Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy?


Terch

Recommended Posts

Terch Apprentice

Hi,

I had an endoscopy that was negative for Celiacs. After the endoscopy I went gluten free because I needed to try somthing to help myself. I have been gluten free since September and have noticed a huge improvement in my health...which by the way I felt so ill that I no longer recognized my life. My gastro said he could do a colonoscopy if I wished to have one since he has since diagnosed me with IBS and I know that IBS stands for "IT"S BULL poop" so my question is this...

Can celiacs only be diagnosed with an endoscopy or can the damage also show up in the large intestine and be viewed with a colonoscopy. I am not sure whether or not I would atually do it as I believe that no matter what I will stay away from gluten regardless of the diagnosis but just wondering if any of you know whether they can see celiacs or villi damage with a colonoscopy?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

A colonoscopy cannot diagnose celiac. The damage is in the small bowel.

richard

LyndaCanada Rookie

Actually, they can still see flattened villi on a colonoscopy, in my case they did I had a colonscopy first and they could see the flattened villi and they wrote "strong suggestion of Celiac Disease" on my biopsy report. My doctor then ordered the blood test that came back negative. They did eventually do and endoscopy after I had eaten gluten-free for about 2-3 weeks. They could still see the damage but it did show signs of healing.

Lynda

chocolatelover Contributor

I was under the impression that they can only see the damage done to the small intestine, since that it what celiac primarily affects. Having just had a colonoscopy this week, I highly recommend that you not have one unless you or your doctor think it's absolutely necessary. The colonoscopy isn't going to help with a celiac diagnosis. I say that if you feel that much better being off gluten, then that is diagnosis enough!

ElizabethN Apprentice

I personally would not do it unless you have to for another reason. I had two done before I was 23 and the prep is terrible. And the general anesthesia didn't treat me so well either. From everything I have read/heard they need to biopsy the small intestine to diagnose.

They never diagnosed me (looking in the wrong end I guess) but I diagnosed myself and feel worlds better. Family members have been diagnosed so I have no doubt anyways, but I think most people would agree if you feel better then that is all you need.

LyndaCanada Rookie

Yes, I would say if you DON'T have to have a colonoscopy, then don't it's truly awful. The preparation involved with drinking all kinds of horrible stuff not to mention the enema is HORRENDOUS!!

I think in my case they were trying to rule out a colan infection, Colitis, Chrohn's Disease and Cancer hence why the doctor ordered the colonoscopy first.

Lynda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,190
    • Most Online (within 30 mins)
      7,748

    MISTERF
    Newest Member
    MISTERF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.