Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow


num1habsfan

Recommended Posts

num1habsfan Rising Star
oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yenni Enthusiast

Thinking of you. Eat some Pizza for me too. ;)

Nantzie Collaborator
Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

num1habsfan Rising Star
Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

HA yeah. Well dad not so bad, but mom...EVERYONE she has talked to tonight, she's told them that not enough fibre and water is the cause of my pains in my large intestine...when what he said was try eating higher fibre and drinking more water, and that my pains are definitely in my colon. a BIG difference between the truth and what she's saying, dont you think?

~ lisa ~

ravenwoodglass Mentor
And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

num1habsfan Rising Star
Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

ravenwoodglass Mentor
Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star
I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

Thanks again *hugs you back*. It is very very very hard to deal with this. Surprisingly, I havent had a panic attack or anything yet. I've been on the verge tho thats for sure. I'm gonna try to get an internet connection when I'm in Calgary, so I can keep posting. I'll probably just start a new post on Monday tho. I'm so glad you guys keep replying to this one, each reply makes me a little more calmer about things.

<3

~ lisa ~

Fiddle-Faddle Community Regular

Hi, I hope you are feeling better. What a tough time you've been having!

I just wanted to suggest that maybe brown rice is not the huge source of fiber that most people think--I believe there is much more fiber in fruit and vegetables. I hate to say it, but if you haven't been eating a lot of those (like, WAY more of them than the brown rice), then your idiot doctor might actually be right.

Can you maybe eat a little less of the brown rice and a little more of the rabbit food when you're done with all your testing?

Also, if you are having such severe intestinal problems, you aren't really drinking coffee, are you? That would be one of the irritating things you could put in your stomach (besides for gluten, of course). Caffeine is also linked to a whole host of neuro problems, which is not what you need right now!

babygirl1234 Rookie

i know the feeling my celiac disease is acting up on me to the point that they have me on a sedative for the stomach spams and a pain pill and i feel like crying at times because the pain get that bad after i eat anything they are doing a breathing test for overgrown battira in my bowl my doctor said that sometimes people with celiac disease have overgrowm bactira is that true?

num1habsfan Rising Star

I havent been drinking too much coffee, I've been filling up on orange juice. I just bought a 2 L jug of it yesterday, and its already over half gone. Since i've had such nasty diarrhea, I've been drinking a lot of fluids (or trying to).

PS: I forgot what Kraft dinner tasted like :lol:

~ lisa ~

  • 4 weeks later...
holdthegluten Rising Star

The procedure truly is a breeze... I Was really nervous and requested to be put out under propofol. It was beautiful. No nausea afterward and i woke up and went home in an hour. Dont worry.........it's unnecessary......youll will be fine!

Sesheta Rookie
Hope all goes well tomorrow. Update us when you can.

I have gone through this twice and I'm terrified of doctor's. I can say the worst thing about this is the IV. Trust me the only thing I remember is them putting a biteguard in my mouth and then the next thing I know I'm back in my room with fiance. I know you'll be alright and I will keep you in my prayers. =^.^=

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.