Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Services Personnel


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

Hi everyone. Since I go to lunch in five minutes, I figured that I'd take the time to vent before I left. I'm just frustrated and annoyed when it comes to pretending to have the patience that I've lacked since the beginning of time.

I have distributed celiac disease literature to two of the Food Service workers at my college. Only a selective few have received copies of the paperwork, so they are still asking basic questions. One was so distraught when she packed my lunch for my cross country meet that she gave me A SALAD WITHOUT DRESSING. No drink-- but when I was handed Powerade, I saw, to my dismay, that it contains MODIFIED FOOD STARCH. I then ate an orange with my naked salad.

I'm sticking to communicating exclusively with the Food Services director. People keep asking me if I'm a transfer student, etc. etc. Some of them don't even know who I am or have seen my dietary restrictions papers that are plastered all over the kitchen. There is so much more to this story, but I have to eat and go to class now.

It sometimes bothers me that people cannot remember basic information (when it's constantly repeated), and don't even know how long I've been here on a tiny campus of 1100 students.

I hate explaining things.

Please help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Talk with the director about your concerns that people don't know what's going on? Direct them to the signs posted everywhere?

Remember that they may have been dealing with celiac disease - and not even as something they have - for only the length of time you've been there. And you're a very small part of their day. In five minutes a day (and that's giving, on this scale of things, a LOT of time to one person), they're not going to get it any time quickly.

I'd vote for keeping up with the director and letting him know that you aren't getting adequately fed!

celiac3270 Collaborator

I have years before I deal with this, but just to let you know, all flavors of both Powerade and Gatorade are gluten-free.

Guest ~wAvE WeT sAnD~

Thanks celiac3270! So Powerade has corn starch?

angel-jd1 Community Regular

I'm not sure what group your college uses as their catering services. I contacted Sodhoux and they sounded like an awesome group. Possibly you can try contacting the main company they are contracted with and try to get some results that way.

When they give you food that isn't appropriate bring it to their attention and then they can learn. If you don't bring it up, they think everything is fine.

celiac3270 is right, powerade and gatorade are both gluten-free. :)

I hope things get easier.

-Jessica :rolleyes:

Guest ~wAvE WeT sAnD~

*Sigh* An update on the rest of the day...

I went to lunch. It was awful in the beginning, because no one had received my message telling them I'd be there. So I stood there, way too PMSed (sorry celiac3270--Tiffany will understand) to ask. I left the kitchen, already frustrated and angry, on the verge of tears. I then tried to have some tea, but the hot water pot wasn't there. I decided that was it, and I began to cry. My boyfriend caught up to me and told me that I shouldn't be upset. I hate when other people tell me how I should feel! So I told him to hold me and stop talking. He later said "it's period time. I understand." I am making packets for the staff sometime this week.

Afterward, I ate some deli meat, a piece of lettuce, and cheese. I was starving by 4:00, so I had a scoop of Arrowhead Mills puffed corn, God's gift to regularity. I then felt better, and ran 3.1 miles to make up for my very s**** day.

Thank you all for listening.

I have a few questions...what does everyone do for labels that say "spices?" How do you know whether or not the spices don't have wheat fillers?

Thank you!

tarnalberry Community Regular

I hate it when men assume that nothing else is allowed to bother you around your period. Honestly, I don't think people can understand how it feels to have a basic human need threatened. Do keep talking to them - you've got to stick it out though, and not walk out. Because you walked out, they don't know there was a problem. I understand why - oh I know the feeling! - but in the end, it just makes it worse.

As for spices... if it just says ", spices," I assume it's not safe and call.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Spices can have gluten so you need to call the company........unless of course, they're in a product made by a company like Kraft; one that clearly labels gluten.

Sorry you had a bad day.....and too bad that the kitchen staff isn't more understanding of celiac disease

coin-op Newbie

to answer first post:

bring your own food! Why would you trust someone who gets paid minimum wage and doesn't care? it is your body and your health, only trust yourself.

-cass

astyanax Rookie

yeah i hate to say it, but in college i just had to make my own food. i barely ate at the dining hall, they promised me gluten-free food and never produced, and in retrospect (i was diagnosed my freshman year) a lot of the food i ate then i never would now. there's too much cross contamination in those kinds of settings (if your dining hall is like mine was) and i was much better off when i finally moved off campus my junior year.

Guest ~wAvE WeT sAnD~

Coin-Op:

I see what you are saying, but I just wanted to let you know that my patience with the Food Services Personnel has prevailed. They have my gluten-free breads, pastas, cooking appliances, and food station set up for me.

I'm sorry if you're had negative experiences with other people--I don't like putting my health in someone else's hands, but, for once, it worked

:)

Stay Positive,

Alexolua Explorer

Great job Jill! Much better to try and educate others, than just not try. =)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.