Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Little Sister


super-sally888

Recommended Posts

super-sally888 Contributor

My little sister was apparently diagnosed with celiac (through some blood test) years ago. The dr. told her that she was marginal and that maybe she could still have some gluten. Anyway, we all know that is wrong.

When i suspected gluten problems for me (about 3 months ago) I talked to her (only at that time did I find out she had probably celiac). She then told me she had been gluten light for 6 months and her symptoms cleared up but that she thought she tolerate gluten and had was eating it from time to time. When I heard I was shocked and asked her to research further. She blew up at me and told me to mind my own business. Ok. At least I tried.

The latest thing I hear (today) is that she was having blood in her stool and symptoms back and is finally going to be completely checked. Endoscopy and biopsy, genetic and immune testing. Whew! Great! I am so pleased that she is really going to check this out for once and for all.

And she just emailed me to tell me that maybe my thryoid prob is caused by gluten! So she's also researching. I don't hope she has celiac. But really it is so important to know and treat/manage this properly.

If she is positive then all my sisters, my mother and my brother will be tested.

Moral of this! patience. And don't give up on helping those you love.

Sally


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bri's mom Apprentice

You sound like a very caring sister. She is lucky to have you. My 21 yr. old daughter's biopsy came back positive for celiac this past Dec. I also have two sons, 30 and 24 yrs. old. Should they be tested for celiac even if they are not having problems. We have not been able to trace back to any family members who had celiac. I don't know much about my dad's people though. It could have come from that side. I hope your sister does well.

Bri's Mom

super-sally888 Contributor

Hi Bri's Mum,

If your daughter has celiac, she must have got the genes from either you or your husband. If you don't know which one of you, both of you should be tested, and your other children. People can have this with no symptoms... but that doesn't mean that damage is not occuring. Hope all works out well.

Sally

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748

    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.