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Baby Endoscopy Results


gfgypsyqueen

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gfgypsyqueen Enthusiast

Hi,

The baby had her endoscopy and she is now on the gluten-free diet. How soon did you see a noticeable change in your child


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jayhawkmom Enthusiast

I can't help you much since my (little) kiddos are not yet in school. But, I do know that playdough is NOT gluten free. My baby (17 months) would SO put playdough in his mouth if given the opportunity. So, that's something I would be concerned about.

My daughter will start kindergarten next year... and I'll be providing her lunches *always* - I don't trust the school at all.

I hope you have others answer your additional questions, so I can get some pointers too!

Oh... and there is a LOT of information, as well as lists to print out, at Open Original Shared Link !! =)

gfgypsyqueen Enthusiast

I have another child who is already in kindergarten with a different food allergy. Here's what I did, maybe you could modify it to fit your child. I am hoping to modify my copy to make it fit celiacs, I just don't know what items to include with celiacs yet. If you'd like I can send you a copy when mine is complete?

First, as always, introduce yourself to the teacher and plan to visit the teacher several times during the first month. It helps make sure there are no questions or problems that you don't know about. Talk to the cafeteria, even if your child will not eat school lunch.

Make stickers to label any food in the class "gluten-free". Provide a bag/box of safe snacks for your child and replenish often.

Make several laminated sheets about what foods, snacks, craft items etc that your child can eat and use. One side should have a small headshot of your child, the health concerns, and symptoms, your contact numbers, emergency steps, etc. My concern is how does a substitute know which child is which and who has an allergy, etc. I know the nurse tells them, but the laminated sheet seems to work well. One sheet stays in the classroom, one in the cafeteria, one in the nurses office (if they want it they have different forms). I was present the first day my child ate school lunch and a cafeteria worker came out to check the teachers sheet because "she remembered seeing her picture and something about an allergy". That comment alone tells me the laminated sheet worked great!

We needed an epi-pen, so the nurse really wanted a small picture she could attach to the epi-pen instead of the big laminated sheet.

I always call the teacher before a party season and talk about the party, what they might eat, what I can bring, etc. I bring the baked goods.

If possible, store safe cup cakes in the school freezer. or get a monthly update about birthday parties.

Hope some of this helps.

janelyb Enthusiast

I have a food list I found online.....

Open Original Shared Link

oh and playdough can be home made out of riceflour....I think some of the crayola products are gluten-free

Open Original Shared Link

go there and scroll down to school supplies

Juliet Newbie

A lot of Crayola products are gluten free and also free of allergens. Here's a quote from the website:

" Question

Due to allergies and allergy concerns, can you tell me the ingredients in your products?

Answer

The exact ingredients of our products are proprietary, however, we are happy to provide you with the 7 most common ingredient requests NOT FOUND in products currently manufactured by Crayola--This does not include products manufactured under license. Please check packaging carefully to determine manufacturing company.

Peanuts

Shellfish

Fish

Tree Nuts

Eggs

Milk

Latex

(Latex gloves are one of the personal protection options requested by and available to our employees for the occasional handling of raw materials and finished goods during the product manufacturing process.)

We are often asked if any of our products contain gluten (wheat flour). Gluten is contained only in Crayola Dough. Other Crayola modeling materials, including Model Magic modeling compound, Modeling Clay, and Air-Dry Clay are gluten free."

I just got the finger paints from them and my 3 year old had a blast painting yesterday. They also have washable sidewalk paint which we'll be trying soon. I'm thinking of checking out the model magic and see if it's close enough in consistency to Play Dough that it can maybe used with the Play Dough toy sets.

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    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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