Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplements


Katie618

Recommended Posts

Katie618 Apprentice

---


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Katie,

There are two possibilities in this situation. Acidopholous is a probiotic, and they can help to get rid of bad bacteria and toxins from your intestine. This cleansing process can last for 2-10 days, and cause cramping, bloating, headache, diarrhea, and constipation. Even though it is uncomfortable, in the end it is a good thing. I went through this process about a month ago, and even though it was rough for a few days, I felt better than ever in the end.

The other possibility is that your products are not gluten-free. Unless they clearly state they are allergen-free, it is a risk to take them. If you suspect gluten, call the manufacturers to see if it is included in the ingredients. You should also ask if the processing plant produces gluten products.

I'm actually going through a situation like this right now. I bought some L-Glutamine that my nutritionist recommended, and felt sick after taking it. I called the manufacturer, who told me half-heartedly that it was gluten-free. I know now that it does have gluten in it, but I've gone through hell because someone gave me the wrong information. So if you do end up calling the manufacturer, make sure you speak with someone who knows what they are talking about. I hope you feel better. Good luck.

-Brian

lorka150 Collaborator

Do you have any other sensitivies or allergies? I am allergic to onions, and I found out that I was getting sick as they were a filler in one of mine.

I agree about the aforementioned acidophilus. Mine, for example, gives instruction to 'ease' into it.

tarnalberry Community Regular

I vaguely recall iron supplements can cause problems, but I don't know the specifics.

rmmadden Contributor

Aside from double-checking to see that your supplements are in fact gluten-free.......Be careful with taking Iron. Some people don't excrete the excess Iron and it builds in the body's cells and can cause all kinds of bad things to the internal organs.

Best of Luck,

Cleveland Bob ;)

Katie618 Apprentice

--

GlutenWrangler Contributor

Katie,

I would keep taking them at least for a few more days. If they still bother you, try a different type of probiotic. I use HLC probiotics and they work very well. I would say if you're not getting any better after ten days, switch and see if you feel better. Good luck,

-Brian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ReneCox Contributor

what are HLC probiotics exactly? and where can you get them?

gfp Enthusiast
thanks for all your answers!! it has definately eased my mind! but do i continue taking the acidopholous? the effects of D are definately starting. i barely could finish dinner before i had to go to the bathroom... (yuck!! sorry for TMI!) my dinner was gluten-free, my supplements are all gluten-free. do you suggest i continue taking them? the acidopholous is about a 30 day supply...do i finish the bottle? or only take it for 2 weeks? i decided on my own to take them because i hear how good they are for ppl with celiac disease.

A bit of D is normal for probiotics ... but you shouldn't be taking significant amounts of iron unless you are deficient... its the number one killer suppliment. (literally killer)

GlutenWrangler Contributor

HLC probiotics are powerful, allergen-free, human derived probiotics. The HLC Intensives have up to 30 billion active cultures per capsule. They also have a line on special probiotics for celiacs called Mindlinx. They have special bacteria that can help to break down gluten and casein in case of accidental ingestion. I get them from RockwellNutrition.com. The service is awesome there.

-Brian

  • 5 months later...
terps19 Contributor

Hey Katie

Are you still taking the probiotics?

I had mad cramping, gas, and some D when I first started taking probiotics. I used to take VSL#3 until I found out I had trouble with dairy. I now take Custom Probiotic's 6 strain blend which has about 270 billion CFU's in a one gram scoop. I know that when I dont take it for a while and then take it I do get D that will last for a few days, but probiotics will most likely help you in the long run. If you still feel crappy for about 2 weeks I would reconsider (either get a new one or just quit them all together for a while).

tmk Explorer

i'm on prescription iron pills for anemia and it has made my diarrhea 10x worse -- i've tried 2 types -- one severely constipated me, the other increased my diarrhea -- i opted to keep using the one that caused diarrhea b/c i couldn't stand the stomach/back cramps from the other. good luck and hope you find out what's causing your problems!

Budew Rookie

For the last year I have had several suppliments suggested by my doctor. All except l-glutamine, coQ10, and probiotics have made me ill.

A couple weeks ago I did a spectracell analysis. Doc says I am missing the trinsic factors that make the body able to utilize the vitamins and minerals. Normal blood tests showed adequate levels but when checked, the body is unable to use several.

This condition causes the body to reject oral suppliments.

I begin injections today. Hope this helps.

  • 2 months later...
lilpup Newbie

Many people may tell you that this is a "cleansing process." I don't believe this one bit. I took a very expensive powdered probiotic blend (no additives/no cellulose capsules/no lactose-derived bacteria/etc) and I reacted very badly to it. My entire body went into immune response mode. I became very anxious, had muscle cramps, acne, headache, the works.

Think about it: you are introduce foreign bacteria into your body. In theory, it will do good things like balance your gut flora and make your digestive issues more bearable. But in practice, your body may react to the bacteria as foreign and may launch an immune response against it. I believe the possibility of a negative response is particularly a risk for people whose bodies are already dealing with gluten/food allergy issues.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    4. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    5. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,756
    • Most Online (within 30 mins)
      7,748

    vickie343
    Newest Member
    vickie343
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.