Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Testing For Gall Bladder


plantime

Recommended Posts

plantime Contributor
I have been sick from my gall bladder all summer, and had trouble getting a doctor to test it. One of the tests ordered was an endoscopy, which was done last Wed. GI doc found two "patches of inflammation" that he took biopsies from. The gall bladder doc (2 different docs, here) read the results of the biopsies to me, telling me there was inflammation in two spots with blunting. When I asked Blunted what? he said villi. I said "Oh, that's the celiac rearing it's ugly head." He said "Ok, then you know what that is all about!" It sure felt good to already know and understand what the doctor was afraid to tell me! My gall bladder does have to come out. That will happen tomorrow at noon. I had previously been diet-diagnosed, now, by accident, I am also biopsy-diagnosed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



92939 Newbie

;) Dessa, may God be with you in your surgery and during your recovery.

Also did you have hurting in your side and back before you were diagnosed with your gallbladder trouble, because my brother has been having a hurting in his right side around his waist and in his back around that area and won't go to the doctor.

Sincerely

Jean of NC

plantime Contributor

I have a lot of pain in my right side, just under the ribcage. It feels like someone is running a hot poker from my front through my back, and it's coming out just under the right shoulder blade. 30 minutes after eating something with fat (dairy and meats are my triggers), I get the pain, and acid indigestion. About 4 hours later, I have to go do a #2, and it is acidic. It took a biliary scan to learn that it was the gall bladder. I wish your brother would see his doctor. Pain is not something to ignore for very long!

Guest jhmom

Dessa, you are in my thoughts and prayers and I hope you find some relief soon!

Please let us know how you are doing, Take care :)

Canadian Karen Community Regular

Hi!

Just wanted to mention that a very close friend of mine had her gall bladder out about six months ago after suffering with the pain for about 3 years. She has never felt better in her life! She is so glad she had it done!!

Good health vibes being sent your way!

Karen

j9n Contributor

Good luck on your surgery, I hope you feel better soon.

I am curious, I have the same pain and have had an ultrasound and ct scan which are normal. I have not had a biliary scan though. The pain always accompanies diarrhea and the sensitive spot in my back is painful to touch. I sat in one of those massaging chairs and when it hit there I was in pain. The doctor shrugged it off but I am not quite convinced

plantime Contributor

For my gall bladder, I had one xray, two ultrasounds, and a ct scan, all of which came back normal. The biliary scan came back normal on function, but abnormal on reaction. It was the only test that even hinted something was wrong with the gall bladder. It was removed today, and for the first time since April, I was able to eat without pain and nausea. I had the laparascopic surgery, and the only pain I have is the incisions (4 of them, all very small) themselves. I had to stand my ground with two of the doctors that were treating me, and tell them to forget about the insurance, I wanted it out! GB doc said I would only have a 50/50 chance of getting better after the surgery, so I told him I was willing to take that risk. I already feel so much better, it is almost unreal, and it has only been 12 hours since the operation! Stick to your guns. Insist on more definitive tests, and if you think it's necessary, surgery. One thing I learned with Celiac, is that my health is my responsibility, and I have to make sure it is taken care of!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mcalister14 Rookie

:lol: I'm glad that your surgery went well. It's such a great feeling when things go the way they are supposed to!

Best wishes to you!

Stacy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748

    TGreen
    Newest Member
    TGreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.