Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance....but Not In Argentina


mastevano

Recommended Posts

mastevano Newbie

Hello Everyone!

I am newbie here! This is a wonderful forum w/tons of good info.

Anyway, about 2 years ago, I started feeling a lot of tightness in my lungs/chest area - almost a suffocating feeling. It felt like an elephant was always standing on my chest, or like someone stuffed my lungs with cotton balls. It took my a while to figure out what was wrong w/me. Eventually I found out it was a gluten intolerance.....but I'm still trying to figure it out.

I just came back from a 10 day trip to Argentina where I at bread with every meal....and had no issues! The day I got back I ate a bagel and felt HORRIBLE! That feeling in my chest came back and it didn't go away for a few days.

Does anyone know why I could eat bread in Argentina and not here in the US?? I'm starting to think that maybe it isn't a Gluten Intolerance but some sort of other intolerance (preservatives, or something like that). If anyone has any feedback it would be great!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Could it be a different type of grain?

Have you been tested? You might get more luck in the Coping With category! Good luck.

Nantzie Collaborator

I was thinking the same thing as Lorka. Wondering if it was a different type of grain; a no- or low-gluten grain maybe? I know a lot of people here have enjoyed Chebe bread, which is a tapioca (manioc) bread common in Brazil. www.chebe.com

Or maybe you're having an issue with more super-processed US baked goods rather than unprocessed homemade baked goods.

My experience when we visited several years ago in Germany (where my husband's mom is from) was that I was sick as a dog. They had fresh, local, homemade bread 4-5 times a day- every day. It was so delicious, but to this day they think I'm 'not quite right'. I was emotional, exhausted and brain-foggy the entire time I was there. It was one of those times for me before I went gluten-free where I was SOOOOOO sick.

I would definitely ask some questions of the people you stayed with. Maybe they use different flours or mixes?

Nancy

Mango04 Enthusiast

I'm just speculating here, but I believe it's possible that wheat has a much lower gluten content in some foreign countries. Add on the fact that the gluten content of a bagel is particularly high, and your reactions might make sense. I don't have research or links to back this weird theory up, but maybe some people who have read "Dangerous Grains" or other similiar works can pop in and either further explain this or tell me I'm totally off. :)

  • 1 year later...
Morris Newbie

Given the high level of awareness about Celiac here in Argentina, I can tell with great certainty that the bread does, in fact, contain as much gluten as anywhere else.

ShayFL Enthusiast

Is it just bagels? Awhile ago a study came out that said that eating a bagel for breakfast could cause IBS symptoms. Something about bagels......

  • 2 months later...
land-turtle Newbie

Interesting, these are the kinds of stories that I search for, because they are my same experience. When I lived in Venezuela I always felt good, coming home to stay during the summer I would gain weight and was so lazy, I thought it was the junk food my grandmother would feed me. I moved back to the states and my weight continued to balloon and my health deteriorated, all the while I blamed myself and my lifestyle, after I got arthritis I had a "gauge" to tell me which foods would make me sick but I thought it was preservatives and soy. On a trip to Cancun, I got better, and had more energy, but the trip was only a week. I thought that maybe they had better vitamins in their fruit. I ate bread the whole time. Then I progressively got worse until a doctor finally diagnosed me with celiac disease. On a trip to Guatemala, a maid accidently put wheat flour in the chicken and rice but I didn't even get sick even though I ate a lot. I came home from there and took 2 bites of some steak at the church until I realized OMG it had gluten in it. I was sick all night and had to go for more antibiotics for my arthritis, it's almost 7 months later and I am just finally getting better. I'm telling you folks, there's something here, but how are we going to prove this. My heart hurts for the Americans that their health is in jeopardy. Does anyone know of a reason the wheat is different here? Is it the Genetically modified wheat that is the problem? But don't they grow that also in Central and South America?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.