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Information On Dh

PeggyV

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PeggyV Apprentice
PeggyV
Posted

Hi everyone

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Sophiekins Rookie
Sophiekins
Posted

Personally, I find that my DH always looks worst about 7-10 days after I get glutened - it itches like crazy the day I get glutened, and then goes red and blistery a few days later. Medically speaking, gluten can remain active and harmful in your bloodstream for up to 30 days following a glutening - so it's possible you are reacting to something that happened earlier, or that you are missing something in your current diet. Helpful, I know. . . :P

nora-n Rookie
nora-n
Posted

The IgA on the DH lesions is used up, so the biopsy must be done on healthy skin close to it.

IgA gets used up they say.

I wonder if that also applies to other IgA tests...there are some people that make less IgA and it might get used up in teh process.......

The biopsy was done incorrect. Just google for how they should do it.

nora

SpikeMoore Apprentice
SpikeMoore
Posted

Hi Peggy

I had a very similar experience. My GP biopsied a lesion, not the clear skin next to it, and it came back "inconclusive", but like you, I was told that it could be DH. And, like you, I did a little research and the light bulb went on as I linked the digestive symptoms, weight loss, anemia etc. So I started gluten free immediately and had no more episodes. And I felt great and gained 5 pounds. I had been getting an outbreak every 2 weeks or so for 5-6 months.

I went gluten-free for 3 weeks, ate gluten for 4-5 days and had a negative blood test. GP concluded that I do not have celiac. As you will read from the posts here, you cannot draw that conclusion from a negative blood test. I too, felt like a hypochondriac.

I'm not going back on gluten to get a biospy and I'm not going back to part with another chunk of my bottom.

Basically, do what works for you and continue to read the posts from this board. It has helped me immeasurably.

PeggyV Apprentice
PeggyV
Posted
  • Author
Hi Peggy

I had a very similar experience. My GP biopsied a lesion, not the clear skin next to it, and it came back "inconclusive", but like you, I was told that it could be DH. And, like you, I did a little research and the light bulb went on as I linked the digestive symptoms, weight loss, anemia etc. So I started gluten free immediately and had no more episodes. And I felt great and gained 5 pounds. I had been getting an outbreak every 2 weeks or so for 5-6 months.

I went gluten-free for 3 weeks, ate gluten for 4-5 days and had a negative blood test. GP concluded that I do not have celiac. As you will read from the posts here, you cannot draw that conclusion from a negative blood test. I too, felt like a hypochondriac.

I'm not going back on gluten to get a biospy and I'm not going back to part with another chunk of my bottom.

Basically, do what works for you and continue to read the posts from this board. It has helped me immeasurably.

Thanks, I agree with you. Even though I would like to know for sure, I do not want to go back on a gluten diet to prove it. I am thankful I dont have past problems and will continue with this healthy diet.

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    • SamAlvi
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      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
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      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
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