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Negative Blood Test?

munnky

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munnky Newbie
munnky
Posted

Hi! I'm new here, Tori, 28/F, married, 1 daughter. I've been sick for about 9 years now, originally diagnosed with fibromyalgia and then a formal diagnosis of Ehlers Danlos Syndrome three years later (making the fibro secondary).

I am not convinced that fibro is all that is wrong with me, as I also have IBS, GERD and extreme fatigue - as well as weight gain that will not come off no matter what I do. About three years ago, I had a blood test done to check for celiac disease (not sure which one) and it came back negative. I still think there's a possibility of food allergies, though, and wheat/gluten seems the most likely choice.

I am going back to see the dr next week and ask for another blood test for food allergies, including gluten. I just was wondering, could I still have a gluten intolerance with a negative blood test?

Also, I started on a gluten free diet today - will this hurt anything if I'm not gluten-intolerant?

Thanks so much!

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AndreaB Contributor
AndreaB
Posted

The gluten free diet is not bad. As long as you balance out your nutrients by eating a variety of fresh fruits/veggies etc you should be ok. The way I see it, any diet can be bad if you don't eat a variety of fresh foods.

You could have an intolerance, or non-celiac gluten sensitivity which wouldn't show up on blood tests for celiac. If you have an allergy test done make sure your doctor tests for both IgE (immediate)/IgG (delayed) allergies. The intolerance will more than likely show up with the IgG. If it was IgE you would know right away it was a problem.

Judyin Philly Enthusiast
Judyin Philly
Posted

HI

I'd like to suggest you ck out this thread "Reliability Of Stool Tests For Diagnostic ?" that is running right now.

you might find some answers to help you on there.

I just posted on that thread.

I still feel that the gluten-free diet, if it helps you, is the way to go.

In my other post, i didn't include in the absence of symptoms in the first 3-5 months on the diet, the disappearance of the fibro pain.

It is still 80% better than it was before going gluten-free..

Good luck and let us know how you do at the dr. next week.

Judy

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      I don't see how cornstarch could alter the test results. Where did you read that?
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    • Julie 911
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      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
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      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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