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JerryK

Anyone Care To Guess...

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So to recap my Enterolab tests were

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 42 (Normal Range <10 Units)

Tissue Transglutaminase Stool Test

Fecal Antitissue Transglutaminase IgA 20 Units (Normal Range <10 Units)

Anyone out there with similar results from Enterolab have the official medically sanctioned blood tests and how did they compare? Or to rephrase: Anyone care to guess if I'll "fail" the standard blood test or not :unsure:


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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I don't have a guess for you but as a comparison, my husband's Enterolab tests were 18 for the gluten antibody test and 14 for the tTg test and his blood tests were normal.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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My numbers were around 71 and 25 respectively. I had positive blood tests, except for the Endomysial antibodies. You may or may not have a positive blood test, but its too hard to guess.

-Brian


Celiac Sprue

Multiple Food Allergies

Diagnosed June 2006

Stopped Eating June 2007

IV Nutrition: 6/27/07 - Present

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Jerry, since you've been on the gluten-free diet for a little while now, I'd guess they'd be negative.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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I think more doctors should listen to the patient and not rely soley on blood tests.

Example - my daughter had anti-endomeseal antibodies that barely registered - GI doc said they were as low as you get get and still be considered positive.

The biopsy however was conclusive with villous atrophy - the extent of which surprised the GI doc.

Even if you "fail" the standard blood test........if eating gluten free helps you then just think of it as eating healthy and using alternate flours.

Sandy


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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My numbers were around 71 and 25 respectively. I had positive blood tests, except for the Endomysial antibodies. You may or may not have a positive blood test, but its too hard to guess.

-Brian

Brian, did you decide to forgo the endoscope?? I'm not sure I want to undergo that...

It would seem if I have a positive Enterolab result and a positve blood test, which goes down

after you've been gluten-free for a while, that should be good enough..


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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So to recap my Enterolab tests were

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 42 (Normal Range <10 Units)

Tissue Transglutaminase Stool Test

Fecal Antitissue Transglutaminase IgA 20 Units (Normal Range <10 Units)

Anyone out there with similar results from Enterolab have the official medically sanctioned blood tests and how did they compare? Or to rephrase: Anyone care to guess if I'll "fail" the standard blood test or not :unsure:

Hi Jerry,

I had very similar result to yours: fecal antigliadin 27 units; fecal TTG 33. My conventional celiac blood tests were normal.

I started a trial gluten-free diet last month (on 12/15) and seem to be responding amazingly well to it so far, but I'm withholding judgement for the time being. :)

Good luck!

Alice

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Hi Jerry,

I had very similar result to yours: fecal antigliadin 27 units; fecal TTG 33. My conventional celiac blood tests were normal.

I started a trial gluten-free diet last month (on 12/15) and seem to be responding amazingly well to it so far, but I'm withholding judgement for the time being. :)

Good luck!

Alice

So, am I just wasting my time hoping for some agreement from the standard blood tests? It's hard to decide what to do...


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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So, am I just wasting my time hoping for some agreement from the standard blood tests? It's hard to decide what to do...

I think it's a very good idea to get the blood tests, so that you have a better sense of whether you have actual celiac disease or simply a gluten intolerence. As you're well aware, celiac disease is very serious...if it's not treated with a strict gluten-free diet it can lead to osteoporosis, cancer, etc. Do be aware, though, that if you're already gluten-free the results may not be accurate.

My own approach was to take a if/then approach: I was tested by enterolab, and I decided that if the results were positive, I'd 1) get a conventional blood test for celiac, and 2) do a trial strict gluten-free diet for at least 3-4 months. If the blood tests were positive, I'd get a biopsy.

I know that occasionally someone will be blood test negative but biopsy positive for celiac, but statistics do suggest that that is unusual. For me, getting the negative blood tests was proof enough that I don't have actual celiac disease (the biopsy is invasive and nasty and I'd prefer to avoid if if not necessary), but it is a personal choice.

I'm finding that the gluten-free diet is helping, and that fact, along with my enterolab results, suggests to me that I have a gluten intolerance. My next step is going to be to stick with the diet strictly for a few more months, and then do a gluten challenge. If eating gluten causes me to backslide, I'll have my answer.

In my opinion (and this is ONLY my opinion), the only difference between having a gluten intolerance and actual celiac disease is the potential seriousness of the consequences of eating gluten. If I had celiac disease, I would view it as potentially a matter of life or death to avoid gluten absolutely strictly. With a gluten intolerance, I think you can let the very occasional slip-up slide without seriously endangering your health.

I think this is something everyone has to work out for themselves, however.

Anyway, good luck! How's the gluten-free diet working for you, BTW? iI think you strated around the same time I did.

Alice

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Anyway, good luck! How's the gluten-free diet working for you, BTW? iI think you strated around the same time I did.

Alice

Hi, thanks for your comments. The gluten-free diet seemed to help huge with my gastro symptoms and energy levels. I stayed on it for a couple weeks, but have since gone back to a normal diet, because I want to chase blood tests and possible biopsy. I felt horrid when I went back on. Terribly depressed, lethargic, irritable and gastro symptoms came back. I plan to tough it out for several weeks and go for a blood test. Jerry


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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I think it's a very good idea to get the blood tests, so that you have a better sense of whether you have actual celiac disease or simply a gluten intolerence. As you're well aware, celiac disease is very serious...if it's not treated with a strict gluten-free diet it can lead to osteoporosis, cancer, etc. Do be aware, though, that if you're already gluten-free the results may not be accurate.

My own approach was to take a if/then approach: I was tested by enterolab, and I decided that if the results were positive, I'd 1) get a conventional blood test for celiac, and 2) do a trial strict gluten-free diet for at least 3-4 months. If the blood tests were positive, I'd get a biopsy.

I know that occasionally someone will be blood test negative but biopsy positive for celiac, but statistics do suggest that that is unusual. For me, getting the negative blood tests was proof enough that I don't have actual celiac disease (the biopsy is invasive and nasty and I'd prefer to avoid if if not necessary), but it is a personal choice.

I'm finding that the gluten-free diet is helping, and that fact, along with my enterolab results, suggests to me that I have a gluten intolerance. My next step is going to be to stick with the diet strictly for a few more months, and then do a gluten challenge. If eating gluten causes me to backslide, I'll have my answer.

In my opinion (and this is ONLY my opinion), the only difference between having a gluten intolerance and actual celiac disease is the potential seriousness of the consequences of eating gluten. If I had celiac disease, I would view it as potentially a matter of life or death to avoid gluten absolutely strictly. With a gluten intolerance, I think you can let the very occasional slip-up slide without seriously endangering your health.

I think this is something everyone has to work out for themselves, however.

Anyway, good luck! How's the gluten-free diet working for you, BTW? iI think you strated around the same time I did.

Alice


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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