Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy


Moondanse

Recommended Posts

Moondanse Explorer

Hi guys-

I had my biopsy today. The report says:

Nodularity and atrophy of the first part of the duodenum and second part of the duodenum compatible with duodentis, ? celiac sprue biopsy.

Otherwise normal egd to third part of duodenum

I'm not quite sure what that all means. But, the doctor said that between the scope today, the fact that I got sick after reintroducing gluten and the history of gastro issues, it's likely to be Celiac just a mild case. I guess that we'll see when the biopsy comes back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome to the Club! :)

I am sure that you will learn more when the biopsy returns and you can sit and chat with your doctor.

I just wanted to add one thing. There is no "Mild Celiac". You either have it or you don't. And, by what you wrote, you have Celiac.

The "mild" is referred to the amount of damage done to you intestines. So consider yourself lucky that you were diagnosed without a great deal of damage. If you do well on the diet, you recovery time will be less than some.

I am sure that you find this as a relief. You can control your health by a diet change, rather than taking pills for the dreaded other ailments.

I am happy for you.

Lisa

happygirl Collaborator

Moondanse:

I second what Lisa said. Definitely no "mild" Celiac....its like pregnancy: either you are or you aren't. Now, symptoms can vary and damage can vary (however, the damage is patchy, and could have been more severe in another place)...so in terms of that, yes, it could be "mild" or "severe." But Celiac is Celiac is Celiac. Welcome to the club :)

If they could see the atrophy, that is pretty impressive. A lot of times they can't, and it looks "normal"...then the biopsy comes back positive.

Laura

Ursa Major Collaborator

I second (third? :unsure: ) what the others said. If the damage is visible to the naked eye without a microscope, there must actually be considerable damage. I hope you won't wait for the 'official' results before going back to the gluten-free diet. The sooner you heal that damage the better.

Well, now at least you know. It is always better to know than having to guess at a problem.

psawyer Proficient

The description is a definitive diagnosis of celiac disease. If there is sufficient damage to the villi that it can be seen with the naked eye during the endoscopy, then there is no doubt. As others have said, mild can only refer to the amount of damage already sustained. Celiac does not have shades of gray--if you have it, you have it.

All that said, the disease can be managed by following a gluten-free diet at all times. This board, and the people here, are great resources to help you do that. Welcome aboard; you are among friends here.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,274
    • Most Online (within 30 mins)
      7,748

    nanajan1993
    Newest Member
    nanajan1993
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...