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Colonoscopy?

Terch

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Terch Apprentice
Terch
Posted

Hi,

I had an endoscopy that was negative for Celiacs. After the endoscopy I went gluten free because I needed to try somthing to help myself. I have been gluten free since September and have noticed a huge improvement in my health...which by the way I felt so ill that I no longer recognized my life. My gastro said he could do a colonoscopy if I wished to have one since he has since diagnosed me with IBS and I know that IBS stands for "IT"S BULL poop" so my question is this...

Can celiacs only be diagnosed with an endoscopy or can the damage also show up in the large intestine and be viewed with a colonoscopy. I am not sure whether or not I would atually do it as I believe that no matter what I will stay away from gluten regardless of the diagnosis but just wondering if any of you know whether they can see celiacs or villi damage with a colonoscopy?

Thanks

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lovegrov Collaborator
lovegrov
Posted

A colonoscopy cannot diagnose celiac. The damage is in the small bowel.

richard

LyndaCanada Rookie
LyndaCanada
Posted

Actually, they can still see flattened villi on a colonoscopy, in my case they did I had a colonscopy first and they could see the flattened villi and they wrote "strong suggestion of Celiac Disease" on my biopsy report. My doctor then ordered the blood test that came back negative. They did eventually do and endoscopy after I had eaten gluten-free for about 2-3 weeks. They could still see the damage but it did show signs of healing.

Lynda

chocolatelover Contributor
chocolatelover
Posted

I was under the impression that they can only see the damage done to the small intestine, since that it what celiac primarily affects. Having just had a colonoscopy this week, I highly recommend that you not have one unless you or your doctor think it's absolutely necessary. The colonoscopy isn't going to help with a celiac diagnosis. I say that if you feel that much better being off gluten, then that is diagnosis enough!

ElizabethN Apprentice
ElizabethN
Posted

I personally would not do it unless you have to for another reason. I had two done before I was 23 and the prep is terrible. And the general anesthesia didn't treat me so well either. From everything I have read/heard they need to biopsy the small intestine to diagnose.

They never diagnosed me (looking in the wrong end I guess) but I diagnosed myself and feel worlds better. Family members have been diagnosed so I have no doubt anyways, but I think most people would agree if you feel better then that is all you need.

LyndaCanada Rookie
LyndaCanada
Posted

Yes, I would say if you DON'T have to have a colonoscopy, then don't it's truly awful. The preparation involved with drinking all kinds of horrible stuff not to mention the enema is HORRENDOUS!!

I think in my case they were trying to rule out a colan infection, Colitis, Chrohn's Disease and Cancer hence why the doctor ordered the colonoscopy first.

Lynda

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      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
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      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
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      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

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    • Aretaeus Cappadocia
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      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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