Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing Information

cchhrriiss

Recommended Posts

cchhrriiss Newbie
cchhrriiss
Posted

I watched the View, and saw that there was a gene test to find out if you carry a gene that could cause celiac. How accurate is that test? If you are negative does that mean that you can't get celiac? I can't go back on gluten it gives me a severe rash on my face. Iv'e tried 9 times . My derm has finally given up after a year of treatment, and said, stay away from gluten. I have tried 7 months of antibiotics, steriods, and 5 months of Accutane. He said, he has no idea why I get this rash. He doesn't think it's DM. He would like to send me to the Mayo clinic. I'm not convinced that it's not DM, but maybe just an intolerance. Either way this forum has been great. I would like to know for sure. Any help would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

A gene test is absolutely accurate (unless they mix up samples, which is uncommon). Your genes don't change.

They can test your rash to see if it's DH. It wouldn't be that hard.

tarnalberry Community Regular
tarnalberry
Posted

The gene test is accurate and precise - it'll tell you if you have the known genes for celiac disease. It won't tell you if you have the genetic makeup that makes you susceptible to developing gluten intolerance or the other genes that haven't yet been identified covering the rest of the people who have diagnosed celiac disease, and it won't tell you if you have the active disease or not.

cyberprof Enthusiast
cyberprof
Posted
The gene test is accurate and precise - it'll tell you if you have the known genes for celiac disease. It won't tell you if you have the genetic makeup that makes you susceptible to developing gluten intolerance or the other genes that haven't yet been identified covering the rest of the people who have diagnosed celiac disease, and it won't tell you if you have the active disease or not.

Hi Tiffany,

I'm in Seattle too.

Can anyone tell me how much a gene test is and how likely I could get insurance to pay for my son's test, given my diagnosis?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,749
    • Most Online (within 30 mins)
      7,748
    Harri
    Newest Member
    Harri
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Tea Bags and Gluten

      By Beverage · Posted

      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.