Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Husband's Circumstantial Evidence


Ellie342

Recommended Posts

Ellie342 Newbie

I know my husband is thinking I'm a bit of a nut for suggesting he try a gluten-free diet. He wouldn't meet any diagnostic criteria for celiac based on his tests, but I feel like the sum total of the circumstantial evidence is accumulating:

- he has mild chronic IBS

- he has recurrent aphthous ulcers in his mouth

- he has mild psoriasis, and an uncle with severe psoriatic arthritis (I've read a study that says those psoriatic arthritis patients with positive anti-gliadin antibodies see improvement of their arthritis on gluten-free diets, even though they don't confirm positive for celiac on bipopsy or anti-ttg)

- he tests "equivocal" for anti-gliadin IgA (top of the "equivocal", or "iffy", range) but has negative anti-gliadin IgG

No one thing is that big a deal, but the sum total sure makes me suspicious. What do you all think?

Ellie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I think it can't hurt to try the gluten-free diet, what have you got to lose? It really might help, if your husband is willing to give it a good try, without cheating. And you're right, the combination of symptoms could be celiac disease or gluten intolerance.

If the gluten-free diet doesn't help, at least you'd be able to look elsewhere. By the way, those symptoms could also be caused by an intolerance to dairy or soy. Or a combination.

I hope that the gluten-free diet helps.

nikki-uk Enthusiast
I know my husband is thinking I'm a bit of a nut for suggesting he try a gluten-free diet. He wouldn't meet any diagnostic criteria for celiac based on his tests, but I feel like the sum total of the circumstantial evidence is accumulating:

- he has mild chronic IBS

- he has recurrent aphthous ulcers in his mouth

- he has mild psoriasis, and an uncle with severe psoriatic arthritis (I've read a study that says those psoriatic arthritis patients with positive anti-gliadin antibodies see improvement of their arthritis on gluten-free diets, even though they don't confirm positive for celiac on bipopsy or anti-ttg)

- he tests "equivocal" for anti-gliadin IgA (top of the "equivocal", or "iffy", range) but has negative anti-gliadin IgG

No one thing is that big a deal, but the sum total sure makes me suspicious. What do you all think?

Ellie

My hubby is a diagnosed coeliac but going gluten-free completely cleared his psoriasis (and eased his psoriatic arthritis) so it certainately can't hurt!! :)

happygirl Collaborator

I think that it would be worth it to have the full Celiac panel run, which includes the tTG test, which is more sensitive. After that, regardless of the results, it might be very well worth it to try the gluten free diet! There are many on this board who do not have an official diagnosis, but refer to themselves as "gluten intolerant"---they know they do better on the gluten free diet.

I think every single board member on here has been diagnosed with "IBS"....amazingly, the vast majority do not have these problems once on a strict gluten free diet.

Nancym Enthusiast

We get so many people with a positive dietary response that don't pass any clinical blood tests. If you could just get him to agree to a limited trial... it might convince him. But I would imagine it'll be hard to really get him to go along with the notion.

CMCM Rising Star

I don't know why so many people balk at testing out a gluten free diet......it's not like you're taking a dangerous drug or anything. Just a couple of weeks, a month, and you'll learn a lot. There are a LOT of nutritionists and doctors out there who feel gluten AND dairy are highly problematic and behind a huge number of things that ail us. They feel NONE of us should eat gluten and possibly dairy too. It's worth a try,and who knows, the psoriasis just might go away! Then the issue might become the question of whether or not eating gluten is a good trade off for having psoriasis and other things. And also the question of either celiac disease or gluten sensitivity remains. The latest book I just read claims that 80% of us are at the very least gluten sensitive, and that celiac disease is merely one extreme subset of the extensive group of people who are gluten sensitive. And there remains the question of intestinal damage occuring even if you don't have the celiac disease gene. Everything is not yet known about all this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.