Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did My Dr. Order The Right Tests?


cornflake girl

Recommended Posts

cornflake girl Newbie

After poking around a bit on this site, I suspect that I may have celiac disease. I went to a regular md who agreed to test me for it, but since it seems that everyone has such a hard time getting a diagnosis, I wanted to double check on what is being tested.

He ordered these blood tests:

CBC

T4

TSH

Serum iron, TIBC

Serum calcium

total protein

albumin

And checked my stool for fat content

Of course, the day I took my stool sample I had the first solid stool that I've had in months. Does that make a difference?

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

maybe someone can correct me if I'm wrong, but that list doesn't have any of the standard antibody tests like IgG's or IgA's for antigliandin or antireticulin or the tTg antibodies....

Susan123 Rookie

I agree. You need to ask for the Celiac Sprue blood test that test for IgA, IgG and Tissue Transglutimase. The tests you list above are helpful after diagnosis in determining if you are getting the right nutrients and that your body is getting enough iron. In other words, in determining your overall health but in not pinpointing Celiac.

cornflake girl Newbie

You guys are so helpful, thank you! I'm so disappointed that I specifically asked to be tested and my dr. didn't know which tests to order. grrrr. I'll be requesting these tests when I go for my follow up. Thanks again!

cornflake girl Newbie

ok, I got my results back and I'm confused. My numbers don't look like any that I've seen mentioned here. The dr. said they are fine.

Here they are:

IgA--normal is 81-463 and mine is 170

IgG--normal is 694-1618 and mine is 1479

help! doies this make any sense?

seeking-wholeness Explorer

I wonder if your doctor ordered tests for TOTAL serum IgA and IgG, instead of specifically ANTI-GLIADIN IgA and IgG. If this is the case, don't despair; it is actually very important to know the total values as well, especially for IgA. You'll want to ask your doctor about this and request testing for ANTI-GLIADIN IgA and IgG and anti-tissue transglutaminase antibodies, if necessary. I hope this helps!

cornflake girl Newbie

Thank you, again. I can't believe that my dr. has no idea how to test for this. I'm going to go to someone else who I found recommended on this site. He had the nerve to tell me that if my chronic diarrhea is bothersome that I should just take some immodium since he could find nothing wrong with me. Um, thanks for helping me solve my problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.