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Coping Mechanisims?


Tash-n-tail

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Tash-n-tail Rookie

I "poisoned" myself this week having a small bar of chocolate as a treat -- could swear I've not reacted to the stuff before but there was no denying the breathing difficulties, swollen ankles, stomach pains and bathroom visits. I've been very disciplined and follow a strict elimination diet since Easter of 2006. I've been completely wheat and gluten free since October last year.

Does anyone have tips on coping with the emotional mood swings that go with this complaint. I find that 24 hours after being exposed to gluten I am a not only physically unwell but for days I'm so volatile that I want a holiday away from myself. Since I'm gluing myself back together and focusing on completing my studies and getting my career on track again. Actually surviving such an episode and not climbing into bed and waiting my way thru' the experience for a few weeks would be an advantage.


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Debbie65 Apprentice

I think you deserve kudos for realising that you have these mood swings.

I just make life hell for anybody within a 3 mile radius, My 17 year old said "it

Guest cassidy

I don't know how bad your mood swings are but gluten gives me anxiety to the point of getting paranoid sometimes. I take xanax after I'm glutened and it really helps with those symptoms. It is much harder to deal with physically not feeling well if you are mentally a mess as well. I like xanax because it works within 20 minutes and doesn't make me feel funny at all, just normal again. I never both taking medicine for the physical symptoms but I definitely prefer it for the mental ones.

Other than that, I guess realizing that you are having mood swings is the best that you can do. I try to warn my husband and those around me so they can tell me if I'm acting strange and I can try to calm down and realize it is the gluten that is making me react a certain way.

darlindeb25 Collaborator

Very good advice from both. The one thing we must remember is--this too will pass. I do not think I ever lashed out at others, I have been accused of holding too much inside and making myself crazy!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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