Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going For The Scope?


Marlene

Recommended Posts

Marlene Contributor

Hey,

I have been gluten/casein free for 9 1/2 months. While I have seen major improvement in some areas, I continue to struggle with upper abdominal issues. I get this upper abdominal pain sometimes accompanied by nausea. The pain can last anywhere from a few hours to a few days or even a week. Spicy foods, acidic foods, caffeine, chocolate, and stress really seem to aggravate it. It seems to get worse when my stomach is empty. I am also still losing weight. I have gone from a size 12 to a size 6 in the last year and a half. I still feel tired and often weak.

I really think there is something still wrong with my small intestine/duodenal area. Ulcers, maybe?? I had a blood test for H Pylori about 1 1/2 years ago. It came back negative. However, I have learned since then that if you are taking Pepto Bismal (which I was practically living on at the time) you can get a false negative.

I really think I should get an endoscopy and biopsy of my small intestine to see if there is anything else going on. As much as I can't handle anything stuck down my throat. Do they put you completely out for this procedure? I really hope so.

Any similar experiences or advice for me?

Thanks!

Marlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deedub Rookie

I just had one done this past wednesday, it really was soo easy, quick, painless. I didn't even need to sleep off the drugs the rest of the day. I was put out, but not totally..more like a twilight state..not too bad at all. Apparently its' considered the best test for these GI issues, but still not always accurate.

Good luck, it's really not a big deal at ALL..really !

Dave

jmengert Enthusiast

The drug they gave me was for "conscious sedation," but once that stuff went into my IV, the next thing I remember is getting wheeled back to the recovery area. I slept and laid around the rest of the day, but it was really no big deal--and I was *terrified* of having the procedure done. Just make sure to have someone there with you to drive you home and have it in the morning since you can't eat or drink after midnight. I took the day off from work but was fine to go back to teaching the next day.

Good luck--I hope they can figure out what's going on.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,074
    • Most Online (within 30 mins)
      7,748

    Amy1620
    Newest Member
    Amy1620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.