Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Could I Have Celiac?


edd

Recommended Posts

edd Newbie

A visit to the doctor 12 months ago resulted in a diagnosis of IBS. However, I now think I may have celiac disease but if it turns out I don't its still one more thing ticked off the 'no' list. My BMs can be normal* for a few days but then I sense a gurgling in my guts, get gas and within a few hours will have D. This is where my symptoms seem to differ from the typical IBS sufferer though; I don't have bad pain, and once I've gone I feel fine and won't go again for a day at which point the BM will usually be normal again. I do however have urgency. Other symptoms are bloating, feeling tired, tired eyes (could be using the computer too much :blink: ) and irritability some days.

*normal doesn't mean the typical sausage BM, just not D.

I'm male, 5'7" and weighed 114 pounds this morning but feel as though I eat enough, just stay thin for some other reason.

Thanks for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Edd,

Your symptoms definitely correspond with celiac disease. IBS is a load of crap, and you definitely shouldn't settle for that type of diagnosis. You need to get tested. If your doctor refuses, as some do, get tested through Enterolab. If you have a problem with gluten, it will show up on an Enterolab test. It's a little expensive, but well worth it to find out one way or another. Your weight itself is a good indicator of celiac disease, since many celiacs cannot put on any weight. I'm 5'10" and about 130, so I know what you're going through. But overall, I think it would be a good idea to get tested right away. Good luck,

-Brian

edd Newbie
Edd,

Your symptoms definitely correspond with celiac disease. IBS is a load of crap, and you definitely shouldn't settle for that type of diagnosis. You need to get tested. If your doctor refuses, as some do, get tested through Enterolab. If you have a problem with gluten, it will show up on an Enterolab test. It's a little expensive, but well worth it to find out one way or another. Your weight itself is a good indicator of celiac disease, since many celiacs cannot put on any weight. I'm 5'10" and about 130, so I know what you're going through. But overall, I think it would be a good idea to get tested right away. Good luck,

-Brian

Brian,

Unfortunately, I am located in the UK and as far as I can tell Enterolab are a US only company. Also, it doesn't really make a difference to me if my doctor confirms I have celiac (or if I'm sensitive to gluten), the thing that really matters is whether I feel better. With this in mind a gluten free diet is now under way.

I've been gluten free (hopefully) since Sunday (the 4th) and am feeling better. I still feel a bit strange at times so cutting out my breakfast porridge is in order. Finding a replacement is a bit of a chore, but walking round the supermarket for a while tonight should resolve the matter.

Thanks for your advice.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

    2. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

    3. - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    4. - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442

    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • glucel
      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
×
×
  • Create New...