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Colonoscopy?

Terch

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Terch Apprentice
Terch
Posted

Hi,

I had an endoscopy that was negative for Celiacs. After the endoscopy I went gluten free because I needed to try somthing to help myself. I have been gluten free since September and have noticed a huge improvement in my health...which by the way I felt so ill that I no longer recognized my life. My gastro said he could do a colonoscopy if I wished to have one since he has since diagnosed me with IBS and I know that IBS stands for "IT"S BULL poop" so my question is this...

Can celiacs only be diagnosed with an endoscopy or can the damage also show up in the large intestine and be viewed with a colonoscopy. I am not sure whether or not I would atually do it as I believe that no matter what I will stay away from gluten regardless of the diagnosis but just wondering if any of you know whether they can see celiacs or villi damage with a colonoscopy?

Thanks

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lovegrov Collaborator
lovegrov
Posted

A colonoscopy cannot diagnose celiac. The damage is in the small bowel.

richard

LyndaCanada Rookie
LyndaCanada
Posted

Actually, they can still see flattened villi on a colonoscopy, in my case they did I had a colonscopy first and they could see the flattened villi and they wrote "strong suggestion of Celiac Disease" on my biopsy report. My doctor then ordered the blood test that came back negative. They did eventually do and endoscopy after I had eaten gluten-free for about 2-3 weeks. They could still see the damage but it did show signs of healing.

Lynda

chocolatelover Contributor
chocolatelover
Posted

I was under the impression that they can only see the damage done to the small intestine, since that it what celiac primarily affects. Having just had a colonoscopy this week, I highly recommend that you not have one unless you or your doctor think it's absolutely necessary. The colonoscopy isn't going to help with a celiac diagnosis. I say that if you feel that much better being off gluten, then that is diagnosis enough!

ElizabethN Apprentice
ElizabethN
Posted

I personally would not do it unless you have to for another reason. I had two done before I was 23 and the prep is terrible. And the general anesthesia didn't treat me so well either. From everything I have read/heard they need to biopsy the small intestine to diagnose.

They never diagnosed me (looking in the wrong end I guess) but I diagnosed myself and feel worlds better. Family members have been diagnosed so I have no doubt anyways, but I think most people would agree if you feel better then that is all you need.

LyndaCanada Rookie
LyndaCanada
Posted

Yes, I would say if you DON'T have to have a colonoscopy, then don't it's truly awful. The preparation involved with drinking all kinds of horrible stuff not to mention the enema is HORRENDOUS!!

I think in my case they were trying to rule out a colan infection, Colitis, Chrohn's Disease and Cancer hence why the doctor ordered the colonoscopy first.

Lynda

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      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Headaches / Migraines and Hypoglycaemia

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    • trents
      Headaches / Migraines and Hypoglycaemia

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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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