either, just "D". I get every kind, so I won't even go there ... :P

I've been gluten-free since September last year. And 95% corn, dairy, soy and egg.

I'm not eating anything special right before bed either. Although because of my hypoglycemia I can not eat fruits until afternoon.

I have been drinking kefir for about a year now in order to get some probiotics in me, but gave it up finally two weeks ago. All this time I thought it was the kefir ...

My doctor told me that mine was probably from celiac since I have obviously been sick a very long time (17 + years - possible lifetime ? ). And I am not digesting food properly.

She also said that my hypoglycemia was from celiac since I can not absorb nutrients.

I am being referred to a research clinic to confirm celiac, so she said we will know more then.

On the upside, this may mean I can go ahead and eat ice cream ... :rolleyes:

Thanks ... marcia

I know our bodies process many things better while we are asleep, so is there a connection ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I can certainly relate. I get D often first thing in the morning, then a half hour later, then an hour later.

After that, I'm fine. No cramps, no aweful glutened feeling, just very loose bowels.

I had D off and on for most of my adult life (I'm 60 now) but have been gluten-free only since July this year. I just assumed it's going to take time, and maybe I'll never be completely "normal" - although I have days when I don't have D, usually its only for that one day or maybe two or three in a row. BUT, those brief normal days give me hope.

(I just loved kefir - but had to give it up when going dairy free - darn!) I never could take probiotics and only recently discovered the problem was that they contained one of my other food sensitivities - even dairy-free had corn products or soy. I finally found one that is safe for me and can now take them without have D immediately after. Corn can be a very difficult thing to avoid.

marciab Enthusiast

Artgirl,

Sorry to hear you are going through this too. Mine used to last longer too, but then I started getting just once or twice first thing in the morning ...

Can you tell me what probiotics you are taking ?

I read where miso, saeurkraut, and some other fermented foods have healthy bacteria too. I actually love the taste of the chick pea miso I picked up at my health food store. It is gluten-free, SF, CF, EG, and DF.

I would have thought my "D" would have cleared up too, but my doc has a good point.

Marcia

Nancym Enthusiast
(I just loved kefir - but had to give it up when going dairy free - darn!) I never could take probiotics and only recently discovered the problem was that they contained one of my other food sensitivities - even dairy-free had corn products or soy. I finally found one that is safe for me and can now take them without have D immediately after. Corn can be a very difficult thing to avoid.

I've been using my kefir grains in canned coconut milk, I get the kind without any preservatives. It tastes pretty good!

ArtGirl Enthusiast
Can you tell me what probiotics you are taking ?

FloraSmart by Renew Life. It's enteracoated tablets that don't dissolve until they are past the stomach. I had to order them on-line because neither Whole Foods or Wild Oats carries this, although they carry other Renew Life products.

I tried saurkraut and although I like it cooked, it was difficult to eat the stuff that was minimally heated and still really crunchy. I may look for chickpea miso. thanks.

Nancy - what are kefir "grains" ???

marciab Enthusiast

Artgirl, Nancy,

Here is a website that explains how to make kefir from fresh coconuts.

Open Original Shared Link

This is a really good website for other nutritional info too..

Thanks for probiotic name. I bought krissspkraut (sp) at my local grocery store. It was in the produce section, in a bag and being kept cold.

I saw a recipe for making your own kraut too. If you google "miso kefir sauerkraut" all together you'll get a lot of info on fermented foods.

Marcia

ArtGirl Enthusiast

Thanks, Marci


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

I have the same problem as you all do. I thought that it was really abnormal, so it's nice to know I'm not alone. From what I''ve read, probiotics should help out a great deal. Good luck everyone.

-Brian

Guest AutumnE

I did have this and I had eliminated corn, soy, and gluten but when I went on the paleo diet it goes away. I also had kind of a sore stomach ache the next morning. It has helped alot. I know its the diet since when I have corn or dairy it brings it back again. Im not sure which one it is.

marciab Enthusiast

Thanks for all of your replies. Sorry for the subject though ....

I was using kefir as a probiotic, so it can't be that. And it is still happening without the kefir, so it wasn't dairy.

I was hoping this was just a normal digestive issue for celiacs who's villi are flat, since I am not cramping. I have gastroparesis too, so maybe my body just doesn't process my foods until I am asleep ... Food definitely sits in my stomach and colon until then ...

Do any of you do this without any cramping ? Maybe this is my new norm ??? Perhaps this is an old lady thing :o

I am already off gluten, dairy, soy, corn and eggs, but I may have to start eliminating foods again to see if it makes a difference. BUMMER !!!

Anyone else ? Marcia

Guest AutumnE

When you say you are corn free? Do you take precautions to soaps, lotions, laundry detergent, medicines or vitamins, paper products, and washing off with baking soda and soaking of all your fresh fruits and veggies? Also do you use frozen veggies? What meats do you eat? So far the only meats I can tolerate is ground beef, foster farms chicken, and empire kosher chicken. So many products have corn and its not listed.

My biggest help is the avoiding corn section on the delphi forums, I thought I was corn free and found out I wasn't.

Dont buy into the old lady thing, its not normal to have diarrhea all the time. There has to be something bothering you. Gl in your searching. Have you tried eliminating legumes?

marciab Enthusiast

AutumnE,

Thanks for replying. I didn't realize corn could be such a problem ... Does this go for soy, eggs, and dairy too ??? Why not frozen veggies ? I eat these all the time ...

Can you tell me what the delphi forum is ? marcia

Edited to add - I'm sorry but, I don't have a brain anymore .... I am probably getting glutenned from the crackers or chips or something else I have been eating ...

I know I was glutenned last week since I was up till 6 am and then felt a little depressed for a few days.

Thanks for replying ... I feel like such an idiot ... Can I blame this on gluten too ? :blink:

January 18, 2007 - no longer have "D". Finally eliminated Kettle baked potato chips and Back to Nature rice crackers. I'm betting it was the chips ...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,275
    • Most Online (within 30 mins)
      7,748

    NPS3
    Newest Member
    NPS3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.