Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow


num1habsfan

Recommended Posts

num1habsfan Rising Star
oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

Thinking of you. Eat some Pizza for me too. ;)

Nantzie Collaborator
Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

num1habsfan Rising Star
Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

HA yeah. Well dad not so bad, but mom...EVERYONE she has talked to tonight, she's told them that not enough fibre and water is the cause of my pains in my large intestine...when what he said was try eating higher fibre and drinking more water, and that my pains are definitely in my colon. a BIG difference between the truth and what she's saying, dont you think?

~ lisa ~

ravenwoodglass Mentor
And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

num1habsfan Rising Star
Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

ravenwoodglass Mentor
Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star
I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

Thanks again *hugs you back*. It is very very very hard to deal with this. Surprisingly, I havent had a panic attack or anything yet. I've been on the verge tho thats for sure. I'm gonna try to get an internet connection when I'm in Calgary, so I can keep posting. I'll probably just start a new post on Monday tho. I'm so glad you guys keep replying to this one, each reply makes me a little more calmer about things.

<3

~ lisa ~

Fiddle-Faddle Community Regular

Hi, I hope you are feeling better. What a tough time you've been having!

I just wanted to suggest that maybe brown rice is not the huge source of fiber that most people think--I believe there is much more fiber in fruit and vegetables. I hate to say it, but if you haven't been eating a lot of those (like, WAY more of them than the brown rice), then your idiot doctor might actually be right.

Can you maybe eat a little less of the brown rice and a little more of the rabbit food when you're done with all your testing?

Also, if you are having such severe intestinal problems, you aren't really drinking coffee, are you? That would be one of the irritating things you could put in your stomach (besides for gluten, of course). Caffeine is also linked to a whole host of neuro problems, which is not what you need right now!

babygirl1234 Rookie

i know the feeling my celiac disease is acting up on me to the point that they have me on a sedative for the stomach spams and a pain pill and i feel like crying at times because the pain get that bad after i eat anything they are doing a breathing test for overgrown battira in my bowl my doctor said that sometimes people with celiac disease have overgrowm bactira is that true?

num1habsfan Rising Star

I havent been drinking too much coffee, I've been filling up on orange juice. I just bought a 2 L jug of it yesterday, and its already over half gone. Since i've had such nasty diarrhea, I've been drinking a lot of fluids (or trying to).

PS: I forgot what Kraft dinner tasted like :lol:

~ lisa ~

  • 4 weeks later...
holdthegluten Rising Star

The procedure truly is a breeze... I Was really nervous and requested to be put out under propofol. It was beautiful. No nausea afterward and i woke up and went home in an hour. Dont worry.........it's unnecessary......youll will be fine!

Sesheta Rookie
Hope all goes well tomorrow. Update us when you can.

I have gone through this twice and I'm terrified of doctor's. I can say the worst thing about this is the IV. Trust me the only thing I remember is them putting a biteguard in my mouth and then the next thing I know I'm back in my room with fiance. I know you'll be alright and I will keep you in my prayers. =^.^=

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.