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Endoscopy Tomorrow

num1habsfan

By num1habsfan
in Related Issues & Disorders

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num1habsfan Rising Star
num1habsfan
Posted
  • Author
oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

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Yenni Enthusiast
Yenni
Posted

Thinking of you. Eat some Pizza for me too. ;)

Nantzie Collaborator
Nantzie
Posted
Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

HA yeah. Well dad not so bad, but mom...EVERYONE she has talked to tonight, she's told them that not enough fibre and water is the cause of my pains in my large intestine...when what he said was try eating higher fibre and drinking more water, and that my pains are definitely in my colon. a BIG difference between the truth and what she's saying, dont you think?

~ lisa ~

ravenwoodglass Mentor
ravenwoodglass
Posted
And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

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num1habsfan Rising Star
num1habsfan
Posted
  • Author
I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

Thanks again *hugs you back*. It is very very very hard to deal with this. Surprisingly, I havent had a panic attack or anything yet. I've been on the verge tho thats for sure. I'm gonna try to get an internet connection when I'm in Calgary, so I can keep posting. I'll probably just start a new post on Monday tho. I'm so glad you guys keep replying to this one, each reply makes me a little more calmer about things.

<3

~ lisa ~

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hi, I hope you are feeling better. What a tough time you've been having!

I just wanted to suggest that maybe brown rice is not the huge source of fiber that most people think--I believe there is much more fiber in fruit and vegetables. I hate to say it, but if you haven't been eating a lot of those (like, WAY more of them than the brown rice), then your idiot doctor might actually be right.

Can you maybe eat a little less of the brown rice and a little more of the rabbit food when you're done with all your testing?

Also, if you are having such severe intestinal problems, you aren't really drinking coffee, are you? That would be one of the irritating things you could put in your stomach (besides for gluten, of course). Caffeine is also linked to a whole host of neuro problems, which is not what you need right now!

babygirl1234 Rookie
babygirl1234
Posted

i know the feeling my celiac disease is acting up on me to the point that they have me on a sedative for the stomach spams and a pain pill and i feel like crying at times because the pain get that bad after i eat anything they are doing a breathing test for overgrown battira in my bowl my doctor said that sometimes people with celiac disease have overgrowm bactira is that true?

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I havent been drinking too much coffee, I've been filling up on orange juice. I just bought a 2 L jug of it yesterday, and its already over half gone. Since i've had such nasty diarrhea, I've been drinking a lot of fluids (or trying to).

PS: I forgot what Kraft dinner tasted like :lol:

~ lisa ~

  • 4 weeks later...
holdthegluten Rising Star
holdthegluten
Posted

The procedure truly is a breeze... I Was really nervous and requested to be put out under propofol. It was beautiful. No nausea afterward and i woke up and went home in an hour. Dont worry.........it's unnecessary......youll will be fine!

Sesheta Rookie
Sesheta
Posted
Hope all goes well tomorrow. Update us when you can.

I have gone through this twice and I'm terrified of doctor's. I can say the worst thing about this is the IV. Trust me the only thing I remember is them putting a biteguard in my mouth and then the next thing I know I'm back in my room with fiance. I know you'll be alright and I will keep you in my prayers. =^.^=

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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