Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten - Other Food Intolerances


Guest Greggy

Recommended Posts

Guest Greggy

Hi all,

Im a new member here. Definately have a problem with gluten i know that. Been doing well when i havent slipped up on the gluten-free diet ;)

Just wondering about oher food intolerances. I know celiac/ G intolernance can cause other food intolerances because of the damage that is done to the intestinal villi. I wanted to know if most of us can expect, in time, after our intestines have healed on a G F diet (I know this can take a long time) that our other food intolerances go as well. Im thinking that it may not be as siple as this??

Thanks

Greg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

I think this is really going to be individual. I have heard that many people can't handle dairy while they are healing and they may be able to handle it later. I never had a problem with dairy at all. I did find out that I can't have nightshades - tomatoes, potatoes, eggplant, green pepper. I have been on the diet a while and I'm feeling great and I still can't handle those. Many people have intolerances other than gluten that don't go away on the gluten-free diet.

So, you may find changes in what you can tolerate as you heal but I wouldn't expect all other intolerances to go away. You may also find there are more things that you can't have now - maybe not because they are new intolerances but because you are feeling so much better that you can actually tell when another food makes you sick.

I have also found that I can't tolerate things like nitrates and MSG. I don't know if I always had a problem with them and just felt so crappy from eating gluten that I didn't know, or if this is a new thing since I'm eating soooo healthy now.

kabowman Explorer

I have not been DX with celiac disease so I can't speak to that aspect. However, I have many food intolerances and most of my mom's side of the family does too, which I didn't learn about until after I started to tell everyone my discoveries. It was not known exactly what everyone's problems were before but most of the family knows now what their intolerances are, at least the ones that care about their health enough to fix it.

I know mine continue to get worse but again, these are just intolerances, not celiac disease.

Guest Greggy

Thanks both of you :rolleyes:

Just to clarify - is it only celiac that causes damage to the intestines & not GI? I have read that somewhere. Also is it likely that I have other allergies / intolerances? Without wishing to sound glib or naieve if certian intolerances dont majorly effect me symptom wise is there a desperate need to remove such items from my diet?

Greg

Guest cassidy

I found after I went gluten-free that I felt amazing. I have never felt this good in my life. Potatoes and tomatoes give me a stomach ache and D. I am so used to feeling good now that I don't want to eat those things because I don't want to feel bad anymore now that I know how to prevent it.

I also asked people if it was ok to cheat on foods you seem to be intolerant to and other people have had serious long-term complications that they believe are due to eating things that they are intolerant to (not gluten). I can't imagine that D is good for your system regardless of the cause, so I choose not to eat those things. I do know that if you are gluten intolerant you can have long-term serious symptoms from consuming gluten, so that isn't one that you want to cheat on. There is all sorts of info about more neurological symptoms with gluten intolerance, so while I'm not positive if I have celiac or intolerance, I never cheat with gluten - plus it makes me horribly ill.

On the other hand, pineapple, strawberries and bananas make my mouth feel funny. They don't do it all the time and the amount of them I eat affects my symptoms. So, while I don't make banana, strawberry and pineapple fruit salads on a regular basis, I will have a few bites of them every once in a while.

If you are healing from going gluten-free and you continue to eat other foods that you seem to be intolerant to, I liken that to drinking a 6 pack of beer when you have a cold. Why put that much stress on your body? It can't make things better.

If it was me and I was new to the diet, I would exclude all things that I seem intolerant to and maybe introduce them one at a time after a couple of months and see if I still have symptoms and if so, how bad they are.

Guest Greggy

Thanks for that. I agree wit you & am on the look out for other intolerances.

Since I did my gluten "test" last week /weekend (aafter 3 weeks of blissful good health off gluten) I have felt worse than ever this week - major fatigue, pain, IBS, sore bleeding gums & a really sensitve throat & tight chest. Could all these be symptoms be from gluten? It feels like my muscles in my upper body are on fire :huh: I think the answer is YES but it would be nice to hear it from those in the know...

Thanks for your advice

Greg

Guest cassidy

Yes, if you felt great off gluten and then ate gluten and got all sorts of symptoms, they are probably from the gluten.

I get D, stomach ache that lasts for several hours, headache that lasts for about a day, I have to pee frequently, brain fog for several days, anxiety to the point of being paranoid which lasts for about a week. So, I tend to think that gluten can cause many different symptoms.

Hope you feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ltrain917 Newbie
I think this is really going to be individual. I have heard that many people can't handle dairy while they are healing and they may be able to handle it later. I never had a problem with dairy at all. I did find out that I can't have nightshades - tomatoes, potatoes, eggplant, green pepper. I have been on the diet a while and I'm feeling great and I still can't handle those. Many people have intolerances other than gluten that don't go away on the gluten-free diet.

So, you may find changes in what you can tolerate as you heal but I wouldn't expect all other intolerances to go away. You may also find there are more things that you can't have now - maybe not because they are new intolerances but because you are feeling so much better that you can actually tell when another food makes you sick.

I have also found that I can't tolerate things like nitrates and MSG. I don't know if I always had a problem with them and just felt so crappy from eating gluten that I didn't know, or if this is a new thing since I'm eating soooo healthy now.

I'm trying to figure out what I can eat. So far, I think I have problems with gluten, corn, rice, tomatoes, dairy and artichokes. What else is out there that can provide enough nutrients to keep me going? What is this diet that has you feeling so good?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.