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Should I Have My Daughter Biopsied

luckymama

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luckymama Newbie
luckymama
Posted

My 4yr old was diagnosed with celiac disease 2yrs ago- her symptoms were severe, weight loss, distended tummy, etc.... My 6 yr old is thin, tall, bright, but has difficulty staying focused- I best describe it as brain fog. She and I were given the panal to test for celiac. out of the 4 screens 1 area came was out of range for both of us, it was Gliadin Ab IgG. It should be negative <11 . Mine was 26 and hers was 11. I put her on a gluten free diet b/c I was so frustrated with her inability to focus. It has been 2 months and I have seen no visible changes. Help! The nearest reliable pediatric G.I is 12 hours away. Any Suggestions? Did anyone else have a child suffer from brain fog due to celiac?

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rez Apprentice
rez
Posted

Now that she's been gluten free for 2 months, the biopsy would not be accurate. If positive it would be acceptable, but if negative, it could be falsely negative because she healed on the gluten-free diet. You need to be eating gluten in order to see the inflammation and damage. You would have to do a gluten challenge for a few months. If you saw no improvement, personally I would put her back on gluten so she can be properly retested. Good luck.

chrissy Collaborator
chrissy
Posted

AGA antibodies are not a good test for celiac disease----and your daughter's test was only .1 above nrgative----i agree with rez, i'd put her back on gluten to get a proper test done.

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