Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Celiac -- Need To Test My Two Children

Maureen73

Recommended Posts

Maureen73 Apprentice
Maureen73
Posted

Hi all -

I'm hoping you have help educate me a bit... I was diagnosed with celiac disease almost two years ago. My daughter, Emma, will be five in February and my son, Ryan, will be two in May. Neither of my children have been tested for celiac as their pediatrician has told me that as they are not presenting "gi problems", they do not need to be tested at this point.

I recently saw my gi doctor for my annual check up and he sternly reprimanded me for not having Emma tested. He said that Ryan will need to be tested once he is age two. He said it does not matter if they are presenting gi problems or not, they can still have celiac.

Since my pediatrician does not feel that the kids need to be tested, I want to go in there with the exact info on the bloodwork/tests that the kids will need to have done.

Are the bloodwork tests the same as on adults to identify celiac? Is it possible to have the celiac "gene" but not have celiac disease ever triggered? I am the only one in the house on a gluten free diet. Both kids are thriving and healthy (almost off the charts for height/size).

Sorry this is so long, I'm lost and am not sure what I need to do. I feel terrible that I haven't had Emma tested as of yet, but I have to admit I have a huge fear that the results will come back positive. I know how difficult it was for me at age 32 to change my eating habits and I can't imagine a child having to face those obstacles. Just breaks my heart.

Thanks for "listening" and for any information you can share.

Maureen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

maureen, can you get your gi to order the tests on your children? my kids' ped gi ordered the tests for our whole family even though we are not all his patients.

zachsmom Enthusiast
zachsmom
Posted

Yeah I can see where there would be a problem ... being they are doing well. But if you really want to see... ( have them tested... Can your doctor referr you to a doctor that will test the kids... The peditrician you have isnt sounding like he wants to help.... if your insurance covers the doctor he is referring... you too... ... But like we have said a lot ... its nice to know but THE DOWN SIDE TO KNOWING THIS IS ....... many folks are suffering more because the diagnosis is on the medical records... One lady here couldnt get life insurance..... I am not trying to sound like downer dawn on SNL >.. the girl who always has some negative thing to say... There is two sides to the diagnosis isssue that is all . One you want it for obvious reasons... and the second .. is you dont want it to ruin your medical insurance... But I guess if it boils down to they dont have it... god hopefully .. it wont be a problem,, hopefully they are fine and it is just you like you suspect... Alot of older doctors think that just because your not showing classic symptoms ... like underweight diareahha .. stomach bloating .. that you cant possibly have Celiac problems ... But this web sites proves that wrong. But I hope you have the best luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748
    Sgp
    Newest Member
    Sgp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.