Physical Smell When Glutened

[beautifully-quiet]

kind of embarassing, but here it is:

I am very certain that I emit some kind of smell from my skin if I have been glutened, guaging other people's reactions to me, although no one will come out and tell me. Problem is, I don't always feel glutened when this happens, and I also don't know what exactly what the 'sick' smell is like, since I am completely unaware of it.

does anyone else know of this symptom?

[gayle]

  beautifully-quiet said:

kind of embarassing, but here it is:

I am very certain that I emit some kind of smell from my skin if I have been glutened, guaging other people's reactions to me, although no one will come out and tell me. Problem is, I don't always feel glutened when this happens, and I also don't know what exactly what the 'sick' smell is like, since I am completely unaware of it.

does anyone else know of this symptom?

Have you ever been tested for Pyroluria? Most pyrolurics are celiac. Pyroluria has it's own set of symptoms and one of them is a peculiar body odor. Pyroluria is a genetic deficiency of B6, zinc and arachidonic acid. It was only discovered in the 1960's and therefore most people do not know that they have it,. It is easy to treat, but can ruin a person's life if it is not diagnosed.

Gayle

[beautifully-quiet]

  gayle said:

Have you ever been tested for Pyroluria? Most pyrolurics are celiac. Pyroluria has it's own set of symptoms and one of them is a peculiar body odor. Pyroluria is a genetic deficiency of B6, zinc and arachidonic acid. It was only discovered in the 1960's and therefore most people do not know that they have it,. It is easy to treat, but can ruin a person's life if it is not diagnosed.

Gayle

wow, no, I had never heard of it. But I have just visited a website and I have most of the symptoms they described! next is figuring out how to treat it. Although, could it be a coincidence that I have 5 or 6 of the eight symptoms?

poor stress control, (usually)

nervousness (sometimes, usually coinciding with glutening)

anxiety (sometimes, coinciding with glutening)

mood swings (hmm, yep, a lot, I think)

severe inner tension (not sure of this one, maybe that's no)

episodic anger (an explosive temper) (depends on amount of stress)

poor short-term memory (I can remember fine at work and then will forget wierd stuff when not really concentrating)

and depression. (off and on for 10 years, I guess)

Most pyrolurics exhibit at least two of these problems.

thanks for the tip, gayle. going to do more research. =)

[halfcrazy]

hi, this is my first post but I just had to add to my two cents. I know when I am glutened I notice that my body odor is different and I find the smell of myself offensive. Not sure why this happens.

Irene

[Fiddle-Faddle]

I don't know if this helps you any, but I've noticed that my body odor is very different--and stronger--when I am stressed, ill, or injured.

[Rusla]

Welcome halfcrazy, and Beautiful. I am all crazy but that is neither here nor there. Can anyone describe this smell to me? Is it a rather sickening, hard to describe almost sickening carmel musty smokey smell?

[beautifully-quiet]

Hi Rusia,

I am not sure what it smells like, although I think it must be sickening because I have gotten quick, 'WTF' glances in the past. My biggest fear is that it resembles, er, poo. If it helps, my ex-boyfriend has told me that I have had 'sick-breath' as we got to call it, which he described as 'really pretty bad'. for me, I don't know what that was like to be around. He has celiac too, and his sick-breath would remind me of spicy rank sausage (since we're on the body-odor/glutening topic).

It's really torturous that neither he nor I can smell these things on ourselves! It would make things easier!

[Rusla]

I find it a hard smell to pin down. But I can smell it on myself and it makes me feel very ill when it happens. When I haven't had a glutening it is not there. I smelled like that for a very long time before I was gluten-free. I mainly smelled it after I urinated.

[Jestgar]

I have to qualify my next statement by saying that I am a science nerd.

This is way frickin' cool you guys! The idea that your body is trying to do something to protect itself (rid toxins through the skin? make you stinky so you don't want to keep eating?) is just so cool.

Ok, sorry, I'll try to put that nerdliness under control again.

[scissorhappygirl]

I get some serious funk when I get glutened, mostly in the feet/armpit areas. Your body is desperately trying to get rid of the toxins being emitted from your gut, causing that awful smell. That's one of my signs that I've been glutened. I drink tons of water and work out. Saunas are good, too.