Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Where Can I Eat?


Guest gfinnebraska

Recommended Posts

Guest gfinnebraska
:o I am new to this site, even though I have been what I thought was gluten-free for 13 years. I am discovering, quickly, that I have never been gluten-free!! IF pans, utensils, etc. all lead to cross contamination, how do you ever eat out or eat at someone else's home, etc.?? I am totally depressed and wondering where I go from here!??! I have bought new pans for my home & will keep utensils just for my food, but how can you help not getting contaminated everywhere else? :( What does everyone else do??? HELP!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pamelaD Apprentice

I believe that the separate utensil and pan issue is a controversial one.

I do not have separate pans in my kitchen and have never had a contamination problem. If you clean the dishes very well, there should be no left on gluten on them!

I pay special attention to utensils and strainers used for 'real' pasta, being sure there is no residue on them and that they go through the dishwasher. Gluten cannot be absorbed into rubber/plastic containers.... it can get stuck in cracks or scratches in those containers, but again, if they are cleaned well, it shouldn't be a problem.

A very clean, sanitary kitchen should have very few cross contamination issues, in my opinion.

Pam

jendenise Rookie

I'm with Pam, I also don't see a need to keep seperate pots, pans, utensils, etc... My fiancee and I are very careful about washing everything very well, and everything goes in the dishwasher. I do have a seperate strainer, and I believe that is important because of all the holes and the fact that when noodles are hot they do stick to things easier and w/ a strainer it's hard to tell. We also use seperate cutting boards for food preparation (it keeps the counters clean as well as safeguarding against any possibilities of cross contamination). The only other thing that I believe is important is seperate condiment jars (my mayonaise and butter are labeled w/ my name) this is because of the fact that most people "double dip" their knives into these containers when making a sandwich or buttering bread and why risk it? Other than that the chances are slim, but there's no guarantee and if eating out is a big issue let the server know what's up with Gluten intolerrance, and even bring your own silverware if you think you need to. I carry wheat free soy sauce when we go for sushi. Good Luck!

lovegrov Collaborator

I would agree that some warnings, like those about teflon, might be debatable, but there's no debate at all that you need a separate toaster and new wooden utensils. Wood absorbs everything.

richard

Guest gfinnebraska

Thanks for the advice. About eating out... wouldn't anything they cook be cross contaminated? I have been dealing with this issue for 13 years... but until reading this site extensively, didn't realize the extent of the "cross contamination" issue. If you ordered a burger, steak, chicken ~ the grill would be contaminated. Would a knife they use to make a salad be sterile or would it have been used on other gluten foods?? This whole issue is endless and very frustrating. My only alternative is to go completely gluten-free by making everything myself for at least a month and see if I feel better or different. Any other suggestions?? Thanks for the feedback! :D

MySuicidalTurtle Enthusiast

You take your chances when eating out. If you are really freaked out by cross-contamination just don't eat out. I only go to places that are aware of Celaics. . .like Outback. . .or smaller places thathave glutenfree options and know how to prepare them. I think you should talk to restaurants in person before eating there. Like places close to you house and such.

jendenise Rookie

PF Changs and Wildfire also have Gluten free menu's and "Allergy alerts" for those that let them know they have celiac disease, that way they can use different measures of safety as well as seperate work areas if needed. For the most part though if you let a server know that you are extremely allergic to wheat they'll cook you burger, fish, chicken, etc... in a skillet thet has been cleaned very well. A lot more people in the food industry are becoming aware of celiac disease and the seriousness of it. It can't hurt to ask, and keep them informed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FreyaUSA Contributor

I have quick, rather obvious reactions to both gluten and beef. (Beef I've been avoiding for 10+ years.) I've found that most restaurants have no problem cooking my order in a skillet. I do frequent the same restuarants, however. In general, cross contamination has been very rare. Just make certain to be clear you can't have "bread or wheat" (lol! anything so they understand!) I also try to look up their menus ahead of time online to see if they have a nutrition/ingredient list. I rarely depend on the wait staff for any information, I just order as carefully as possible.

Btw, no one here that I've so far read has mentioned Red Robin, but even though they don't have a gluten-free menu, they have seperate frying baskets for their fries, their seasoning is gluten-free, and they now have a lettuce wrapped burger that's DELICIOUS. But, even before I knew I was intolerant, they were awesome, always nice and accommodating when I needed my turkey burger cooked in a skillet.

Even though I do not agree with Atkins AT ALL, because of the low carb craze, always check the low carb menus at restaurants! 99% just cut out the bread and many offer interesting alternatives for sides.

coin-op Newbie

don't eat it unless you can watch it being made, otherwise you are taking risks.

-cass

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.