Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy?


Terch

Recommended Posts

Terch Apprentice

Hi,

I had an endoscopy that was negative for Celiacs. After the endoscopy I went gluten free because I needed to try somthing to help myself. I have been gluten free since September and have noticed a huge improvement in my health...which by the way I felt so ill that I no longer recognized my life. My gastro said he could do a colonoscopy if I wished to have one since he has since diagnosed me with IBS and I know that IBS stands for "IT"S BULL poop" so my question is this...

Can celiacs only be diagnosed with an endoscopy or can the damage also show up in the large intestine and be viewed with a colonoscopy. I am not sure whether or not I would atually do it as I believe that no matter what I will stay away from gluten regardless of the diagnosis but just wondering if any of you know whether they can see celiacs or villi damage with a colonoscopy?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

A colonoscopy cannot diagnose celiac. The damage is in the small bowel.

richard

LyndaCanada Rookie

Actually, they can still see flattened villi on a colonoscopy, in my case they did I had a colonscopy first and they could see the flattened villi and they wrote "strong suggestion of Celiac Disease" on my biopsy report. My doctor then ordered the blood test that came back negative. They did eventually do and endoscopy after I had eaten gluten-free for about 2-3 weeks. They could still see the damage but it did show signs of healing.

Lynda

chocolatelover Contributor

I was under the impression that they can only see the damage done to the small intestine, since that it what celiac primarily affects. Having just had a colonoscopy this week, I highly recommend that you not have one unless you or your doctor think it's absolutely necessary. The colonoscopy isn't going to help with a celiac diagnosis. I say that if you feel that much better being off gluten, then that is diagnosis enough!

ElizabethN Apprentice

I personally would not do it unless you have to for another reason. I had two done before I was 23 and the prep is terrible. And the general anesthesia didn't treat me so well either. From everything I have read/heard they need to biopsy the small intestine to diagnose.

They never diagnosed me (looking in the wrong end I guess) but I diagnosed myself and feel worlds better. Family members have been diagnosed so I have no doubt anyways, but I think most people would agree if you feel better then that is all you need.

LyndaCanada Rookie

Yes, I would say if you DON'T have to have a colonoscopy, then don't it's truly awful. The preparation involved with drinking all kinds of horrible stuff not to mention the enema is HORRENDOUS!!

I think in my case they were trying to rule out a colan infection, Colitis, Chrohn's Disease and Cancer hence why the doctor ordered the colonoscopy first.

Lynda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      10

      Related issues

    2. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    3. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      11

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      1

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,451
    • Most Online (within 30 mins)
      7,748

    croiduire
    Newest Member
    croiduire
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      I've added NAC, N-Acetyl Cysteine; "crucial for replenishing glutathione—the body's master antioxidant." I used Clear Eyes 1% NAC lubricating eye drops for several years until the FDA forced them off the market.  In 2015 I had cataracts in bofh eyes.  In 2019 my left eye was clear, right eye was improved.  They are back now.  I discovered new companies with the drops at higher NAC but went with 500 mg NAC capsules.  Spread the cheer 🤓. My impression so far is the NAC is doing good.  Best with meal.
    • Known1
      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust.  Even so, I am trying to play things as safe as possible for at least the next 6-months.  With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza.  😊  I will likely bump into my neighbor's mom sometime next week.  She shuttles my neighbor's son, a freshman, to and from high school.  As mentioned, she is very kind so I am sure she will understand.  Heck, at least it went back to her family members and not in the trash.
    • Jmartes71
    • knitty kitty
      @Colleen H, How are you doing?  I hope you're improving. Yes, I react to gluten free products with corn in them.  Segments of the protein in corn are the same as protein segments in gluten.  So I react as though I've eaten gluten if I eat anything with corn.   I take a combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 together.  These act as a pain reliever as good as any over the counter pain reliever.  They won't hurt the stomach like aspirin or acetaminophen.   Thiamine will help nausea, anxiety, constipation, and headache.  Pyridoxine B6 and B12 will help with the pins and needles.  Magnesium helps work with thiamine to relieve symptoms. I also take a B Complex to boost absorption not absorbed from foods.  Niacin B3 helps with the anxiety, too.   Best wishes.
    • Jmartes71
      I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.