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Hi Everyone

aussiegirl17

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aussiegirl17 Rookie
aussiegirl17
Posted

Hello everyone I am a 17 year old female from Australia looking to chat with other teens round about the same age about living with celiac disease,

Cheers Aussiegirl

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Kassie Apprentice
Kassie
Posted

hey, welcome to the board! i'm sure you will meet people to talk to. i am 15 almost 16 and love to talk to other celiacs. feel free to e-mail me or pm me if you want. if you have any questions just ask :P

Anonymousgurl Contributor
Anonymousgurl
Posted

Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

aussiegirl17 Rookie
aussiegirl17
Posted
  • Author
Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

hey well basically this is my story from another one of my posts:

I started getting symptoms about 3 years ago, but took me a while to tell my mum because i was embarassed. basically everything i ate went straight through me. I went to a Dietician who suggested all these things and i can't remember how i directly got onto it, but through trial and error i discovered that when i didn't eat wheat/gluten i was absolutely fine. But because i hadn't been diagnosed i didn't stick to the diet properly and suffered for almost 2 and a half years. I had numerous blood tests and even produced a negative result from an endoscopy (small bowel biopsy). I kept returning to my doctor, who didn't seem to belive i had celiac disease and asking for more to be done because i knew that when i had no gluten i was absolutely fine but the slightest bit would trigger the symptoms again. I even went to an iridologist who told me i had an allergy to wheat without telling her a single thing about me. Finally i got sick of it all and went back to the doctor, who by now was a doctor i used to see before he was replaced by the doctor seeing me through my diagnosis, to write me a letter so i could join the coeliac society. He pulled up a blood test result from 2 years ago, highlighted in red, that tested for coeliac disease that basically proved i had it, the doctor was convinced anyway. I was of course upset that my previous doctor had neglected to tell me this. I am still puzzled as to why it was so hard to get a proper diagnosis, perhaps because i had half started a gluten free diet. The surgeon who performed the endoscopy told me to eat wheat before the test, but i couldn't because it made me so ill and i was attending school as well as a part time job.

so basically i've been half gluten free for 2 and half years and proper gluten free for almost a year now. But i still make mistakes and still get sick sometimes. There is quite a bit of gluten-free food you can buy from the supermarket over here, but i only live in a small town so there's not that much variety. It's still really difficult when i when i go out like shopping and i can't find anything to eat and to have to walk past macdonalds and KFC.

I'd love to hear your story, Aussiegirl

egiap10 Newbie
egiap10
Posted

hi, yeah im your age from australia also. i read your story, and its so similar to mine! its good to hear other peoples stories, so you know ur not the only one going through this. yeah some doctors and gastroenterologists(dunno how to spell it hah) refuse to accept you have it when you clearly do. and yeah haha when all your freidns go somewhere and you just drink water it isnt so good.. but its getting easier with age. are you doing the final exam/hsc for high school this yr?? ive been so sick with this im going to go so bad i hardly turn up to school anymore.. so any times ive been tempted to drop out.

Kassie Apprentice
Kassie
Posted

egiap10- I'm not from australia, but i just wanted to talk about the school stuff. Don't drop out! yes it might seem very tempting to you at some times, but in the long run it is not worth it. i too have missed so much school! i had to appeal (its when you have to go into this commitee and say you deserve your credit it) you have to do this if you miss too much school. during that whole proccess i was thinking it would be much easier to just give up, but they granted me credit and i have been able to keep my grades up! so anyways just thought i would reply ttyl

  • 2 weeks later...
Teku Apprentice
Teku
Posted

Hi i need more replys to my topic so check out the skate boarders only topic :) please

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Liz92 Rookie
Liz92
Posted

My story is that my uncle, cousin, Dad, and two brothers are Celiac so when I got symptoms I knew it as probably Celiac and to be sure I had a screening. All the doctors said it wasn't Celiac disease-they are stupid ninnys. My 15 yr. old brother, tho, he's stupid and aets gluten and suffers because he loves it to much. wierdo. BTW, I'm almost 15 and I'm from Utah.

:rolleyes: Lizzie

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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      By SilkieFairy · Posted

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